Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Suffered Or Suffer From Asthma/shortness Of Breathe?

Renegade

By Renegade
in Coping with Celiac Disease

Recommended Posts

Gemini Experienced
Gemini
Posted

I have asthma, severe and persistent, diagnosed by a PFT(lung function test). Have you had one of those done? I have to take Advair everyday 2/day or I will have an attack. Still I've been hospitalized twice in the last year and a half

 

Asthma and SOB are 2 different things. As others have mention you can get SOB from GERD or anxiety or anemia or other things. Maybe you should see a pulmonologist to see if it is indeed asthma. Like I said if it's asthma you will need to be on a controller medicine daily, it doesn't go away

Actually, many people who were diagnosed asthmatics have reported that their breathing problems all went away after some time on the gluten-free diet.  They don't need inhalers or meds at all.

I think there are many whose inflammation from undiagnosed Celiac shows up as breathing problems.  It's all about inflammation.  Get rid of the inflammation and the reaction to it goes away.  You may be surprised down the road to find that your breathing problems improve after following the diet for a few years.  I never believe doctors when they say certain things never go away.  If it's something caused by massive inflammation, you can never say never.  ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 69
  • Created
  • Last Reply
GottaSki Mentor
GottaSki
Posted

agreed. this is why a PFT is best for diagnosis. they test before the albuterol and then you take 2 puffs of albuteral, wait 15min, and then they test again. Asthma will improve on the PFT after the albuteral but GERD or something else will not. It will also show obstructive patterns in the lungs (asthma), GERD wouldn't show an obstructive pattern. The best diagnostic tool is this test

 

Yep I had this test to rule out Asthma for my worsening lung issues.

answerseeker Enthusiast
answerseeker
Posted

Actually, many people who were diagnosed asthmatics have reported that their breathing problems all went away after some time on the gluten-free diet.  They don't need inhalers or meds at all.

I think there are many whose inflammation from undiagnosed Celiac shows up as breathing problems.  It's all about inflammation.  Get rid of the inflammation and the reaction to it goes away.  You may be surprised down the road to find that your breathing problems improve after following the diet for a few years.  I never believe doctors when they say certain things never go away.  If it's something caused by massive inflammation, you can never say never.  ;)

I sure hope so because it's been a thorn in my side! 2 hospitalizations in 1 yr and on prednisone 3 times has taken a toll on my body. I've read that asthma improves on gluten free diet it just hasn't been long enough for me yet

GottaSki Mentor
GottaSki
Posted

Actually, many people who were diagnosed asthmatics have reported that their breathing problems all went away after some time on the gluten-free diet.  They don't need inhalers or meds at all.

I think there are many whose inflammation from undiagnosed Celiac shows up as breathing problems.  It's all about inflammation.  Get rid of the inflammation and the reaction to it goes away.  You may be surprised down the road to find that your breathing problems improve after following the diet for a few years.  I never believe doctors when they say certain things never go away.  If it's something caused by massive inflammation, you can never say never.  ;)

 

I am currently reading a book entitle "Asthma as an Inflammatory Disease" simply because I ordered the wrong volume of three regarding Inflammatory Disease...and thought why not.

 

When it comes to Inflammation in the body our doctors are as woefully undereducated as they are about Functional Digestive Disorders....while I'm waiting for them to catch up -- I just keep reading ;)

answerseeker Enthusiast
answerseeker
Posted

Yep I had this test to rule out Asthma for my worsening lung issues.

do you have GERD too? I have GERD in addition to everything else which complicates it. Can't wait to start feeling healthy again!

GottaSki Mentor
GottaSki
Posted

do you have GERD too? I have GERD in addition to everything else which complicates it. Can't wait to start feeling healthy again!

 

No GERD, but son has had a variation of GERD for about 10 years.

 

Listen to Gemini....it is all about the inflammation in the body....amazing how many things are finally improving for me now that I am improving in that respect.  Sadly it did take quite a while....those of us with inflammation and other AI symptoms often take a bit longer to see improvement.

