Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Sick Can Cc Make You?


answerseeker

Recommended Posts

answerseeker Enthusiast

well it happened again. I don't know if I am actually reacting to the trace gluten in gluten free foods or if I'm just not being careful enough. The first time I posted about the Betty Crocker mix making me sick and now yesterday I made myself gluten free pancakes (from a mix) and my family regular pancakes.

 

I had gurgling in the evening not too bad but today I woke up nausiated. Really feeling like I'm going to throw up. Does this sound like cc?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flowerqueen Community Regular

I can only speak from personal experience, but I too, get the symptoms you are describing, when I have been contaminated with wheat/gluten. Sometimes though, the thing you suspect to be the culprit is not at all, and it turns out to be something else. The only sure way is to keep a food journal of everything that passes your lips and a list of symptoms after eating them.

Hope you feel better soon.

notme Experienced

food journal is your friend!  :)  i have a secondary sensitivity to soy that will mimic a gluten reaction, but it doesn't last as long as a 'glutening' - headache, gas/bloating/D, fatigue, etc.  it used to fool me (and make me crazy "what did i eat i was so careful?!")  on the other hand, sometimes it's something stupid like my shampoo or using hand sanitizer, lolz or kissing the husband <yeah, i had to learn that one the hard way.  i did *not* believe that................... :wacko:

cyclinglady Grand Master

Do you have a dedicated pancake turner? Spoons, etc.?  I glutened myself twice, by not carefully scrubbing out a pot that I cooked regular macaroni and cheese in.  I think I missed scrubbing the handle.  So, now, I have a few pots, spoons, Tupperware just for my gluten eating daughter.  Even the turner is dedicated to her.   Other than mac and cheese (it's cheaper when her buddies are over), I make her "noddles" for school lunch or pancakes for breakfast -- but those are the only gluten things made in my kitchen.  If anymore episodes occur, gluten will be out completely!  

 

Since you're reacting to the pancake and cookie mix, you might have problems with Xanthan Gum.  It can be derived from soy, corn, wheat or dairy.  Probably the Betty Crocker's Xanthan gum contains soy since it's states that it contains soy ingredients including the obvious soy Lecithin.  Maybe it's an intolerance to soy.  

 

Finally, giving up the wheat means more celiac disease folks turn to rice.  Consumer Reports indicates that rice is high in arsenic.  How much rice are you consuming?

bartfull Rising Star

When you made the regular pancakes you dumped the flour into the bowl. Even if you don't see it, when you do that, flour dust gets into the air. You breathe it in and end up swallowing some. Mom used to wear a dust mask whenever she cooked with wheat flour.

 

And although everyone is different, those symptoms sound typical of CC.

 

That being said, it's still early for you and it's possible you just "react" to nothing in particular. I know I certainly did - things like lettuce, gluten-free cottage cheese, sweet potatoes, you name it. I don't think it was the particular foods, it was just EATING. Give yourself some time to heal and it'll probably stop happening.

 

But DO use a mask when cooking with regular flour. Or better yet, make enough gluten-free pancakes for the whole family. Sure it costs more, but if it prevents you from getting sick, it's worth it. :)

answerseeker Enthusiast

  How much rice are you consuming?

more than I used too that's for sure. Rice chex for breakfast, sometimes white rice with tamari sauce for lunch, and rice crackers for snacks

answerseeker Enthusiast
 Or better yet, make enough gluten-free pancakes for the whole family. Sure it costs more, but if it prevents you from getting sick, it's worth it. :)

my kids tasted mine and actually preferred my gluten-free ones to theirs. they also loved the gluten-free cookies I made and when I make pizza I make gluten-free pizza and they love that too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AlwaysLearning Collaborator

When I get exposed to gluten via dust in the air, my sinuses seem to flare up more than my gut, feeling as if I have a sinus infection.

But I've also had a bad experience with a gluten-free pancake mix, and when I researched the one ingredient in it that I didn't know much about, I think it may have been causing it's own problems outside of a gluten reaction. Apparently, guar gum is such a concentrated fiber that it absorbs a lot more liquid than other fibers. When they use it in diet aids, they say to drink lots of water with it but the pancake mix came with no such warning.

My cross contamination reactions increase in direct correlation to the amount of gluten.

• The least amounts, found in products being sold as gluten-free but still likely to contain some parts per million, don't have symptoms per se, but I can tell and I don't buy them again. I just don't feel right for 6-12 hours or so.

• The next level up, say from a contaminated cutting board at the butcher's counter or when ordering a salad from a restaurant, may have the irritability, headache, and brain fog but only lasts two or three days.

• The next level up normally comes from full meals made at restaurants where no one knows about cross contamination and the entire kitchen is a danger zone even if my food is "gluten free". So when I suspect it is contaminated utensils and cooking surfaces that prepared multiple items, I get stomach gurgling and gas which can last up to eight hours, plus the irritability, headache, then brain fog, with about five or six days to recover completely.

• And thankfully, I have no idea how I would react if I ate something that actually contains a full-on gluten ingredient because I haven't done it since going gluten free.

If you think you're reacting to the parts-per million, many of the manufacturers who ONLY make gluten-free foods and nothing else do a much better job. I've never sensed any gluten in anything made by Glutino or Udis. But I don't trust the gluten-free foods made by any manufacturer that shares their prep space with gluten.

tarnalberry Community Regular

When you made the regular pancakes you dumped the flour into the bowl. Even if you don't see it, when you do that, flour dust gets into the air. You breathe it in and end up swallowing some. Mom used to wear a dust mask whenever she cooked with wheat flour.

 

...

 

Or better yet, make enough gluten-free pancakes for the whole family. Sure it costs more, but if it prevents you from getting sick, it's worth it. :)

 

This.  You cooked with wheat flour; of course you got contaminated.  My family always gets gluten free pancakes.  I can do gluten free oats, so now we do oat flour pancakes, and they're awesome (and freeze well), but previously, I used Pamela's mix.

cyclinglady Grand Master

more than I used too that's for sure. Rice chex for breakfast, sometimes white rice with tamari sauce for lunch, and rice crackers for snacks

 

Besides the arsenic theory (ha!  pretty far fetched but possible....), you might be intolerant to rice.  I react mildly to it, so I just eat it every few days.  Not daily.

dilettantesteph Collaborator

Cross contamination is enough to return me to full blown symptoms where I can't make it to the toilet in time, my back goes out, my vision blurs, I can barely get out of bed from fatigue, all my joints ache, I can't think straight, and I'm so depressed that I would kill myself if I had a gun handy.  That isn't much fun.  That's why I'm so careful.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,661
    • Most Online (within 30 mins)
      7,748

    CarlaP
    Newest Member
    CarlaP
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
    • Julie 911
      I finally got rhe answer and Tylenol is ok. Thanks everyone 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.