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Otc Supplements To Treat Symptoms


Mad Engineer

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Mad Engineer Newbie

When I started going gluten-free, I had a pretty bad case of depression for weeks and I basically tried every single supplement on Amazon that had a good review to alleviate the depression....None of them really did a whole lot for me. (at one point I was taking pills from 5 bottles at a time... lol)

 

Obviously there's no cure to what we have but has anyone had any luck with OTC supplements to help with the symptoms ? 

for me, its the brain fog that I'm still dealing with... there's a bunch of stuff that claims to improve cognitive ability (I learned the term Nootropics in my research) has anyone have real experience with anything that helps with their symptoms?

 


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1desperateladysaved Proficient

Vitamin B12 sublingual, all natural supplement helped my brain fog and fatigue, until I got too much of it and got brain fog and fatigue!  Digestive enzymes are helping me to break down my food as my villi are healing.  My villi are too damaged to do the job of telling the pancreas to fire.  I take a multi-vitamin and am currently trying to find an over the counter powdered one that will work for me.  I have been getting it through a health practitioner and it has worked wonders for me.  I had nutrient levels tested and  found out what other food intolerances I had.  This helped me with brain fog.  I make sure to buy natural products which I feel are taken into the body better.

Mad Engineer Newbie

any special kind? I tried a subligual B complex drop.. it does hype me up some what. I made the mistake of taking it right before bed one time and had an even harder time falling asleep then usual. 

 

I've briefly read some stuff on folate (which I think its B5?) that some people had success with brain fog?

1desperateladysaved Proficient

All of the Natural food store Vitamin B sublingual tablets worked, so no special kind.  I am low in folate, but now my vitamin B12 is good.  I have a clear mind now!  For me, anyway B12 seemed to be the key.  I am working on bringing up my Folate by taking a vitamin B supplement with it and taking more green vegetables. I am looking for a supplement to give me a boost; however I have so many intolerances that supplements are hard to find.

D

Mad Engineer Newbie

Thank you for the tip about the B vitamins. I did some more research and found out there are many forms of B12. The most common form is the cyanocobalamin which is less potent and breaks down to negligible amount of cyanide. I bought some of the methylcobalamin which is supposed to be more absorb-able.

 

during my search in B-vitamins learned about MTHFR polymorphism, (reduced ability to process folate) which seems to help people with chronic fatigue, esp with mental fog.  This probably belongs in a separate post but some of the treatment "protocols" basically involves taking methylcoblamin and folate in the form of l-methylfolate.

I don't know how much real science is behind it but I've reach the point of trying stuff that may work in a 'shotgun approach" (especially when these supplements are so inexpensive compared to prescription drugs and probably less side effects). Anyway I've taken the two for a few days and I'd have to say my energy level is up and my mental fog is maybe 50-75% gone. its no miracle cure and I'm not 100% cured yet,  but hopefully someone finds this useful. 

Who'd knew such a cheap common vitamin can have such an impact on energy levels!  (I should probably get tested for the MTHFR genes to make sure I actually do have this genetic defect and its not all in my head)

 

Anyway, if anyone has any other ideas, please share!

Celiac Mindwarp Community Regular

Hi there

I found b12 good too, and when I made sure I wasn't getting cross contamination and cleaned up my diet, to mostly paleo had great improvements. Brian fog is now one of my first symptoms when glutened, along with a kind of instant feeling of hopelessness which last about 3 days.

Might be worth checking for any sneaky cc happening.

Glad you are getting some relief already, depression ain't fun.

Welcome to the board :)

1desperateladysaved Proficient

Are you doing enzymes and Probiotic?  My Healthline Restore Probiotic seems to be doing something.  I am planning to try their enzymes as well, but for now I am taking Integrative Therapeutics, Inc enzymes which I get through my health practitioner.  I have also had success with enzymes from health food stores.  I can't remember exact brands, but have had success from several.  One of my favorite brands at the health food store are Nutrition Way.  I am not sure they do enzymes, though.

 

If you have adrenal issues you can look up herbs to support your adrenals.  I am using Astragalus, Siberian Eleuthero, and licorice in a preparation I purchased from my health care provider.  They advised me to go buy herbal singles from the store and I found them surprisingly inexpensive compared to other supplements. 

 

I really like to talk about these natural things.  They can be very powerful, so caution is warranted.  I once burned a sprained leg, that I was trying to help, by applying  a dry mustard compress.  I know of someone that burned their finger with garlic.  Check with a healthcare provider, and/or carefully study it out, so you do no harm.

 

D


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
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    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
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    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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