Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Celiac And Might Be Doing Something Wrong...


pestew

Recommended Posts

pestew Newbie

I was diagnosed with Celiac two weeks ago and have been following the diet without a problem.

Last night I went out with a small group for a friend's birthday and ordered what I thought was a perfectly gluten-free meal, but after eating it was like I had the flu and was sicker than I had ever been before going gluten-free...

 

Here's what I ate:

Salad (romaine lettuce and dressing*)

Steak (no seasoning, in a tomato sauce*  with provolone cheese)

Vegetables (steamed and served in butter with no seasoning)

 

* = the chef said these were gluten-free items

 

Before ordering I spoke with the waiter/manager about my condition and they seemed very knowledgeable about celiac and my needs. The restaurant was empty (I hear that's the best time for a celiac to eat out).  My food was prepared separately and in a clean area with new utensils (I do not know this for sure, but that's what I was told)....

 

Am I missing something?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

It might have been the Cesar Dressing.  It is not always gluten free.  Some Restaurants make their own and others use a Brand.  Also, Usually Cesar salad is prepared before hand and a lot of different servers are dipping In and most of those salads will have croutons added.  It may have been contaminated.

 

Colleen

Salax Contributor

It might have been the Cesar Dressing.  It is not always gluten free.  Some Restaurants make their own and others use a Brand.  Also, Usually Cesar salad is prepared before hand and a lot of different servers are dipping In and most of those salads will have croutons added.  It may have been contaminated.

 

Colleen

I don't see a mention of Cesar Dressing?  Unless my eyes are deceiving me, which can happen.  :rolleyes:  But the first two items that are *'d the chef said they were gluten free. The last one isn't *'d, maybe that one might be the culprit? Where’d that butter come from is my question, was it a brand new butter, one on the table with the bread (if that happened?), possible cc'd butter, how were the veggies steamed? I have heard about veggies steamed in pasta water before (not sure if that has any truth or bearing but…) These are so hard to figure out sometimes.

 

I do hope you feel better though.

GF Lover Rising Star

Salax,  Your right.  I saw romaine lettuce and thought cesar. Thanks for the correction.

 

Colleen

bartfull Rising Star

Have you eaten the lettuce at home without problems? I ask because I could not tolerate lettuce (of all things!) while I was healing. I couldn't tolerate a LOT of things that were without a doubt gluten-free at first. When we are healing just about anything can set us off for no good reason.

 

I would avoid restaurants for the first few months, stick to whole foods only (organic if possible), and give myself time to heal.

 

If you want salad, buy the fixin's and make it at home. Vinegar and oil or homemade dressing. Yeah, it might be boring for a while, but you'll heal quicker and feel better.

eers03 Explorer

I was diagnosed with Celiac two weeks ago and have been following the diet without a problem.

Last night I went out with a small group for a friend's birthday and ordered what I thought was a perfectly gluten-free meal, but after eating it was like I had the flu and was sicker than I had ever been before going gluten-free...

 

Here's what I ate:

Salad (romaine lettuce and dressing*)

Steak (no seasoning, in a tomato sauce*  with provolone cheese)

Vegetables (steamed and served in butter with no seasoning)

 

* = the chef said these were gluten-free items

 

Before ordering I spoke with the waiter/manager about my condition and they seemed very knowledgeable about celiac and my needs. The restaurant was empty (I hear that's the best time for a celiac to eat out).  My food was prepared separately and in a clean area with new utensils (I do not know this for sure, but that's what I was told)....

 

Am I missing something?

 

 

Welcome to the board!  I hope you like this place as much as I do.  The folks on here are a great resource for me.  First of all, you're on the right track, so congratulations.  I would want to know the ingredients in the dressing.  Also, some people react to dairy early on in the healing process.  I don't know what you had to drink but if it was a cocktail, you need to make sure you know what is in that as well.

notme Experienced

cheese !  is my guess, too - if you have alot of damage to your intestines, your villi are also damaged and the tips of the villi is where your body makes the stuff that breaks down dairy, so if villi are damaged enough, you're body isn't making any or enough to digest dairy.    you might want to skip the dairy - i think i did it for 6 months - and then re-introduce it after you have a chance to heal some :)  keep a food journal - easier to figure stuff out.   welcome to the board, where there's no such thing as tmi  :ph34r:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliebove Rising Star

Cross contamination is the most likely cause.  I have found salad to be a big culprit.  They'll put croutons on, then pick them off.  Not saying that this happened here but it has happened to me.  Or a crouton could have fallen into the bowl that they used at some point.  Someone may have used a knife in the butter and spread it on some bread, cross contaminating that.  Or the water used for steaming could even be pasta water that had wheat containing pasta cooked in it.  Again, not saying that happened here but I have heard of it.  Could even be that the server touched some bread or something and then touched your plate.

notme Experienced

yes, eating out is sketchy - you can ask as many questions as you want - ask them if they know what gluten is.  most times they come up with some wierd answer........  and people confuse it with glucose, i have found.  it took me awhile to heal enough to know when i had a TRUE gluten reaction and not a reaction to something else that was irritating my guts.  when i kept the food journal in the beginning, i found that i had a secondary sensitivity to soy - it gives me a headache and messes up my digesgtion, but it doesn't last 2 weeks like a glutening does.  i only figured that out when i cut out dairy and my intestines were not constantly irritated. 

 

edited to add:  have you read the newbie 101 thread in the coping section?   lots of good, helpful info there :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.