Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What In The World Is Going On With My Body


niese

Recommended Posts

niese Explorer

So I have been gluten-free for almost 2 months however the past week off and on I have been having watery diarrhea  (sorry if TMI) I have not eaten anything new as a matter of fact not had much of an appetite and I feel like I have not been gluten or CC I don't have any abdominal pain that I usually get from CC.  I am on probiotics and digestive enzymes which are both gluten-free.   At first I thought maybe the D was from my monthly cycle but that is over with.  I am also dairy free however cheese and yogurt don't bother me but I really haven't had any this past week.  I don't understand what the heck is going on.   :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Sometimes we can't think beyond Celiac.  Perhaps it's just a virus or a bit of food poisoning?  Maybe a new food intolerance? 

 

Hope someone else might have a more definitive answer.  I hope you're feeling better soon!

niese Explorer

Sometimes we can't think beyond Celiac.  Perhaps it's just a virus or a bit of food poisoning?  Maybe a new food intolerance? 

 

Hope someone else might have a more definitive answer.  I hope you're feeling better soon!

I haven't eaten anything new, really haven't eaten much of anything not much of appetite.  Today I didn't eat until 2pm and was up at 8:30am, I really wasn't hungry and forced myself to eat something.  I just can't figure this one out. 

pricklypear1971 Community Regular

Keep a food log.

Also, consider that you may now be more sensitive to gluten cc. Your symptoms may change. Anyone else at home eat gluten?

niese Explorer

Keep a food log.

Also, consider that you may now be more sensitive to gluten cc. Your symptoms may change. Anyone else at home eat gluten?y

yes I have gluten eaters in the house, but I am a freak when it comes to my gluten-free cooking/food.  When I cook I clean the kitchen down first buy wiping everything down counters, stove top, sink, then I get my food and utensils out which I have my own for gluten-free only.  I never cook when someone is cooking gluten food, usually I cook first then they cook.  No matter what I always follow my cleaning routine and all my stuff is kept separate as well. So if I am getting CC I don't know what I am missing.  Everyone stays out of my food so there isn't any double dipping or anything like that.  In the beginning it was't like this until I flipped out and put my foot down.  

niese Explorer

Maybe it is a virus but I have no other symptoms of anything even my energy is up. If it is a new food intolerance that blows my mind how can all of a sudden develop a new food intolerance?  Figuring this all out can be mind blowing at times..

pricklypear1971 Community Regular

Are you kissing a gluten eater???? Do they eat around the house? In your bed?

That said, at almost 1 year gluten-free I became sensitive to commercial mint flavoring. Made everything go right through me. Could have knocked me over with a feather. No big cramping, sickness otherwise...just a complete emptying of my intestines. Bye bye junior mints.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



niese Explorer

Are you kissing a gluten eater???? Do they eat around the house? In your bed?

That said, at almost 1 year gluten-free I became sensitive to commercial mint flavoring. Made everything go right through me. Could have knocked me over with a feather. No big cramping, sickness otherwise...just a complete emptying of my intestines. Bye bye junior mints.

sorry to hear about the jr mints those are awesome.  I make sure hubby brushes teeth before any kisses drives him nuts but he is getting use to it. Eat in bed I would flip on him if he did that lol.  No we all usually eat at the table.  Maybe it is a bug or a new food intolerance, guess back to the food journal :(  

pricklypear1971 Community Regular

sorry to hear about the jr mints those are awesome. I make sure hubby brushes teeth before any kisses drives him nuts but he is getting use to it. Eat in bed I would flip on him if he did that lol. No we all usually eat at the table. Maybe it is a bug or a new food intolerance, guess back to the food journal :(

I have a 5'4" rat that spreads gluten all over my house. So, very little gluten for my spawn (at home). Hubs is well trained (and brushed and washed).

It may be a bug. I had a nasty one last year, I swear it took 2 months to feel normal. I would have sworn it was gluten except Spawn Rat had same symptoms.

I know your appetite is down, but maybe consider switching to totally new whole foods and see if anything changes?

