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How Long Does It Take To Feel Better?


eblue

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eblue Apprentice

Hey everyone. I am newly diagnosed. I have been off of gluten for 8 days now and can already tell a difference. I am by no means well yet, but compared to how I was feeling, I would say this is an improvement. Is it normal to start feeling relief that soon after going gluten free? I know that I will not be completely better for quite some time, and I know that my intestines still have a lot of healing to do. But as far as relief of my symptoms, I can already tell a difference. I am still having stomach cramps, bloating, etc, but it is deffiantely not as severe as what I was experienceing before being diagnosed. Is it normal to feel relief so soon? How long did it take you until you began to feel a difference?


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kareng Grand Master
cyclinglady Grand Master

Seven weeks before I really felt much better.  Still working on anemia, etc.  That might take over a year.

nvsmom Community Regular

My GI symptoms improved within days, well some of them did. Many other symptoms improved over the next two or so months, and yet other symptoms are still being improved after 11 months. It is a very individual rate. I hope you are one of the lucky quick healers. Good luck!

Brandiwine Contributor

The first week I had great improvements, consistent stools no more diarrhea, less nausea, less pain. The first few weeks were like a roller coaster ride! I went through with drawls, I got very emotional and very sleepy wanted to sleep all of the time. Went through a period of thinking I would lose it if I didn't have some cake or a doughnut or biscuits or French bread like NOW!!! Lol but I got through and still improving :)

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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