Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Is More Than What You Eat


jam7515

Recommended Posts

jam7515 Newbie

I wanted to make this post for all the newbies like me because I could not find all these answers in once place.  Mostly aimed at women.  Gluten intolerance is more than just what you eat, here are my findings:

I developed a sort of greasy, stiffness in the hair on the top of my head.  The fix Suave Clarifying shampoo and conditioner.  If you want to go a little more upscale Loreal EverCreme Sulfate Free works good too.

I developed Rosacea like symptoms on my face.  The fix.  All the Roc products seem ok, I use Olay Regenerist for cleansing, works great too.

Morning nausea.  Toms of Main Flouride Free Thoothpaste.

Itching armpits and swollen glands.  Arm and Hammer Essentials Deodorant, Paraben and Aluminum free.

Body wash, most of the Olay products seem to be fine.

All these products were found by trial and error and a lot of research.  Hope it helps someone else out there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BelleVie Enthusiast

Thank you for taking the time to share this! 

notme Experienced

I wanted to make this post for all the newbies like me because I could not find all these answers in once place.  Mostly aimed at women.  Gluten intolerance is more than just what you eat, here are my findings:

I developed a sort of greasy, stiffness in the hair on the top of my head.  The fix Suave Clarifying shampoo and conditioner.  If you want to go a little more upscale Loreal EverCreme Sulfate Free works good too.

I developed Rosacea like symptoms on my face.  The fix.  All the Roc products seem ok, I use Olay Regenerist for cleansing, works great too.

Morning nausea.  Toms of Main Flouride Free Thoothpaste.

Itching armpits and swollen glands.  Arm and Hammer Essentials Deodorant, Paraben and Aluminum free.

Body wash, most of the Olay products seem to be fine.

All these products were found by trial and error and a lot of research.  Hope it helps someone else out there.

there is some pretty good info on the newbie 101 thread in the 'coping with' section of the forum.  :) 

LauraTX Rising Star

I also use the suave daily clarifying shampoo, after a few weeks I will get greasy buildup at the roots that my regular shampoo doesn't take out well. Thanks for sharing the products you use with us! :)

answerseeker Enthusiast

I wanted to make this post for all the newbies like me because I could not find all these answers in once place. Mostly aimed at women. Gluten intolerance is more than just what you eat, here are my findings:

I developed a sort of greasy, stiffness in the hair on the top of my head. The fix Suave Clarifying shampoo and conditioner. If you want to go a little more upscale Loreal EverCreme Sulfate Free works good too.

I developed Rosacea like symptoms on my face. The fix. All the Roc products seem ok, I use Olay Regenerist for cleansing, works great too.

Morning nausea. Toms of Main Flouride Free Thoothpaste.

Itching armpits and swollen glands. Arm and Hammer Essentials Deodorant, Paraben and Aluminum free.

Body wash, most of the Olay products seem to be fine.

All these products were found by trial and error and a lot of research. Hope it helps someone else out there.

I get the swollen glands in the arm pit area too! I thought it was a lump it was scary!

  • 4 weeks later...
celiac girl Newbie

hi. i was just thinking i continue to be glutened by ma hair products. for example, today i took off my glasses, and put the temple in my mouth, while i was contemplating something (you know....how people put a pencil or pen in their mouth).

 

i realized when i do that, i'm probably glutting myself.

 

i'm good at not eating anything with gluten...at least on purpose.

 

i'm wondering about cleaning products now...dish soap, laundry soap, body soaps and lotions.

 

it's been about 2-1/2 years since i was diagnosed, and i've never experienced a drastic change in my health.

 

any thoughts?

1desperateladysaved Proficient

My first wonder is if you are getting cross contamination. If your home is not 100% gluten free, you may want to create a small kitchen using a table, electric skillet, and utensils.  It is nice to have running water and a tub near by for washing dishes.   I would suggest you consider an SCD (Special Carbohydrate Diet) diet.  This was developed to help those with celiac that are not healing. Basically the diet is grain free.  One can make baked products using nut flour.  You can find the allowed foods by googling SCD diet. 

 

You may want to look at the Newbie thread to see if there is anything you missed.  Since you don't feel you are getting results you may want to be extremely vigilant about all forms of gluten.

 

I hope you will have startling results in the future.

 

D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,679
    • Most Online (within 30 mins)
      7,748

    mark mcdonald
    Newest Member
    mark mcdonald
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.