Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Article Shared By Dietitian Who Doesn't Believe Celiac Exists....

DingoGirl

Recommended Posts

DingoGirl Enthusiast
DingoGirl
Posted

HI everybody,

 

I haven't posted in AGES here!  [not sure I'm posting this in the right spot?] But this article  - rather, the dietitian who posted it, got me rather agitated. 

 

 

Long long story (which I have just deleted) - but there is a dietitian with whom I am somewhat acquainted (who riles me up! she doesn't believe Celiac exists) who posted this writing (she did not write it) on her FB page last night.  This article makes me quite sad.....the dietitian's intent was to convey to her mainly eating-disorder clients that it is okay to not diet, accept your weight, etc.....but I was smacked in the head with this poor man's untreated (I presume) celiac and slow, horrible death.  HIs daughter wrote the article and i have left a comment today (SusieQ) which may or may not show up yet.

 

Take a look -

xo.

 

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Didn't see your comment. Maybe its not approved yet? Or I missed it?

I'm a little confused. This dietician who doesn't " believe" in Celiac posted this on her website? But the dietitician isn't the author, right? She just re- posted it?

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

Yes.....dietitian shared this on Facebook for her patients, but she didn't write it. 

 

My comment not there? hmmm.....maybe takes a while.  Or maybe it was too stupid?  ;)

kareng Grand Master
kareng
Posted

Yes.....dietitian shared this on Facebook for her patients, but she didn't write it. 

 

My comment not there? hmmm.....maybe takes a while.  Or maybe it was too stupid?  ;)

Did you share this on FB? I thought I saw it earlier.

On the site you link to, there don't appear to be any comments in the last few days.

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

I ranted about it on a FB page.....probably showed up in the feed. 

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

Karen, I see you found me on there....my rants  ;)  did you see the article that was posted today, on that same site?  OH MY LORD......my ranting goes on there as well.....   :ph34r:

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

Now I feel bad.....I am wondering if I should have this post removed?  Didn't know my rants could be traced on FB....and the dietitian's identity known !  What do you think, Kareighnne?

 

Could simply post the article the girl wrote.....

 

I dunno.  Where is Poeter?  Let him decide :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Now I feel bad.....I am wondering if I should have this post removed?  Didn't know my rants could be traced on FB....and the dietitian's identity known !  What do you think, Kareighnne?

 

Could simply post the article the girl wrote.....

 

I dunno.  Where is Poeter?  Let him decide :)

I can find them because we are FB friends. Edit/ Change the dietitians name to Beelezbub and it will be harder for people who don't know you to find.

psawyer Proficient
psawyer
Posted

Well, I didn't see anything on FB and I am also a friend. The item linked to is harmless, but does not tie in with this supposed dietitian.

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

HI Poeter ! I just re-wrote my whole introductory post. ;) 

 

And, my comment is awaiting moderation.....sadly, I don't think she'll allow it.  was hoping more Celiacs would join in and also comment.  I don't know why but this article,  in connection with the dietitian who posted it (this is most likely the reason - my intense concern about her methods/beliefs as a dietitian) has got me rather riled !   Must head out now.....gorgeous day here.

 

my comment:

 

I am sorry for the loss of your father, and his struggles, this is so terribly sad and this is how Celiacs often die. What SCREAMS OUT at me in your beautifully-written article is his untreated Celiac Disease (“scarred intestines” CAN improve!)….gluten kills Celiacs. Period. Had he followed a strict, gluten-free diet from the time of diagnosis (did he? I am presuming he did not – forgive me if I am in error), his life would have changed dramatically and he would have dropped weight very easily (assuming he didn’t load up on gluten-free snacks). You are Vikings….Celiac is hugely common in Scandinavia (you can get gluten-free Big Macs there!), and it is a *genetic* auto-immune disorder which kills slowly and is truly miserable. One may have it without displaying symptoms for a long, long while….but I would bet every possession and penny I own that you have it too, beautiful one. Please don’t suffer as your father did…it is entirely avoidable. If you are interested in learning more, go to a website such as Celiac.com (check out the topics in the forum) and read up because in this country, where medicine and doctors are controlled by Big Pharma and very income-driven, Celiac is grossly and sadly misdiagnosed…my own diagnosis took decades and I verged on the brink of malnourished death. God bless! x.

