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Gluten-Free Oats

VeggieGal

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VeggieGal Contributor
VeggieGal
Posted

So its coming up to me being gluten-free now for nearly 6 months. I asked my dietician if I could now try gluten-free oats.

She told me that I need to have a blood test first to make sure my blood is free of gluten and if so, I can try the oats and then she'd like to monitor me by giving me another blood test to see if the oats have any affect on me.

I suppose it makes some sense but is this normal practice?

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Adalaide Mentor
Adalaide
Posted

Psh... my blood tests were negative when my blood was drawn on the same day as my biopsy was positive. I haven't bothered wasting my time with follow up blood tests, although I honestly wish there were a point just so I knew it was going well.

 

That said, frankly I wouldn't let a doctor, dietician or nutritionist tell me what to eat, when to eat it or how I should be monitored in regards to my diet. I decided I wanted oatmeal, so I had some. It didn't make me feel bad in any way, and didn't cause any weird symptoms. I don't need some doctor or "medical professional" telling me whether or not this is okay. Of course, your mileage with the medical profession may vary, but mine has been... poor. Besides, as long as your oatmeal is gluten free oatmeal I don't really see what the point of the follow up blood tests are unless you're paying your dietician for extra visits for the tests. (I'm not super into making boat payments for people, and of course this is all generally my opinion.)

notme Experienced
notme
Posted

i don't go to a dietician and i don't have anyone following my diet.  i don't know why they would want to test you before and after - especially if the oats are supposed to be gluten free..

 

i tried oats again today - i'm using the 'bowl test'  :D  it's free and i just flush the results (so far so good!)  

Gemini Experienced
Gemini
Posted

That seems a bit over the top.  I eat gluten-free oats and have no issues with them at all.  If you ate oats before and your gut is feeling well right now, then have a go at them and see what happens.  I hate to phrase it like that because I don't want people sitting around and waiting for something bad to happen afterwards....that serves no purpose.  I don't think you need a blood test either....if your stomach hurts or you have symptoms that are normal for you, then wait a while longer to try again.  Doctors make too big of a deal out of some things...... ;)

VeggieGal Contributor
VeggieGal
Posted
  • Author

Thanks all :) . Yes I thought it seemed abit over the top as also theres nothing to say that I might gluten myself with something else inbetween!

Oats is something I've missed, so I don't want them telling me I can't have them :(

I'm not paying for the tests so will go with it anyway and be their guinea pig :-) suppose it will be interesting to know results.

Edited just to say....so presumably gluten-free oats still have a risk of contamination? I just assumed the dietician kept me off them for 6 months because they could be hard on the healing gut. (Incidentally, I've never knowingly had a problem with oats anyway).

dilettantesteph Collaborator
dilettantesteph
Posted

I am one of the fraction of celiacs that react to oats as to gluten.  I would suggest trying just a little bit the first time in case you are also in that category.  I wish that I had.  I was so eager to have oats that I had more than a little bit and boy did I regret it.  Don't be afraid, just be cautious.  

Brandiwine Contributor
Brandiwine
Posted

Oats seem to be a common Celiac allergy/intolerance, is probably why. But you should be able to tell all by yourself how it makes you feel. It gets under my skin how Drs treat us like children. You know your body better than they do.

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Gemini Experienced
Gemini
Posted

Oats seem to be a common Celiac allergy/intolerance, is probably why. But you should be able to tell all by yourself how it makes you feel. It gets under my skin how Drs treat us like children. You know your body better than they do.

I couldn't agree more!  :)

notme Experienced
notme
Posted

my 'test' is going great - after a full 24 hrs, no symptoms, feeling good :)  soooooo happy to have oats back!!  although sowing any wild ones is definitely out of the question   :P

IrishHeart Veteran
IrishHeart
Posted

Some old information says that celiacs "may wish to avoid even G F oats" for a few years. 

 

Who knows why? tough on the gut maybe while still healing?

 

I waited 6 months then ate them and I eat certified gluten-free oats often (in a bowl or in granola bars) and they are the best thing for me" fiberwise".

 

I LOVES my oats--They make me "right as rain". ;)

 

For the life of me, I cannot fathom what  effect a few bowls of certified oats will have on a blood test. 

 

But what do I know, I am just a living breathing celiac who eats oats and still has managed to come back from the dead.

:lol:

Adalaide Mentor
Adalaide
Posted

But what do I know, I am just a living breathing celiac who eats oats and still has managed to come back from the dead.

:lol:

 

ZombieA_.gif

IrishHeart Veteran
IrishHeart
Posted

ZombieA_.gif

 

 

Addy took this video of me a few years ago...ah, good times....

VeggieGal Contributor
VeggieGal
Posted
  • Author

Some old information says that celiacs "may wish to avoid even G F oats" for a few years.

Who knows why? tough on the gut maybe while still healing?

I waited 6 months then ate them and I eat certified gluten-free oats often (in a bowl or in granola bars) and they are the best thing for me" fiberwise".

