Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Face Swelling

w8in4dave

By w8in4dave
in Coping with Celiac Disease

Recommended Posts

w8in4dave Community Regular
w8in4dave
Posted

I have noticed in the am my face is swollen. Not super bad but like under my eyes and maby a lil on my lips.   Also even tho I am using a C-pap I am snoring. So my throat may be swelling a bit? I don't know what it is from? I am not eating any Corn or Gluten products. I am being extremely careful. Last night we had pork chops with Mushrooms and cheese, I had beans and rice dish with it and some asparagus with a bit of hard cheese on it and a tinge of salt. This morning my face was a lil swelled. My Dr. Apt is Jan. 6th. should I call the dr. and bump it up? Or should I wait? Do you think Mushrooms can cause this ??? I hope not!! I love Mushrooms!! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


w8in4dave Community Regular
w8in4dave
Posted
  • Author

Ohhhhh maby it is rice? ohhh jeeze!! Why does this happen? Ughhh! 

frieze Community Regular
frieze
Posted

I have noticed in the am my face is swollen. Not super bad but like under my eyes and maby a lil on my lips.   Also even tho I am using a C-pap I am snoring. So my throat may be swelling a bit? I don't know what it is from? I am not eating any Corn or Gluten products. I am being extremely careful. Last night we had pork chops with Mushrooms and cheese, I had beans and rice dish with it and some asparagus with a bit of hard cheese on it and a tinge of salt. This morning my face was a lil swelled. My Dr. Apt is Jan. 6th. should I call the dr. and bump it up? Or should I wait? Do you think Mushrooms can cause this ??? I hope not!! I love Mushrooms!! 

?pillow?

GF Lover Rising Star
GF Lover
Posted

Hey Wendy,  I had that happen when I started a new med.  Have you started any new meds or supplements? 

 

Colleen

1desperateladysaved Proficient
1desperateladysaved
Posted

   SUBJECT CORN:  Did you check your salt?

 

I went to a sight about corn allergens and noticed that iodized salt is on the unsafe list.  This doesn't surprise me, since I have reacted to salt in the past.  The company that processed the salt I reacted to said they would not guarantee it was corn free.  I use sea salt, but one has to watch even that for additives.  You may wonder why your body reacts when it didn't seem to before.  My guess is that an avoidance of corn(In one with intolerance)  helps your body recognize a difference when you have a problem. This makes me wonder if corn is the reason for my mysterious face puffiness.

 

I have been wanted to find a corn word list, so I took the occasion of this post to look one up. .

 

I better check if the link works, since I just couldn't cut and paste it, but typed it in myself.  Somehow, I can't get to the link I picked.  I searched google for corn allergies and then I clicked on an allergen list at wwwcornallergens.com.  I can't seem to get to the link except by google.  I need to print this list and go through my supplements again!

 

Mushrooms are in the fungi family, if that helps.  I react to fungi such as mushrooms, yeast, and household mildew. 

Nikki2777 Community Regular
Nikki2777
Posted

Some people develop reactions to nightshades.  I believe mushrooms are nightshades - could this be it?  Do you notice this when  you eat mushrooms?

shadowicewolf Proficient
shadowicewolf
Posted

Some people develop reactions to nightshades.  I believe mushrooms are nightshades - could this be it?  Do you notice this when  you eat mushrooms?

Mushrooms are not nightshades. Nightshades are but not limited to: tomatoes, potatoes, and peppers (both bell and spicy kinds).

 

Sounds like an allergy to me. Have you tried anything new lately?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


w8in4dave Community Regular
w8in4dave
Posted
  • Author

Ok I know it is not my pillow, It is not any new meds, I did not use iodized salt, and I have not eaten anything new. Geeze just waiting for something eles! I have a sneaky feeling it is the rice, but I guess it could be the Mushrooms also. We use alot of Mushrooms. But usually don't eat that much rice, untill I found myself not aloud to eat corn. Like I said it has happened before just not as bad as this. So I guess it is a grain free diet for me! Lets hope the Potatoes and Tomatoes are still ok!! I am going to eat a sweet potato and a burger for dinner! No Bread. No other veggie. Just a sweet potato and a burger I will go grain free ,see what happens for a couple of weeks. Then try and eat some mushrooms. If I swell I know it's the Mushrooms, If I don't I will have to think it is the rice. Pfftt! I am getting a lil ticked off about now!! I shoulda called the Doc but I didn't. 

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Ok after thinking this over and stuff. I do remember having a couple pieces of Candy Saturday. I even posted "I thought I was Glutened" could it of carried over?It was corn, Not Gluten. 2 lil pieces of candy. I do remember having this happen before. I just thought it was morning puffyness but evidently maby it wasn't. It just wasn't as bad as it was before. I am just going to be Grain Free, Corn Free, and everything eles till I see the Dr. This is Crazy!! My eyes are still a lil puffy!! The only one thing good about it, is It has taken away the wrinkles under my eyes. I did find this tho... I think Diane seen it also.. I am not sure what Raccoon eyes look like, I don't have Dark circles, but I have puffyness!! Pfftt! Not as puffy now tho.. 

