Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Article Shared By Dietitian Who Doesn't Believe Celiac Exists....

DingoGirl

Recommended Posts

DingoGirl Enthusiast
DingoGirl
Posted

HI everybody,

 

I haven't posted in AGES here!  [not sure I'm posting this in the right spot?] But this article  - rather, the dietitian who posted it, got me rather agitated. 

 

 

Long long story (which I have just deleted) - but there is a dietitian with whom I am somewhat acquainted (who riles me up! she doesn't believe Celiac exists) who posted this writing (she did not write it) on her FB page last night.  This article makes me quite sad.....the dietitian's intent was to convey to her mainly eating-disorder clients that it is okay to not diet, accept your weight, etc.....but I was smacked in the head with this poor man's untreated (I presume) celiac and slow, horrible death.  HIs daughter wrote the article and i have left a comment today (SusieQ) which may or may not show up yet.

 

Take a look -

xo.

 

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Didn't see your comment. Maybe its not approved yet? Or I missed it?

I'm a little confused. This dietician who doesn't " believe" in Celiac posted this on her website? But the dietitician isn't the author, right? She just re- posted it?

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

Yes.....dietitian shared this on Facebook for her patients, but she didn't write it. 

 

My comment not there? hmmm.....maybe takes a while.  Or maybe it was too stupid?  ;)

kareng Grand Master
kareng
Posted

Yes.....dietitian shared this on Facebook for her patients, but she didn't write it. 

 

My comment not there? hmmm.....maybe takes a while.  Or maybe it was too stupid?  ;)

Did you share this on FB? I thought I saw it earlier.

On the site you link to, there don't appear to be any comments in the last few days.

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

I ranted about it on a FB page.....probably showed up in the feed. 

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

Karen, I see you found me on there....my rants  ;)  did you see the article that was posted today, on that same site?  OH MY LORD......my ranting goes on there as well.....   :ph34r:

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

Now I feel bad.....I am wondering if I should have this post removed?  Didn't know my rants could be traced on FB....and the dietitian's identity known !  What do you think, Kareighnne?

 

Could simply post the article the girl wrote.....

 

I dunno.  Where is Poeter?  Let him decide :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Now I feel bad.....I am wondering if I should have this post removed?  Didn't know my rants could be traced on FB....and the dietitian's identity known !  What do you think, Kareighnne?

 

Could simply post the article the girl wrote.....

 

I dunno.  Where is Poeter?  Let him decide :)

I can find them because we are FB friends. Edit/ Change the dietitians name to Beelezbub and it will be harder for people who don't know you to find.

psawyer Proficient
psawyer
Posted

Well, I didn't see anything on FB and I am also a friend. The item linked to is harmless, but does not tie in with this supposed dietitian.

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

HI Poeter ! I just re-wrote my whole introductory post. ;) 

 

And, my comment is awaiting moderation.....sadly, I don't think she'll allow it.  was hoping more Celiacs would join in and also comment.  I don't know why but this article,  in connection with the dietitian who posted it (this is most likely the reason - my intense concern about her methods/beliefs as a dietitian) has got me rather riled !   Must head out now.....gorgeous day here.

 

my comment:

 

I am sorry for the loss of your father, and his struggles, this is so terribly sad and this is how Celiacs often die. What SCREAMS OUT at me in your beautifully-written article is his untreated Celiac Disease (“scarred intestines” CAN improve!)….gluten kills Celiacs. Period. Had he followed a strict, gluten-free diet from the time of diagnosis (did he? I am presuming he did not – forgive me if I am in error), his life would have changed dramatically and he would have dropped weight very easily (assuming he didn’t load up on gluten-free snacks). You are Vikings….Celiac is hugely common in Scandinavia (you can get gluten-free Big Macs there!), and it is a *genetic* auto-immune disorder which kills slowly and is truly miserable. One may have it without displaying symptoms for a long, long while….but I would bet every possession and penny I own that you have it too, beautiful one. Please don’t suffer as your father did…it is entirely avoidable. If you are interested in learning more, go to a website such as Celiac.com (check out the topics in the forum) and read up because in this country, where medicine and doctors are controlled by Big Pharma and very income-driven, Celiac is grossly and sadly misdiagnosed…my own diagnosis took decades and I verged on the brink of malnourished death. God bless! x.

