Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Haven't Been Intimate In Months, But Funny...

lorka150

By lorka150
in Coping with Celiac Disease

Recommended Posts

lorka150 Collaborator
lorka150
Posted

Gr......

Okay. I am rail thin from this celiac disease. I am 5'7.5'' and weigh about 104 lbs. Leaner than lean.

But I'm evidently pregnant, you see.

I drink 148932849328 gallons of water/herbal tea/sodium free club soda/sometimes a diet pop/a coffee or two daily.

Because I AM SO THIRSTY. Does anyone else have this? Just got tested for diabetes and it came back fine. In fact, I am right in the 'perfect' blood sugar range. I can't stop this thirst. It's almost to the point where it's taken over my life because of the constant and thirst, and thus, urination, and thus, no sleep because I am waking up every 1/2 hour.

Anyone?

Jeez... I've been gluten free for about 2 months.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted

I drink non stop. I drink 4 litters of water, add diet soda, add fruit juice, add coffee, etc on any given day.

But Im fiarly sure IM not preg :lol::lol:

lorka150 Collaborator
lorka150
Posted
  • Author

do you have celiac?

VydorScope Proficient
VydorScope
Posted
do you have celiac?

<{POST_SNAPBACK}>

Wont know till my test in November.. but I think its liklky. My toddler son DOES and he drinnks tons and tons and tons to. More then most adutls, but I dunno if thats normal for a toddler or not.

Carriefaith Enthusiast
Carriefaith
Posted
I drink 148932849328 gallons of water/herbal tea/sodium free club soda/sometimes a diet pop/a coffee or two daily.

I drink about 5743434 gallons/day ;)

Actually, I don't really drink fluids a whole lot, but when I get thirsty, I can't stop and then I start drinking like crazy!

lorka150 Collaborator
lorka150
Posted
  • Author

I just can't stop. It's literally impeding on my life.

SUCKS!

I'm going through one of those "I feel sorry for myself that I have this stupid disease" phases.

aikiducky Apprentice
aikiducky
Posted

You know, I hadn't really thought about it, but when I get glutened I do drink more, and of course, I look pregnant, too. :rolleyes: Then usually one day a week or two or three later I go to the bathroom a lot and the bloating goes down... I guess it could be some kind of a protective reaction of the body to collect a lot of fluid...

I'm not bloated from my last glutening anymore today - now I just have these loose folds of skin on my tummy, blech. :angry:

Pauliina

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aaascr Apprentice
aaascr
Posted

"I'm not bloated from my last glutening anymore today - now I just have these loose folds of skin on my tummy, blech."

Me too! I work out 3-4 days at the gym, and play soccer 3-4 times a week.

the rest of me is toned up and perhaps a bit underweight - never had a stomach before - what gives???

aikiducky Apprentice
aikiducky
Posted

You know when you have a little cut on a finger that gets inflamed and red and a bit swollen? That's what I imagine my intestines to be like. And when the swelling goes does, all the skin that's been stretched out by it is going to hang loose. No amount of working out is going to help with that I'm afraid. :(

Pauliina

at least, that's my explanation... maybe I'm just fat, lol

Mo92109 Apprentice
Mo92109
Posted

OHMYGOSH, I have this too. I am pretty thin everywhere except for my belly, I totally look pregnant. I am not thristy "all" the time, though, at least that I have noticed. I have been gluten-free for over 6 months.... I think, I'm no good at it.

Anyway, my Dr. (who knows nothing about celiac disease) ordered two sonograms (in two weeks) to try and find out why so fat ONLY in my stomach. I used to think it was a beer gut, but it way wose since going gluten-free and giving up beer.

What could cause this?

fisharefriendsnotfood Apprentice
fisharefriendsnotfood
Posted
OHMYGOSH, I have this too. I am pretty thin everywhere except for my belly, I totally look pregnant. I am not thristy "all" the time, though, at least that I have noticed. I have been gluten-free for over 6 months.... I think, I'm no good at it.

Anyway, my Dr. (who knows nothing about celiac disease) ordered two sonograms (in two weeks) to try and find out why so fat ONLY in my stomach. I used to think it was a beer gut, but it way wose since going gluten-free and giving up beer.

What could cause this?

<{POST_SNAPBACK}>

You probably aren't totally gluten-free. Right before I was diagnosed with celiac disease, I was skinny everywhere except my belly too. Make sure you're totally gluten-free.

