Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fda Finally Defines Gluten Free


killernj13

Recommended Posts

killernj13 Enthusiast

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



w8in4dave Community Regular

Yay!! Great news! Thanks for posting this!

apislaeta Newbie

Hmm. So it sounds like "gluten free" means "there's some gluten, but a miniscule amount." Would that affect anyone? I feel like some people might react to even that amount of gluten, but I'm not sure.

 

Thanks for the link!

bartfull Rising Star

20PPM is standard for the industry. It's really hard to test for less than that so most certified gluten-free foods are labled 20PPM or less. (MOST celiacs are fine with that amount but there are some super sensitives who can't tolerate it.)

 

So what this law will be doing is essentially making all companies who claim to have gluten-free products either drop the claim or start testing the way the good guys (products that are certified gluten-free) do. It's great because places like Domino's Pizza will no longer be able to call their pizza gluten-free. And places that also process wheat in the same facility as their "gluten-free" foods will either drop the gluten-free label altogether, or if they want to stay on the gluten-free bandwagon, test their foods.  

kareng Grand Master

20PPM is standard for the industry. It's really hard to test for less than that so most certified gluten-free foods are labled 20PPM or less. (MOST celiacs are fine with that amount but there are some super sensitives who can't tolerate it.)

 

So what this law will be doing is essentially making all companies who claim to have gluten-free products either drop the claim or start testing the way the good guys (products that are certified gluten-free) do. It's great because places like Domino's Pizza will no longer be able to call their pizza gluten-free. And places that also process wheat in the same facility as their "gluten-free" foods will either drop the gluten-free label altogether, or if they want to stay on the gluten-free bandwagon, test their foods.

Not sure if this law will apply to restaurants.

bartfull Rising Star

Yeah, you're probably right. They'll make companies do it, but they'll probably let restaurants continue poisoning people. :angry:

psawyer Proficient

So it sounds like "gluten free" means "there's some gluten, but a minuscule amount."

No, that is not the right interpretation. The rule is complicated, and 20 ppm is easy to grab onto. It is only part of the picture. There may be trace gluten from unavoidable contamination, but in no case may the amount exceed 20 ppm. To consistently achieve that, manufacturers must aim far lower due to test and batch variances. Remember, 20 is an upper limit. Zero is less than 20.

Open Original Shared Link It is 95 pages long.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Here is a link to the FAQs of today's announcement:

Open Original Shared Link

Number 9 addresses implications for restaurants.

Hope the link works....on the dreaded kindle ;)

Rebekka Newbie

I am a Celiac living in Europe where we have the same law regarding gluten free labeling; this law is not strict enough. 20 parts per million gluten may not seem like it could be very harmful, but it is. Many sensitive Celiacs will get sick if they eat a "gluten free" product with 20 ppm gluten, myself included. In Europe, purified wheat starch is legally put into food labeled gluten free. I am saddened by the fact that the FDA mimicked Europe´s incredebly poor gluten free labeling laws.

bartfull Rising Star

So if a restaurant wants to claim something as gluten-free they have to have ingredients that are gluten-free according to the new rules. BUT, once they have cross contaminated it with their unsafe practices, all bets are off. Kind of like now - oh yeah, the fries are gluten-free, but with no dedicated fryer, they become contaminated.

 

Oh well.

dilettantesteph Collaborator

I just hope that this doesn't make companies with more strict practices lighten up their standards.  I agree with Rebekka that many have issues with 20 ppm.  I am another one of these more sensitive celiacs.   I am also surprised how much is said about 20 ppm being the lowest level of testing available.  Here is a place that tests to 5 ppm or 10 ppm gluten: Open Original Shared Link  There are others.  I think that more sensitive standards would drive the developments of more sensitive tests.  Why spend a lot of money developing and validating a more sensitive test if no one will be using it?

kareng Grand Master

Looks like, depending on how the rule is interpreted but.....there will be no more gluten free menus in restaurants . They can't test every food they serve, so this may mess things up for the good gluten-free menus.

However, the FDA doesn't exactly regulate them...so who knows.

bartfull Rising Star

Steph, I'm not sure but I think it costs a lot more to test down to 5 PPM. If they made that their standard the prices would go through the roof and many companies would probably stop doing gluten-free altogether.

 

Karen, I hope that's not the case. I would think from what I read that the only ingredients they would be allowed to serve have to be gluten-free according to the new standards, but how they prepare the food does not fall under the rules. I guess we'll just have to wait to find out.

 

In the meantime, I have a choice I need to make tomorrow. I'm going to Rapid with a friend. Since it's his gas, I will be buying dinner. Should I go for the gluten-free pizza at Lintz Brothers, or go to Outback? I'm kind of leaning toward Outback because they have so many more choices. Maybe stop at Lintz Bros on the way back and get one to go? :P

  • 2 weeks later...
w8in4dave Community Regular

I think it is a great idea!! I think they need to be strict !! I love the link GottaSki posted!! Great one!! I don't think I am as sensitive as some. But I def. am Celiac!!

dilettantesteph Collaborator

Steph, I'm not sure but I think it costs a lot more to test down to 5 PPM. If they made that their standard the prices would go through the roof and many companies would probably stop doing gluten-free altogether.

 

I have seen that stated a lot, but I haven't ever seen any evidence for it.  When I have checked prices with testing companies, it was not the case.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,486
    • Most Online (within 30 mins)
      7,748

    Takea-moment
    Newest Member
    Takea-moment
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.