Your beauty products are gluten-free?

niese Explorer

I have a 5'4" rat that spreads gluten all over my house. So, very little gluten for my spawn (at home). Hubs is well trained (and brushed and washed).

It may be a bug. I had a nasty one last year, I swear it took 2 months to feel normal. I would have sworn it was gluten except Spawn Rat had same symptoms.

I know your appetite is down, but maybe consider switching to totally new whole foods and see if anything changes?

Your beauty products are gluten-free?

I don't have any issues with my skin so do I still need to have gluten-free beauty products.  I do make sure my chap stick is gluten-free just encase I lick my lips lol

bartfull Rising Star

It depends on how much you trust yourself to be careful. I am a fanatic about washing my hands, but if your foundation is not gluten-free and you touch your face, then eat something without washing your hands first, you might get glutened. Also, if you don't use a gluten-free shampoo, eventually you will get a little bit up your nose and then of course you will swallow it. Lotions of course could get into your food if you don't wash your hands EVERY time you pop something in your mouth. It's crazy the things you might never think of that can be dangerous to us.

niese Explorer

It depends on how much you trust yourself to be careful. I am a fanatic about washing my hands, but if your foundation is not gluten-free and you touch your face, then eat something without washing your hands first, you might get glutened. Also, if you don't use a gluten-free shampoo, eventually you will get a little bit up your nose and then of course you will swallow it. Lotions of course could get into your food if you don't wash your hands EVERY time you pop something in your mouth. It's crazy the things you might never think of that can be dangerous to us.

Oh boy this disease is enough to drive me crazy with everything there is to learn.  I don't wear makeup too often maybe once or twice a month.  Thats only cause I am not working at the moment, when I worked I wore it almost everyday.  I never gave all this a thought that you said.  I do wash my hands alot especially before touching or eating any food, of course after using the restroom.  Wow shampoo never gave it a thought however I do only use suave which if I remember correctly it is suppose to be gluten free.  As far as beauty products I am looking for the same ingredients as food or is there something different I need to look for?  Guess I need to check my body wash as well.  Gee just when I thought I had this disease understood you learn something new, but then again I am still a newbie.  I did finally find a GI dr that specializes in Celiac and I see him next month so excited just hope he is good.  Thanks everyone for all the info very helpful.   

1desperateladysaved Proficient

It could be clean out stuff.  The body is bound to surprise you at times.  Mine has!

 

You haven't by chance began to take magnesium or Vitamin C.  These cause diarrhea when your body can't handle so much of it.

 

Get well,

 

D

Gemini Experienced

I don't have any issues with my skin so do I still need to have gluten-free beauty products.  I do make sure my chap stick is gluten-free just encase I lick my lips lol

niese......I am a very, very sensitive celiac who does not screen anything but lip products and hand creme.  It is not hard at all to NOT gluten yourself, unless you have bad habits like not washing your hands before you eat.  Who doesn't wash their hands after applying make-up?  You do not want make-up on your clothes because it can stain them permanently so if you manage to not stain your clothes, then you can manage to not gluten yourself with foundation.  I don't know many people who apply foundation that close to the mouth, anyway, that you would need to worry about that.  It's not supposed to be applied that way.

 

As for shampoo, it depends on how you bathe or shower.  If you let the shampoo run down your face, then it could be a problem.  This is 100% common sense driven and you will learn in time what you can safely do.

 

I only say this because I have been gluten-free for 8 years now, never had any skin issues from gluten to begin with, and my antibody tests always come back stellar and I haven't had a Celiac symptom in 5 years......other than the rare occasion when I am glutened on a trip.  That's rare indeed, though.  My symptoms are severe and I always know when I have even been cc'd.  It has never happened from make-up so please don't fear your make-up bag!  ^_^

Wheresthebeef Rookie

This could be your body flushing toxins out ESPECIALLY if you are taking alot of probiotics, and especially if you feel better after the diarrhea. I've experienced this alot myself while taking quality probiotics.  Maybe slow down on the probiotics and make sure to keep electrolytes up and stay hydrated.

niese Explorer

Thanks everyone for the advise.  