 

Hang in there :)

 

Oh...btw...I use Advair when my lungs have issue...either from heat, excercise or food intolerance I end up with some very serious breathing issues and anaphylaxis....Advair is not meant to be used as a rescue inhaler....yet it is the one that works in my case...I do not take it daily only as needed...file this under three more doctors stumped as to why it works...ER, Allergy and Primary :blink:

Renegade Contributor
Renegade
Posted
  • Author

Because you disagreed or had a sarcastic answer for every suggestion you were given.

I fail to see where I used sarcasm, but anyways, I appreciate everyone concern for their tips and enlightenment on this issue.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


answerseeker Enthusiast
answerseeker
Posted

Oh...btw...I use Advair when my lungs have issue...either from heat, excercise or food intolerance I end up with some very serious breathing issues and anaphylaxis....Advair is not meant to be used as a rescue inhaler....yet it is the one that works in my case...I do not take it daily only as needed...file this under three more doctors stumped as to why it works...ER, Allergy and Primary :blink:

that is weird! at least you don't have to spend the $30 every month to refill it. I have an asthma app on Thursday so we wil see how well it's doing. I also have several atopic allergies pollen, dust, mold, etc. and they trigger my asthma. Are these shown to improve with eliminating gluten?

IrishHeart Veteran
IrishHeart
Posted

do you have GERD too? I have GERD in addition to everything else which complicates it. Can't wait to start feeling healthy again!

 

I had GERD, I had shortness of breath, anemia (three types--iron def, B-12, folate) I had adult onset asthma --given an inhaler (my brother has had asthma since birth and mine was not like his) and I had weakness in my legs, etc etc. You name it, I had it. Not kidding.

 

Here's the thing, everyone----All of this can very well resolve OFF GLUTEN.

 

Inflammation causes all of these symptoms.You are inflamed right now,

 

None of you are on the GFdiet very long, so your symptoms are not yet resolved. Those of us who are gluten-free longer--Gemini, Bartful, Karen. GottaSki-, Raven--we're all telling you to be patient...Healing happens in time.

 

PS to Renegade. you mention coughing up stuff.? well, you also mention smoking pot and after you stop--even for a while--you're gonna be coughing up crap and be short of breath.

 

Just try to be patient. Healing takes a LONG TIME. MONTHS.

Going gluten-free is not a magic bullet. It takes time, patience and recovery.

 

Did I mention patience and time? ;)

Renegade Contributor
Renegade
Posted
  • Author

I had GERD, I had shortness of breath, anemia (three types--iron def, B-12, folate) I had adult onset asthma --given an inhaler (my brother has had asthma since birth and mine was not like his) and I had weakness in my legs, etc etc. You name it, I had it. Not kidding.

 

Here's the thing, everyone----All of this can very well resolve OFF GLUTEN.

 

Inflammation causes all of these symptoms.You are inflamed right now,

 

None of you are on the GFdiet very long, so your symptoms are not yet resolved. Those of us who are gluten-free longer--Gemini, Bartful, Karen. GottaSki-, Raven--we're all telling you to be patient...Healing happens in time.

 

PS to Renegade. you mention coughing up stuff.? well, you also mention smoking pot and after you stop--even for a while--you're gonna be coughing up crap and be short of breath.

 

Just try to be patient. Healing takes a LONG TIME. MONTHS.

Going gluten-free is not a magic bullet. It takes time, patience and recovery.

 

Did I mention patience and time? ;)

Ty that was very helpful :)

IrishHeart Veteran
IrishHeart
Posted

Ty that was very helpful :)

 hang in there, kid.

 

The gluten-free diet is not a quick fix, I'm afraid. It took me 15 months post-Dx to turn a corner.

 

I am NOT the norm, however. I was very ill at diagnosis.

 

Most people take @ 4- 6 months to see symptom resolution.

 

One day at a time. That's all you can do and that's the honest truth.

1desperateladysaved Proficient
1desperateladysaved
Posted

I have had a problem with shortness of breath.  Just recently it has been relieved.  I am about 18 months gluten free and had just quit eating all foods I had intolerances to and begun digestive enzymes and adrenal support herbs!  One day I suddenly noticed I breathed deeply!  This is exciting!