I LOVES my oats--They make me "right as rain". ;)

For the life of me, I cannot fathom what effect a few bowls of certified oats will have on a blood test.

But what do I know, I am just a living breathing celiac who eats oats and still has managed to come back from the dead.

:lol:

Well I'm going to eat them too then...I think my diet is restricted enough!..so oats can be one of my treats....along with red wine and dark chocolate (well I say a treat, but I probably have all these on a daily basis) :)

IrishHeart Veteran
IrishHeart
Posted

Well I'm going to eat them too then...I think my diet is restricted enough!..so oats can be one of my treats....along with red wine and dark chocolate (well I say a treat, but I probably have all these on a daily basis) :)

I'd say......test one at a time...

 

wait a few weeks as they all can be "gut busters".

 

Just a suggestion and as always, offered IMHO

VeggieGal Contributor
VeggieGal
Posted
  • Author

I'd say......test one at a time...

wait a few weeks as they all can be "gut busters".

Just a suggestion and as always, offered IMHO

Gut busters lol ...my wine and choccy are safe :) but yes I will take it steady with the oats ..thank you

IrishHeart Veteran
IrishHeart
Posted

Gut busters lol ...my wine and choccy are safe :) but yes I will take it steady with the oats ..thank you

 

 

oh..... you already tested those two waters, eh??? I see.!!...well, cheers! and Slainte! (good health)

 

drinking-red-wine.gif

bartfull Rising Star
bartfull
Posted

Could I offer a different opinion? As some celiacs DO react to oats, and as lot's of oats ARE CC'd, I would think the doctor was being thorough and  cautious and caring, and sounds well educated about celiac. How many times have we complained about doctors who don't even believe in celiac? This one MAY just be looking to make a few extra bucks on testing, but maybe instead this doctor wants to cover all the bases and make sure his/her patient truly heals.

 

That's all coming from someone who distrusts doctors in general. Maybe I just WANT to believe this might be a good one.

VeggieGal Contributor
VeggieGal
Posted
  • Author

oh..... you already tested those two waters, eh??? I see.!!...well, cheers! and Slainte! (good health)

drinking-red-wine.gif

Oh yes..first things I tried ! Well they do say dark chocolate and red wine is good for you (in moderation of course lol)

Cheers & Slainte !!!

VeggieGal Contributor
VeggieGal
Posted
  • Author

Could I offer a different opinion? As some celiacs DO react to oats, and as lot's of oats ARE CC'd, I would think the doctor was being thorough and cautious and caring, and sounds well educated about celiac. How many times have we complained about doctors who don't even believe in celiac? This one MAY just be looking to make a few extra bucks on testing, but maybe instead this doctor wants to cover all the bases and make sure his/her patient truly heals.

That's all coming from someone who distrusts doctors in general. Maybe I just WANT to believe this might be a good one.

Thanks Bartfull, I hope you're right. (must admit ive had a distrust of doctors for years but my celiac consultant has been great... ..ive still got reserved thoughts on the dietician though)

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Hiya

 

The advice I was given by a UK dietician on reintroducing things was to try half a portion on day 1, normal portion day 2 double portion day 3.

 

I don't know if this works (because of the stuff I tried reintroducing, not much got past day 1...) but I know that eating massive bowl of porridge after a long gap would give a few people some issues IYKWIM.....

 

Hope it works, think I will try oats in a few weeks, after I finish my current whole30 month.

 

Good Luck

VeggieGal Contributor
VeggieGal
Posted
  • Author

Hiya

The advice I was given by a UK dietician on reintroducing things was to try half a portion on day 1, normal portion day 2 double portion day 3.

I don't know if this works (because of the stuff I tried reintroducing, not much got past day 1...) but I know that eating massive bowl of porridge after a long gap would give a few people some issues IYKWIM.....

Hope it works, think I will try oats in a few weeks, after I finish my current whole30 month.

Good Luck

Thanks CMW, I will do it slowly and good luck to you too :) . I might have try at the whole30 as well, hope its working for you.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

I did one in January, reintroduced a few things, and am having another go now. I have transformed my life. I am only doing it again, because apparently you can have too much of a good thing (nuts and dried fruit in my case) and after droppimg 26 pounds the weight loss has tailed off now....`

VeggieGal Contributor
VeggieGal
Posted
  • Author

I did one in January, reintroduced a few things, and am having another go now. I have transformed my life. I am only doing it again, because apparently you can have too much of a good thing (nuts and dried fruit in my case) and after droppimg 26 pounds the weight loss has tailed off now....`

26lbs weightloss! ..well done ;) ...I'm definitely going to try it! Do I need to buy the book? Its similar to paleo isnt it?

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

I am new to posting links so here goes ...

 

Open Original Shared Link

 

The website has loads of info, and the link above gives the starting points. Check out the shopping lists too. Some of the info is on the main site, but some like this is in the top section of the forum.

 

I did get the book too, but it was more for the backround theory, I found everything I needed on the website to get going.

 

Have fun :)

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

And yes, similar to paleo.

Might be bedtime for me really...

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