 

This could be your body flushing toxins out ESPECIALLY if you are taking alot of probiotics, and especially if you feel better after the diarrhea. I've experienced this alot myself while taking quality probiotics.  Maybe slow down on the probiotics and make sure to keep electrolytes up and stay hydrated.

Now that makes sense I don't feel the usual sickness with diarrhea so thinking its just my body flushing out the toxins.  I do only take 1 probiotic but only been taking them for about 3 weeks now along with digestive enzymes.  I do take 2 digestive enzymes before each meal thinking I will cut back to 1 per meal and see what happens, thanks for the advise.  

niese Explorer

niese......I am a very, very sensitive celiac who does not screen anything but lip products and hand creme.  It is not hard at all to NOT gluten yourself, unless you have bad habits like not washing your hands before you eat.  Who doesn't wash their hands after applying make-up?  You do not want make-up on your clothes because it can stain them permanently so if you manage to not stain your clothes, then you can manage to not gluten yourself with foundation.  I don't know many people who apply foundation that close to the mouth, anyway, that you would need to worry about that.  It's not supposed to be applied that way.

 

As for shampoo, it depends on how you bathe or shower.  If you let the shampoo run down your face, then it could be a problem.  This is 100% common sense driven and you will learn in time what you can safely do.

 

I only say this because I have been gluten-free for 8 years now, never had any skin issues from gluten to begin with, and my antibody tests always come back stellar and I haven't had a Celiac symptom in 5 years......other than the rare occasion when I am glutened on a trip.  That's rare indeed, though.  My symptoms are severe and I always know when I have even been cc'd.  It has never happened from make-up so please don't fear your make-up bag!  ^_^

thanks for the info I was freaking out about my makeup and was about to throw everything out lol 

pricklypear1971 Community Regular

thanks for the info I was freaking out about my makeup and was about to throw everything out lol

Okay, I want to make a point.

Gemini has great luck not getting cc'd from cosmetics, or shampoo, or lotion...but YOU may not.

Being concerned about topical gluten is not exclusively the domain of dh sufferers who break out from topical gluten.

We are all different. Just like one of us will not be able to eat X food or be in X environment, some of us need to get all gluten out of the house and out of our body products.

Plenty of Celiacs refuse to use glutenous skin/beauty care, not just DH Celiacs and just not ones with other dermalogical issues.

I compare using glutenous body care to washing my dishes with glutenous dish soap, or polishing my furniture with wheat germ oil. Not a smart move.

If you think you are getting glutened, and you can't explain how, and there's gluten in your body care products...my advice is to replace them with gluten-free versions and see if that solves the problem. If it doesn't, then go back to your other products.

bartfull Rising Star

What Pricklypear said. B)

niese Explorer

Okay, I want to make a point.

Gemini has great luck not getting cc'd from cosmetics, or shampoo, or lotion...but YOU may not.

Being concerned about topical gluten is not exclusively the domain of dh sufferers who break out from topical gluten.

We are all different. Just like one of us will not be able to eat X food or be in X environment, some of us need to get all gluten out of the house and out of our body products.

Plenty of Celiacs refuse to use glutenous skin/beauty care, not just DH Celiacs and just not ones with other dermalogical issues.

I compare using glutenous body care to washing my dishes with glutenous dish soap, or polishing my furniture with wheat germ oil. Not a smart move.

If you think you are getting glutened, and you can't explain how, and there's gluten in your body care products...my advice is to replace them with gluten-free versions and see if that solves the problem. If it doesn't, then go back to your other products.

thank you for the information.....never thought of dish soap what brand do you use? I am using Suave shampoo heard it is gluten free is that true? As far as beauty products am I looking for the same ingredients as in food or are they different? Thanks so much for your help. 

pricklypear1971 Community Regular

thank you for the information.....never thought of dish soap what brand do you use? I am using Suave shampoo heard it is gluten free is that true? As far as beauty products am I looking for the same ingredients as in food or are they different? Thanks so much for your help.