jerseyangel Proficient
jerseyangel
Posted

Wonderful response Soozle.

elye Community Regular
elye
Posted

Way to go, Soooozle....  :)

Lisa Mentor
Lisa
Posted

YES!  Good Job Susan, or Suzzells.  You can put it out there and hope that it's accepeted. That's all you can do.  You did good. :)

Loey Rising Star
Loey
Posted

HI Poeter ! I just re-wrote my whole introductory post. ;)

 

And, my comment is awaiting moderation.....sadly, I don't think she'll allow it.  was hoping more Celiacs would join in and also comment.  I don't know why but this article,  in connection with the dietitian who posted it (this is most likely the reason - my intense concern about her methods/beliefs as a dietitian) has got me rather riled !   Must head out now.....gorgeous day here.

 

my comment:

 

I am sorry for the loss of your father, and his struggles, this is so terribly sad and this is how Celiacs often die. What SCREAMS OUT at me in your beautifully-written article is his untreated Celiac Disease (“scarred intestines” CAN improve!)….gluten kills Celiacs. Period. Had he followed a strict, gluten-free diet from the time of diagnosis (did he? I am presuming he did not – forgive me if I am in error), his life would have changed dramatically and he would have dropped weight very easily (assuming he didn’t load up on gluten-free snacks). You are Vikings….Celiac is hugely common in Scandinavia (you can get gluten-free Big Macs there!), and it is a *genetic* auto-immune disorder which kills slowly and is truly miserable. One may have it without displaying symptoms for a long, long while….but I would bet every possession and penny I own that you have it too, beautiful one. Please don’t suffer as your father did…it is entirely avoidable. If you are interested in learning more, go to a website such as Celiac.com (check out the topics in the forum) and read up because in this country, where medicine and doctors are controlled by Big Pharma and very income-driven, Celiac is grossly and sadly misdiagnosed…my own diagnosis took decades and I verged on the brink of malnourished death. God bless! x.

 

What an eloquent post. I'm very proud of you! If the moderator doesn't post your reply then it's a very sad commentary. There was not anything you wrote that was questionable. I agree that you should change the doc's name to Beelzebub - (quite fitting under the circumstances). You go girlfriend!!!

 

I was very close with my cousin who was "morbidly obese." She got lap band surgery and it turned out her stomach was riddled with cancer and due to the surgery it wasn't found in time. She passed on within 3 months. I wasn't diagnosed with Celiac at that time but I wonder if she suffered from it.

 

Love,

Loey

dilettantesteph Collaborator
dilettantesteph
Posted

I read that story, and I couldn't see where he had celiac disease.  Anyone want to help me with that?

kareng Grand Master
kareng
Posted

I read that story, and I couldn't see where he had celiac disease.  Anyone want to help me with that?

 

 

"Eventually, doctors found he had celiac disease. A wasting disease. No one had bothered to look for such a condition in a fat man. Years of being in and out of the hospital, and no one asked why he was throwing up all his food. They joked it was probably for the best that his GI system wasn’t working well."

dilettantesteph Collaborator
dilettantesteph
Posted

"Eventually, doctors found he had celiac disease. A wasting disease. No one had bothered to look for such a condition in a fat man. Years of being in and out of the hospital, and no one asked why he was throwing up all his food. They joked it was probably for the best that his GI system wasn’t working well."

 

Thank you Kareng.  I must have a worse case of brain fog than I thought.  When I looked again I don't see how I could have missed it.

psawyer Proficient
psawyer
Posted

I read that story, and I couldn't see where he had celiac disease.  Anyone want to help me with that?

Thirteenth paragraph, first sentence: "Eventually, doctors found he had celiac disease."
dilettantesteph Collaborator
dilettantesteph
Posted

Thank you too Peter.  Kareng already answered above.  Maybe I'm not the only one with brain fog... :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,004
    • Most Online (within 30 mins)
      7,748
    Daffodil
    Newest Member
    Daffodil
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Wheatwacked
      Chances of being coeliac

      By Wheatwacked · Posted

      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Celiac getting dentures

      By captaincrab55 · Posted

      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Aretaeus Cappadocia · Posted

      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      Chances of being coeliac

      By trents · Posted

      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.