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LauraTX

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LauraTX Rising Star

Hi Everyone,

My Name is Laura and I live near Fort Worth, TX.  I was diagnosed with celiac via biopsy/blood draw in January 2013, been gluten-free ever since.  I have been reading this forum a lot so I figured I should finally sign up and join in on the fun.  I have a lot of other health problems, too- lupus and common variable immunodeficiency, that kind of limit what I can do some times.  I have a non-gluten-free husband and a cat who is like our child.  That's her in my pic :)  I am a big nerd and I love it.

 

I really enjoy cooking so maybe I will get around to posting some gluten-free recipes that I made for myself out of necessity, since you all know how eating out is.  If anyone is visiting the Dallas/Fort Worth area feel free to contact me and I will help you figure out where to eat. 


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kareng Grand Master

Welcome Laura!

Have you seen the What's for dinner thread? We like to post what we made for dinner, even if its just wine and pretzels! :)

1desperateladysaved Proficient

Hi Everyone,

My Name is Laura and I live near Fort Worth, TX.  I was diagnosed with celiac via biopsy/blood draw in January 2013, been gluten-free ever since.  I have been reading this forum a lot so I figured I should finally sign up and join in on the fun.  I have a lot of other health problems, too- lupus and common variable immunodeficiency, that kind of limit what I can do some times.  I have a non-gluten-free husband and a cat who is like our child.  That's her in my pic :)  I am a big nerd and I love it.

 

I really enjoy cooking so maybe I will get around to posting some gluten-free recipes that I made for myself out of necessity, since you all know how eating out is.  If anyone is visiting the Dallas/Fort Worth area feel free to contact me and I will help you figure out where to eat. 

Hi Laura,

 

Do you know if lupus/celiac are linked.  I mean can you have lupus without celiac?  I hope you will turn your health around!

 

I have a daughter living at GIAL.  Dallas area.

 

D

LauraTX Rising Star

The "Whats for dinner" thread is right up my alley!  I grocery shop once a week (well usually I forget something and go back mid-week) and I plan the meals I am going to make, I am always looking to do something different.  

 

D, I bet you are proud of your daughter to be at a place like GIAL :)  

 

From what I have been told by my doctors, the Lupus, Celiac Disease, and CVID triad of diagnoses are not a surprise, because people with immunodeficiencies tend to develop autoimmune conditions (like your body freaks out and the immune system goes haywire-how my doc explained it), and a lot of autoimmune conditions are very similar and can come in groups.  You can have lupus without celiac and vice versa, but they seem to go together a lot and can mimic each others symptoms.  I see a GI, rheumatologist, and immunologist and I think I have lucked out that they all understand how the other stuff affects what they are treating me for.

 

All these diagnoses were within months of each other, early this year, and I am finally on the right treatment for everything, and slowly getting better :)  It is definitely important for me to take care of all the aspects, though, because they do affect each other.

w8in4dave Community Regular

Welcome Laura :) 

I have Family that live in TX. A lil town called Gun Barrel City :) Lol kinda a cute name :)

I just wanted to say I understand about all the Auto Immune stuff, My friend that has Crones , also has Lupus , RA, and a few other things. Once you have an Auto Immune you can get another like you said. 

 

I will look forward to seeing your post. Good Luck!! :) 

Loey Rising Star

Hi Everyone,

My Name is Laura and I live near Fort Worth, TX.  I was diagnosed with celiac via biopsy/blood draw in January 2013, been gluten-free ever since.  I have been reading this forum a lot so I figured I should finally sign up and join in on the fun.  I have a lot of other health problems, too- lupus and common variable immunodeficiency, that kind of limit what I can do some times.  I have a non-gluten-free husband and a cat who is like our child.  That's her in my pic :)  I am a big nerd and I love it.

 

I really enjoy cooking so maybe I will get around to posting some gluten-free recipes that I made for myself out of necessity, since you all know how eating out is.  If anyone is visiting the Dallas/Fort Worth area feel free to contact me and I will help you figure out where to eat.

Welcome Laura! This is hands down the most educated, supportive loving & funniest group of people I've ever met! I was housebound for 3 years and my celiac family kept me going! I'm actually glad igot celiac because it led me to all of these wonderful folks!

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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