 

All the same to you,

D

ravenwoodglass Mentor
ravenwoodglass
Posted

Actually, many people who were diagnosed asthmatics have reported that their breathing problems all went away after some time on the gluten-free diet.  They don't need inhalers or meds at all.

I think there are many whose inflammation from undiagnosed Celiac shows up as breathing problems.  It's all about inflammation.  Get rid of the inflammation and the reaction to it goes away.  You may be surprised down the road to find that your breathing problems improve after following the diet for a few years.  I never believe doctors when they say certain things never go away.  If it's something caused by massive inflammation, you can never say never.  ;)

Yea I am one of them. Haven't needed my Singulair or inhalor now in years.

Gemini Experienced
Gemini
Posted

Yea I am one of them. Haven't needed my Singulair or inhalor now in years.

I wish my sister would listen to me.  She has Sjogren's and asthma...really bad asthma.  I used to smoke and I can outclimb her on a flight of stairs. She needs an inhalor before she gets to the top. She is not overweight either.  However, she works in a hospital and goes with the AMA and does not think outside the box...like they practice.  She thinks going gluten-free is the worst thing that can happen to you  and this from a woman who had a bout with breast cancer.  :blink:

Renegade Contributor
Renegade
Posted
  • Author

I wish my sister would listen to me.  She has Sjogren's and asthma...really bad asthma.  I used to smoke and I can outclimb her on a flight of stairs. She needs an inhalor before she gets to the top. She is not overweight either.  However, she works in a hospital and goes with the AMA and does not think outside the box...like they practice.  She thinks going gluten-free is the worst thing that can happen to you  and this from a woman who had a bout with breast cancer.  :blink:

Why the hell would she think going gluten-free would be bad?

JediMindTricks Newbie
JediMindTricks
Posted

With the risk of sounding like a broken record :). 

 

Everything you describe I suffer from. To me it sounds like anxiety. A panic attack does not have to be a full blown episode where you freak out. Very often when I get an anxiety attack I find it difficult to breathe/shortness of breath and feel weak and clumsy.

 

This is not meant as a personal attack to you Renegade but rather a general observation of cannabis users. It always amazes me when someone complains about anxiety problems when smoking cannabis then there is a 100 posts following from pro-cannabis smokers suggesting it's the strain or the cannabis is cut with flour or something (Cannabis forums are the worst).

 

You have already said that you get panic attacks when you smoke weed; weed affects the chemicals in your brain. Smoking also cuts the amount of oxygen supplied to your brain.

 

We already know that celiac can have neurological effects on the brain and it makes sense that if there is an imbalance caused by malabsorption of nutrients or whatever then taking a drug that affects the brain is going to cause a problem.

 

Whether cannabis or celiac is the problem, I wouldn't brush this off and say it's not anxiety.

 

Hope you find the answer. All the best,

JMT 

IrishHeart Veteran
IrishHeart
Posted

Why the hell would she think going gluten-free would be bad?

 

The same reason any of our relatives think it---that giving up their bagels, breads, pizzas and donuts is a fate worse than death and more horrible than the constant pain they suffer from their various AI diseases, GERD, "IBS" diabetes....etc.

 

They would rather symptom- treat, eat their gluteny foods, remain obese and out of breath than give them up.

They think a gluten-free diet is like being condemned to a living hell on earth.

They have their collective heads in the sand.

 

We call them "the unenlightened" :D

Renegade Contributor
Renegade
Posted
  • Author

The same reason any of our relatives think it---that giving up their bagels, breads, pizzas and donuts is a fate worse than death and more horrible than the constant pain they suffer from their various AI diseases, GERD, "IBS" diabetes....etc.

 

They would rather symptom- treat, eat their gluteny foods, remain obese and out of breath than give them up.

They think a gluten-free diet is like being condemned to a living hell on earth.

They have their collective heads in the sand.

