Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie :need Help


tryme

Recommended Posts

tryme Rookie

Hi

I am a newly diagnosed celiac and have been on gluten free diet for just over a week. I left gluten, dairy corn and processed food when I started the diet. I am not sure if it is too extreem but I jave been following the newbie info thread. My headaches have finally gone away.I am still trying to figure out this diet and feel that I am almost always paranoid of getting glutened even though I only buy gluten free foods.

I was hoping if you guys can tell me if the lactose free lactaid milk is safe to drink. I have not noticed dairy giving me problems but since I had bad villous atrophy I thought it would be a good idea to drop lactose. I don't consume any other products like ice cream or yogurt but do like eggs. Are they safe as well?

Also wondering if homemade gluten free pancakes with maple syrup are ok to eat (mabe once a month) this early in my new diet or should I strictly stick to whole foods.

I enjoy spicy food so I make currys with wild rice and eat it once a day . I don't use a lot of spices just use salt pepper and hot peppers and turmeric. Are they safe to eat ? I do eat lots of salads and fruits and nuts but I really feel like eating the rice once a day.

I am sorry these are a lot of questions but I will really appreciate your help. I don't want to eat anything wrong. Being new to diet I always feel that everything has gluten.did someone else feel like this or its just me :(

Thank you in advance for your help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

lactaid is good - i started drinking it when i was first diagnosed (skipped dairy for about 6 months) and now i still drink it because i like it.  eggs are not dairy, but some people are sensitive or allergic to eggs, but they are gluten free and are safe to eat on gluten-free diet.  pancakes are awesome :)  maple syrup is good, i bet you will find alot of recipes for pancakes on the recipe/baking forum - just google 'pancakes' and you should get a bunch of different recipes.  i used to make myself crepes early in, to make myself feel better when i was having a 'poor me' day, lolz - spiciness and peppers irritated my guts in the beginning, but they are gluten-free (check labels on everything) and won't cause an auto-immune reaction, although if (and you will know it, use common sense) you feel like they are irritating you, stop eating them for awhile - rice is good and one of my 'go-to' foods when i get glutened or my guts are wonky.  i had trouble digesting raw veggies in the beginning, but if you can eat salad and raw veggies, they are good.  nuts - check the labels.  some say 'processed on equipment that also process wheat containing products' plain nuts are usually ok and nuts are naturally gluten free ;)

 

that is not alot of questions, everybody *does* feel like this in the beginning.  i cried in the supermarket (bought nothing) went home, had a tantrum, etc...  so, you are in good company here.  we have all been through this.  glad you have read the newbie thread and ask away.  welcome to the best club you never wanted to join....  <_<  and don't worry - it gets easier :)

LauraTX Rising Star

I think you are doing the right thing in listening in to your body and how it feels.  :)  It does get better and a little less anxiety-causing as time passes.  And of course, the more time passes, the better you feel :)

bartfull Rising Star

Planter's nuts are NOT made in a facility that processes wheat (unless it says so on the label - and it WILL if they are). That is the only brand I eat, unless I eat nuts that come still in the shell.

 

There is no need to give up corn unless you have problems with it, but if you do, or still want to be corn-free, make sure the syrup you put on those pancakes is real maple syrup. Most brands in the grocery store are maple flavored corn syrup.

 

Do try to stick to mostly whole foods at first. You will get less "crap" like artificial flavorings, colors and chemical preservatives and a lot more nutrition. 

 

And yes, welcome! Got more questions? Fire away. :)

tryme Rookie

Thank you so much notme!, LauraTX and bartfull ! This is really helpful. I am sorry for this late reply as I have been working a lot lately and feel totally drained when I get home. Even more drained than I use to when I was on gluten diet L

 I love the taste of lactaid and I am glad I found it because I wasn’t so sure if I could continue to drink the almond milk. I did not visit the supermarket in my first week because I felt I won’t be able to handle it. I did have few meltdowns following this. But now I have found a motivator – having a healthy baby and being able to take care of it and of course living a healthier life than people who are eating all that junk food.  I do feel like treating myself with some pancakes or something sweet maybe once a month. I have read that sugar can cause inflammation so I decreased the amount I have (well I only use small amounts of honey).

I think you guys are right. I need to be patient because it takes time for things to heal. I am going to stick to whole foods for first few months.  Although I am not sure if I should incorporate more animal proteins into my diet. I only eat chicken (rarely. We don’t cook red meats due to history of cancer in my husband’s family). I also don’t like the smell of fish L . I do cook lots of legumes though. I drink a lot of smoothies (milk, kale, spinach, all berries, walnuts).

Do you guys have any suggestions to get more protein & omega 3 in the diet?

 

Thanks a lot!

GF Lover Rising Star

Here is a list of foods by protein content:  I was told by my Oncologist that Bison was a good replacement for red meat.  I stay away from pork but I do have chicken in moderation.  I also stay away from sugar as much as possible. 

 

Open Original Shared Link

 

Since you don't like fish, seeds and nuts would be a good source of Omega 3's.

 

Here is a list of foods that are anti-inflammatory.

 

Open Original Shared Link

 

Hope this helps.

 

Colleen

Gemini Experienced

Most definitely eat those pancakes, loaded with real maple syrup.  It's good for the soul........ ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Most definitely eat those pancakes, loaded with real maple syrup.  It's good for the soul........ ;)

 

I second this!

 

I am so glad your headaches are gone and happy the Newbie thread is helping. If there's anything else we can help with, just shout!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,337
    • Most Online (within 30 mins)
      7,748

    Susan1001
    Newest Member
    Susan1001
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.