Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated, Just Need To Vent.

dark-angel-warriore

Recommended Posts

dark-angel-warriore Newbie
dark-angel-warriore
Posted

So I posted about a month ago regarding positive blood work, various symptons, and my fear of going through the endoscopy.

 

SOOO, I got it done last monday (a week and a half ago).

Everything went well, I thought I was asleep, but apparently I just don't remember being awake.

 

Anyways, I had a pleasant experience at the hospital, no complications. Though they sent me home about 10min after I regained concsiouness, without explaining anything to me.

I did not think to ask about how it went.

 

4 days after the Endoscopy, I get a call from the surgeon's office saying that the surgon would like to see me to discuss the procedure that was done, and that they would give me the soonest appointment (today, so less than a week after the phone call).

 

Because I am confused about what the surgeon would want to talk to me about, I called my family doctor (who ordered the endoscopy), to see if she had received the results.

Apparently she received the results last week, just put it in my file without contacting me, and closed it.

So the "nice" secretary told me " it is your reponsability to book an appointment to discuss test results".

It would be nice if I even knew the results were in!!!!!!!!

She said that my doctor "PROBABLY" put the results in the file without saying anything because it did not show anything important.

 

 

We wern't looking for anything "important" we were looking to confirm if it is Celiac.

 

So now they are giving me an appointment in a month, because they need to leave room for emergency appointments.

 

How is anyone supposed to appreciate doctors if they do things like that ?

 

Now I am confused as to why I am even taking time off of work and losing pay to go see the surgeon, and then losing pay AGAIN to go see my general doctor who does not seem that concerned.

 

I have been "gluten free" (My boyfriend forgets and always cooks gluten products along with my gluten free products (on the BBQ, on serving plates, etc...) and I have been feeling worse than I did 2 weeks ago.

 

I know I should just wait until the appointment with the surgeon tonight, since he probably also has the biopsy results himself

 

but I just wanted to say "grrrr"

 

*end rant*

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

This makes some sense to me.  The Family doc would have received the results but not necessarily do anything with them.  He would think that the surgeon/GI doc would explain them to you.  And it sounds like the surgeon has set you up an appointment to discuss this.  After that visit is over, you may just want to cancel the Family doc appt.

 

Even if they told you something right after the procedure, you wouldn't remember it.  Anesthesia does that to you.  He would want to get the pathology results back first before telling you if you have Celiac.  I suppose, if he had seen a tumor or something obvious and dangerous, he would have told the person accompanying you to the procedure.

 

Get copies of the procedure report and the pathology report and blood tests while you are there.

dark-angel-warriore Newbie
dark-angel-warriore
Posted
  • Author

This makes some sense to me.  The Family doc would have received the results but not necessarily do anything with them.  He would think that the surgeon/GI doc would explain them to you.  And it sounds like the surgeon has set you up an appointment to discuss this.  After that visit is over, you may just want to cancel the Family doc appt.

 

Even if they told you something right after the procedure, you wouldn't remember it.  Anesthesia does that to you.  He would want to get the pathology results back first before telling you if you have Celiac.  I suppose, if he had seen a tumor or something obvious and dangerous, he would have told the person accompanying you to the procedure.

 

Get copies of the procedure report and the pathology report and blood tests while you are there.

I had written a long text but I will keep it to : I disgaree.

 

The surgeon is NOT a G/I, I have no idea if he will have the results since the test was ordered by my family doctor and not the surgeon itself.

 

Waiting a month and a half to get confirmation of tests results does not seem right to me. If it was a diagnostic test perhaps, but we were doing nothing but confirm, I am not sure what I need to "discuss" with her, if it is not important.

kareng Grand Master
kareng
Posted

I had written a long text but I will keep it to : I disgaree.

 

The surgeon is NOT a G/I, I have no idea if he will have the results since the test was ordered by my family doctor and not the surgeon itself.

 

Waiting a month and a half to get confirmation of tests results does not seem right to me. If it was a diagnostic test perhaps, but we were doing nothing but confirm, I am not sure what I need to "discuss" with her, if it is not important.

 

 

I'm sorry. I missed something.  The "surgeon" wants to discuss your results 11 days after the procedure? It can take 3-10 days to get the pathology report back.  Not sure why a "surgeon" did an endo but maybe you are in a different country and that is how it works?  Usually, an endo is a diagnostic test used to "officially" diagnose Celiac Disease.

 

Was just trying to help you understand the process because medical procedures can seem silly sometimes.  But I don't feel like fighting with you, so good luck.  I hope eating gluten-free makes you feel better.

notme Experienced
notme
Posted

my g.i. did my endoscopy - so i guess she is a g.i. surgeon?  i see you are in canada, so i don't know how that all works with the different doctors.  i got my results pretty quick, (she told me AND made sure she told my husband in case i didn't remember lolz)  and the office called with the pathology results so i requested copies of everything at that time.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,844
    • Most Online (within 30 mins)
      7,748
    donnawebb265
    Newest Member
    donnawebb265
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.