 

We call them "the unenlightened" :D

I am not healthy yet but I can feel that my body is healing, everything is getting better yes even my breathe, but it's like a rollerocaster, you know? Of course you know lol.

 

I keep getting dreams about foods and knowing that I'll never be able to go to most restaurents or go eat at a feast and have those very yummy chinesse ramens but I don't really mind , if it means I'll get my old self back and hopefully a new better self that I never though I would have then by all means I'm willing to sacrifice it all.

 

Funny how all my life I tried to be as healthy as possible, exercise and rarely eat bad food and to end up in just 3 months in the worst health of my life.

IrishHeart Veteran
IrishHeart
Posted

Kiddo,

You can live a "normal" life....it's just the "new norm".

I eat out now. I go to weddings, etc. I even dine at friends' homes--they learned about CC and they cook for me. I watch them

and I help and all's well. Life is good.

 

It's still early in your recovery. Hang in there. Soon, you will see what we are saying.

I promise.

 

It will not feel like you have sacrificed a thing, except crappy health.

Gemini Experienced
Gemini
Posted

Why the hell would she think going gluten-free would be bad?

Adding to what IrishHeart already said so well.......my sister does not like to cook. She makes mashed potatoes from a box.  :o  So....preparing food to the extent that I do, all those fresh veggies and fruits that need cutting up and cleaning and steaming.....it's just too much work for her.  The whole thing about cc boggles her mind.  She was the very first person to give me the dreaded eye roll when I first ordered out at a restaurant with her after diagnosis.  I was explaining to the waitstaff about the clean grill that was needed and she just did it...I could have slapped her silly.  To put it bluntly...she eats a crap diet and doesn't want to change.

 

I should add that my sister has a very high IQ and is exceedingly book smart. But many times, people with high IQ's have a serious lack of common sense!  :lol:

IrishHeart Veteran
IrishHeart
Posted

 But many times, people with high IQ's have a serious lack of common sense!  :lol:

 

 

ahem! I will add, just to clarify what my dear girl Gemini has said.

 

 

....people with high IQs ...who are  also "gluten headed" and not yet, following a gluten-free diet....lack common sense.

 

"cuz I have lots o'common sense: and my IQ is "purty good"

 

:)

 

and I have met many  "academians"..with big IQs who were about as street smart as a new-born babe. :lol:

flowerqueen Community Regular
flowerqueen
Posted

Not sure what you mean by the baby crying analogy but as far as weak muscle then yes, even walking is difficult now and I haven't exercise in 2 weeks because I feel too weak, it actually worsen since I went gluten free, Initially it didn't.

I can't think of any other way of describing the shortness of breath, but the weak muscle problem is something I had, and I was walking with a stick, but couldn't walk far. At the moment I have muscle weakness again and this time am wondering weather it's magnesium or vitamin B deficiency. (I have other medical conditions) at the time of diagnosis it was the iron that was the problem - I seem to go from one thing to another, as far as deficiencies go.

In the UK we get our blood tests on NHS but realise it's not the same in other countries. I don't know what else to suggest other than get vitamin and mineral levels checked.

Renegade Contributor
Renegade
Posted
  • Author

Yep, that's the plan, hopefully i can find the energy to survive and not die until then and show up to work everyday.

flowerqueen Community Regular
flowerqueen
Posted

There are a minority of people that have celiac disease whom do not get better on gluten free alone and need help from steroids. So take care. In the meantime, do you use a food journal, in case there is anything you may have missed?

Renegade Contributor
Renegade
Posted
  • Author

There are a minority of people that have celiac disease whom do not get better on gluten free alone and need help from steroids. So take care. In the meantime, do you use a food journal, in case there is anything you may have missed?

 

No, I don't need to, I always eat the same things and I remember everything I eat.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    2. trents
      - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient. The one test that was ordered...
    3. mamaof7
      - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful...
    4. Dizzyma
      - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me. My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free i...
    5. tiffanygosci
      - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748
    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Help understand results

      By trents · Posted

      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      Help understand results

      By mamaof7 · Posted

      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.