Jackie

paw Apprentice
paw
Posted

I look pregnant too. :( Last winter I wore my son's old blue jeans size 30 waist and they were loose. In July the "big bloat" kicked in and won't go away. Now my belly measures 37 inches on a big day 35 inches on other days. There is no way to find pants to fit such a swollen gut. I have considered maternity pants, but I have not found any that look normal. My weight is about 5 pounds more, but I had lost a lot and that little gain is ok for me.

About the thirst: I drink a lot of plain tea either hot or iced. I also drink Coke, not the diet kind. If I drink some things they actually make me more thirsty. If you have any artificial sweeteners in your drinks, try cutting that out and see if it helps.

I REALLY want some pants. :blink:

Mo92109 Apprentice
Mo92109
Posted

I hear you about pants!!! I wear a size 4-6... unless I need to zip up and button. Thankfully the "hot" styles are billowy and loose right now. I live for elastic waist, flowy skirts.

I THINK I am gluten-free, but now I'm not sure. :unsure:

anerissara Enthusiast
anerissara
Posted

I feel your pain....my gut is like a balloon, sometimes I look pg and other times I look fine. It's driving me nuts! Some days by the end of the day I just want to take my pants off NOW because the waste is so tight. The next day, the same pants are loose on me! AAaaaaahhhh! It doesn't help that when I get any amount of gluten I end up retaining so much water you can hear me slosh as I walk by.

I have the loose skin problem, too...I was blaming that on the fact that I have 3 kids, it seems like the skin on my belly just gave up the fight after baby #3 but in retrospect baby #3 also coinsided with the celiac problems getting bad, so maybe it was a combination of both.

If anyone finds a magic cure for inflate-o-gut, let me know 'cause I'll be first in line!

paw Apprentice
paw
Posted
I feel your pain....my gut is like a balloon, sometimes I look pg and other times I look fine.  It's driving me nuts!  Some days by the end of the day I just want to take my pants off NOW because the waste is so tight.  The next day, the same pants are loose on me!  AAaaaaahhhh!  . . .    If anyone finds a magic cure for inflate-o-gut, let me know 'cause I'll be first in line!

<{POST_SNAPBACK}>

The balloon thing that went up and down was me before July. Sometime in July it "pouffed" and stayed that way. That was when the family doctor told me she thought it was more than a dairy problem that was making me so big in the belly.

I bought a pair of jeans that are size 16 1/2 for girls plus size. I am 5' 4" so even the length is ok. These have room for my big belly and they fit ok in the butt and legs -- how odd to say "My pants fit today". I hope to fix the belly thing and not buy more "fat pants".

jrom987 Apprentice
jrom987
Posted
The balloon thing that went up and down was me before July.  Sometime in July it "pouffed" and stayed that way.  That was when the family doctor told me she thought it was more than a dairy problem that was making me so big in the belly.

I bought a pair of jeans that are size 16 1/2 for girls plus size.  I am 5' 4" so even the length is ok.  These have room for my big belly and they fit ok in the butt and legs -- how odd to say "My pants fit today".  I hope to fix the belly thing and not buy more "fat pants".

<{POST_SNAPBACK}>

I have been gluten-free for two weeks now. I have the tummy bloating too but I am not skinny. Are most Celiacs thin? It seems that way from what I have read. My biopsy was bad and my blood work too. I am very short and I have the traditional "Italian mamma" body. I can relate to the pants problems and I am very thankful for elastic waists! My waist is several inches larger than my hips and finding comfortable pants is nearly impossible.

paw Apprentice
paw
Posted
Are most Celiacs thin?

<{POST_SNAPBACK}>

I am still new at this whole thing, but I have been reading posts here for weeks. Hopefully I soaked up a little information along the way. Many Celiacs are thin, but some are heavy. I read (I can't remember the source, sorry) that it depends on which part of the small intestine is most damaged what symptoms you will have. If the damage is at the beginning, you will have diarrhea and will not absorb your food nutrition. If the damage is at the other end of the small intestine, you will be absorbing more of your food, calories and less likely to have the loose stool.

This makes sense to me, but please ask your doctor if you have questions. Some doctors don't know all that much about this problem though and other members here who have been dealing with this longer might have more advice.

On pants, if you buy elastic waist, you might even need to remove the elastic that comes with them and replace it with longer elastic or drawstrings that you can adjust as you belly changes. I hate it when in 5 minutes I get 3 sizes larger! I know that is bloat and it will hopefully go away, but I don't like that. :o

paw Apprentice
paw
Posted

jrom987: I forgot to say that you might need more time before your system calms down and your bloating stops. Each person responds at their own rate, depending on how long they were having problems and the amount of damage.

Also many people have problems with diary or other foods and they may need to remove those too. :blink:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,131
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.