I am not familiar with all of the suave shampoos. I'd assume each one is different. I know others use it, perhaps they'll chime in? I use suave unscscented hairspray and its fine.

As far as ingredients go, yes...look for wheat derivatives. Cosmetics are difficult. I suggest visiting the Gluten Free Makeup Gal: Open Original Shared Link

I use Dawn dish washing detergent. I don't know how common gluten in dish soap is, but I know others use Dawn.

Gemini Experienced

Okay, I want to make a point.

Gemini has great luck not getting cc'd from cosmetics, or shampoo, or lotion...but YOU may not.

Being concerned about topical gluten is not exclusively the domain of dh sufferers who break out from topical gluten.

We are all different. Just like one of us will not be able to eat X food or be in X environment, some of us need to get all gluten out of the house and out of our body products.

Plenty of Celiacs refuse to use glutenous skin/beauty care, not just DH Celiacs and just not ones with other dermalogical issues.

I compare using glutenous body care to washing my dishes with glutenous dish soap, or polishing my furniture with wheat germ oil. Not a smart move.

If you think you are getting glutened, and you can't explain how, and there's gluten in your body care products...my advice is to replace them with gluten-free versions and see if that solves the problem. If it doesn't, then go back to your other products.

No...I beg to differ. It is not luck, but pure effort on my part....and yes, I will say it......I am just not paranoid.  I have never let fear rule with this disease but based my habits on valid science.  Science states that unless you are eating it, it should not be a problem for the vast majority of Celiacs.

 

I also stated quite clearly that a person has to look at their own personal habits to see if they will be ingesting products on a regular basis but that mystifies me as eating make-up on a regular basis is not somehting to aspire to....even if you aren't a celiac. 

 

Lastly, I use good products.  Good products rarely, if ever, contain a wheat component because wheat is a cheap filler and thickener.  I actually did screen my make-up after the last conversation we had on this and none of it contains a gluten component.  So, another thing to keep in mind...use good products.  You should anyway because it's on your skin and if you want to look your best and save your skin as you age, use the good stuff.  The odds of it having gluten in it is less likely to happen.

 

OK.....I know I stated lastly but I had to comment on this......you cannot keep using the "Everyone is different" mentality for your arguments.  Celiac Disease is Celiac Disease and the Rx for following the diet is pretty much the same for everyone, except maybe those with external skin issues.  Different ballgame in that they also often have skin allergies to boot.  The goal is to not ingest gluten to cause a reaction.  The only difference in success is personal habits and how careful you are about not eating it.  That's it.  There is nothing magical about keeping it out of your mouth.  It cannot be absorbed through your skin.  If you choose to screen everything, that's perfectly fine but for those of us who have figured it out and do not gluten themselves on a daily basis by using unscreened products on their faces, it is not a crapshoot. Many people do this without an issue so try and curtail your snarky comments about it not being a smart move.  You don't have to agree with me but let's not be overdramatic about it.

  • 2 weeks later...
designerstubble Enthusiast

Just saw your post, thought I'd respond as I became intolerant to corn and corn products at about 2 months gluten-free. Watery poo too! Disappeared as soon as I cut the corn! I now only eat whole foods as most of the corn I ate was in the gluten-free alternatives, which IMHO are just full of rubbish mostly. 

Keep an eye out for other intolerances, food diary is great way... I know that there are many on here that became intolerant to many foods as part of 'healing' process.... Hope you are better now

niese Explorer

Just saw your post, thought I'd respond as I became intolerant to corn and corn products at about 2 months gluten-free. Watery poo too! Disappeared as soon as I cut the corn! I now only eat whole foods as most of the corn I ate was in the gluten-free alternatives, which IMHO are just full of rubbish mostly. 

Keep an eye out for other intolerances, food diary is great way... I know that there are many on here that became intolerant to many foods as part of 'healing' process.... Hope you are better now

Thanks I should do the food diary.  I am thinking maybe its my colitis acting up.  I go to GI dr on the 20th new dr suppose to be specialist in Celiac 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.