Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Warning - Tmi Poop Question Ahead


Celtic Queen

Recommended Posts

Celtic Queen Explorer

Sorry for handing out too much information here, but I really don't know who else to ask on this one.  I'm recovering from my last glutening, which was about 4 weeks ago.  One thing I've noticed late in my recovery cycle is that my stools get really crazy.  The first week after being glutened I get the usual "Big D."  Then the next week or two they're normal.  Then about week 4 or 5 they become really strange.  They feel solid when they're inside me, but when I go to the bathroom, they totally fall apart in the toilet.  It's not watery, like diahrehea (sp?),  but comes out solid then separates into thousands of tiny pieces. Sometimes some mucus will come out too. I also noticed that when I have these kind of BMs, I have the sudden urge to go to the bathroom and I can't control it, like with a normal BM. 

 

So, if anyone hasn't gotten totally grossed out by my post yet and is still reading, here are my questions:

 

Does anyone else have this issue?

 

Is this a normal part of my intestines recovering from gluten or do I need to look to another food intolerance as a cause?  I've been gluten-free for 2 years.  I'm only doing gluten-free at the moment, but probably need to get rid of the dairy too as I have really bad sinus problems.  Could casein be a cause?

 

Do you think this is something I should go see the doctor for?  I had such a bad experience when I went to the gastro doctor that I hesitate to go again.  But if I need to visit a gastro dr., I can do some looking around and find a better one, I guess.

 

Thanks for any help and advice you can give me.  And sorry if I grossed anyone out :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



w8in4dave Community Regular

I have had that problem and I think mine was caused from Lactose. No worries about TMI we have all been there. Very frustrating! 

moosemalibu Collaborator

I am new to this whole thing as I've just been diagnosed but I definitely have the myriad of stool qualities that you describe and the scattered little bits seem to be the most disturbing to me too! I removed dairy from my diet and it has improved. Whenever I get it it's usually after I accidentally consume dairy.

cyclinglady Grand Master

You have your answer!  Give up the milk for a while.  Sounds more like a milk allergy (sinus congestion), but can be lactose at the same time!  It could be other foods too, but start with most obvious -- milk. 

Celtic Queen Explorer

Thanks for the help everyone.  And for not being scared off by my post :P Looks like I will be giving up the dairy.  I've known for a while that I should but I think I've been resisting because my favorite foods all have dairy - chocolate, yogurt, cheese, etc.  It's been much easier for me to give up the wheat than it will be to give up the dairy.  Oh well, I guess I'll have to find some new favorite foods.

niese Explorer

I had the same issue as well.  I too had to give up dairy but I have fallen in love with Silk Almond unsweetened milk.  My "D" lasted for 5 months my new GI doc put me on Budesonide and my "D" stopped.  Are you taking any probiotics and digestive enzymes they usually will help.  

moosemalibu Collaborator

I am thinking I need probiotics and digestive enzymes. What brands seem to be working for those in the US?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celtic Queen Explorer

I haven't been taking either probiotics or digestive enzymes.  I'd love to hear some recommendations on those too.

niese Explorer

I haven't been taking either probiotics or digestive enzymes.  I'd love to hear some recommendations on those too.

Digestive Enzymes I take Digest All Plant Enzyme I order them from Open Original Shared Link  they are gluten free as well.  I order alot of gluten free items from swanson vitamins epecially my baking needs like flour they have thousands for gluten free items very cheap.  I take Trubiotics they are also gluten free and I get them at WalMart.  I have also taken Culturelle from WalMart as well.  I am sure other people can recommend brands as well.  What works for one may not work for another.  But these work well on me.  

janpell Apprentice

I had that happen and found that it was pea protein that caused it for me. It is so confusing at first because I am sure that I had gluten or too much dairy or a stomach bug and never suspected much else.  Because I had to limit my diet so much it took me about four encounters to figure out it was the pea protein that is added to some gluten free products. Probiotics will probably help.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,661
    • Most Online (within 30 mins)
      7,748

    CarlaP
    Newest Member
    CarlaP
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
    • Julie 911
      I finally got rhe answer and Tylenol is ok. Thanks everyone 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.