jerseyangel Proficient
jerseyangel
Posted

Wonderful response Soozle.

elye Community Regular
elye
Posted

Way to go, Soooozle....  :)

Lisa Mentor
Lisa
Posted

YES!  Good Job Susan, or Suzzells.  You can put it out there and hope that it's accepeted. That's all you can do.  You did good. :)

Loey Rising Star
Loey
Posted

HI Poeter ! I just re-wrote my whole introductory post. ;)

 

And, my comment is awaiting moderation.....sadly, I don't think she'll allow it.  was hoping more Celiacs would join in and also comment.  I don't know why but this article,  in connection with the dietitian who posted it (this is most likely the reason - my intense concern about her methods/beliefs as a dietitian) has got me rather riled !   Must head out now.....gorgeous day here.

 

my comment:

 

I am sorry for the loss of your father, and his struggles, this is so terribly sad and this is how Celiacs often die. What SCREAMS OUT at me in your beautifully-written article is his untreated Celiac Disease (“scarred intestines” CAN improve!)….gluten kills Celiacs. Period. Had he followed a strict, gluten-free diet from the time of diagnosis (did he? I am presuming he did not – forgive me if I am in error), his life would have changed dramatically and he would have dropped weight very easily (assuming he didn’t load up on gluten-free snacks). You are Vikings….Celiac is hugely common in Scandinavia (you can get gluten-free Big Macs there!), and it is a *genetic* auto-immune disorder which kills slowly and is truly miserable. One may have it without displaying symptoms for a long, long while….but I would bet every possession and penny I own that you have it too, beautiful one. Please don’t suffer as your father did…it is entirely avoidable. If you are interested in learning more, go to a website such as Celiac.com (check out the topics in the forum) and read up because in this country, where medicine and doctors are controlled by Big Pharma and very income-driven, Celiac is grossly and sadly misdiagnosed…my own diagnosis took decades and I verged on the brink of malnourished death. God bless! x.

 

What an eloquent post. I'm very proud of you! If the moderator doesn't post your reply then it's a very sad commentary. There was not anything you wrote that was questionable. I agree that you should change the doc's name to Beelzebub - (quite fitting under the circumstances). You go girlfriend!!!

 

I was very close with my cousin who was "morbidly obese." She got lap band surgery and it turned out her stomach was riddled with cancer and due to the surgery it wasn't found in time. She passed on within 3 months. I wasn't diagnosed with Celiac at that time but I wonder if she suffered from it.

 

Love,

Loey

dilettantesteph Collaborator
dilettantesteph
Posted

I read that story, and I couldn't see where he had celiac disease.  Anyone want to help me with that?

kareng Grand Master
kareng
Posted

I read that story, and I couldn't see where he had celiac disease.  Anyone want to help me with that?

 

 

"Eventually, doctors found he had celiac disease. A wasting disease. No one had bothered to look for such a condition in a fat man. Years of being in and out of the hospital, and no one asked why he was throwing up all his food. They joked it was probably for the best that his GI system wasn’t working well."

dilettantesteph Collaborator
dilettantesteph
Posted

"Eventually, doctors found he had celiac disease. A wasting disease. No one had bothered to look for such a condition in a fat man. Years of being in and out of the hospital, and no one asked why he was throwing up all his food. They joked it was probably for the best that his GI system wasn’t working well."

 

Thank you Kareng.  I must have a worse case of brain fog than I thought.  When I looked again I don't see how I could have missed it.

psawyer Proficient
psawyer
Posted

I read that story, and I couldn't see where he had celiac disease.  Anyone want to help me with that?

Thirteenth paragraph, first sentence: "Eventually, doctors found he had celiac disease."
dilettantesteph Collaborator
dilettantesteph
Posted

Thank you too Peter.  Kareng already answered above.  Maybe I'm not the only one with brain fog... :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
    3. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was...
    4. Amy Barnett
      - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

      What is the best liquid multivitamin for celiac disease?
    5. Scott Adams
      0

      Quick Gluten-Free Shrimp Stir-Fry With Crisp Vegetables

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.