 

Open Original Shared Link

w8in4dave Community Regular
w8in4dave
Posted
  • Author

I found this site. It says Tea bags can have corn it them. I will have to do alot of home work! I also took a bite of Cottage cheese yesterday. Then I said "What am I doing?" so I looked and sure enuf! Corn in it! My face was a lil swollen today not much. I just am going to have to go all natural foods! It will be too hard for me to handle! I will ask the Dr. For a nutritionist. Maby someone can help me figure this out! I know you guys are all here, but I need something eles to read. Without hrs. and hrs. on the net. 

NoGlutenCooties Contributor
NoGlutenCooties
Posted

This is geared towards kids, and includes grain products - which obviously are off limits for a Celiac - but the list of "foods to avoid" on the last 2 pages may include foods that you wouldn't at first consider as not being safe:  Open Original Shared Link

 

(sorry if this is all obvious stuff to you - I'm not familiar with corn issues)

1desperateladysaved Proficient
1desperateladysaved
Posted

SCD lifestyle has some no grain recipes to help you out.   That is a website This diet was created to help heal people with celiac that were not otherwise healing.  I grind my own nuts and use them for muffins, pancakes, and cookies.  I also have the book Breaking the Vicious Cycle   Intestinal Health Through Diet.  by Elaine Gottschall B.A. M. Sc. where I get many recipe ideas.  I am not sure if I have trouble with all grains or not, but I feel this food is very filling and nutrient dense.  Even my non celiac children really like it.

bartfull Rising Star
bartfull
Posted

The candy most likely had corn syrup instead of sugar.

 

Daisy brand cottage cheese has nothing evil in it. I have used it and not only did I not get sick, but it tastes great.

 

Yes, teabags often contain corn. They use cornstarch to dry the paper. Loose tea and a teaball works.

 

And the rice could well be "polished" with corn starch. I use Uncle Ben's and it has no corn at all. I've never had a problem with it. I DID buy the store brand once when they were out of Uncle Ben's and sure enough, I got sick from it.

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Well Seems I have no clue!! The only thing I drank today was water, I havn't had anything to eat all day! Nothing!! And now my face is starting to swell just a bit! Not bad. I can feel it!! Will a bite of corn in Cottage Cheese bother me this long? Thanks for the tips!! Yea who knew that Corn would be in Cottage cheese? I took one bite!! Was packing hubbs lunch. Pffttt So now what? I hope I don't swell anymore! This ticks me off!! 

bartfull Rising Star
bartfull
Posted

Getting corned is like getting glutened. Some have one reaction, some another. And those reactions can last a few hours or a few weeks.

 

But I'm wondering if something else is going on. I just googled causes of facial swelling and a Livestrong article said that hypothyroidism can cause it. And of course we all know that many celiacs have thyroid problems.

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Thank you Bartfull, Yes my Dr. Always checks my thyroid, I have a appt. soon I will ask him to check again. I also wonder if it is environmental I run a craft shop for the month of Dec. It starts the day after thanksgiving. The last few days I have been in the wood heated garage where they make Grave Blankets and such. I am usually in the Craft shop. Where there is a different kind of heater. and not all the pine stuff being cut and thrown. Maby I am grasping at straws. I am not sure. But I will have my Dr check my thyroid, and I have also learned that there is a test they can do for a corn intolerance , I am sure there is one for a rice intolerance , But it is right at the holiday season! Any Dr. he sends me to will give me an appt. for after the hoildays. If I get any worse I will go to the ER. I have decided to let them figure it out.. I am so frustrated!!  And you know who is so very busy making stuff for my craft shop, Afraid to eat and or drink anything! I am sick of being allergic to everything! Ughhhh.. I know so many feel my pain! Thank you everyone! For all your help! 

frieze Community Regular
frieze
Posted

Thank you Bartfull, Yes my Dr. Always checks my thyroid, I have a appt. soon I will ask him to check again. I also wonder if it is environmental I run a craft shop for the month of Dec. It starts the day after thanksgiving. The last few days I have been in the wood heated garage where they make Grave Blankets and such. I am usually in the Craft shop. Where there is a different kind of heater. and not all the pine stuff being cut and thrown. Maby I am grasping at straws. I am not sure. But I will have my Dr check my thyroid, and I have also learned that there is a test they can do for a corn intolerance , I am sure there is one for a rice intolerance , But it is right at the holiday season! Any Dr. he sends me to will give me an appt. for after the hoildays. If I get any worse I will go to the ER. I have decided to let them figure it out.. I am so frustrated!!  And you know who is so very busy making stuff for my craft shop, Afraid to eat and or drink anything! I am sick of being allergic to everything! Ughhhh.. I know so many feel my pain! Thank you everyone! For all your help! 

have you tried an antihistamine?

cyclinglady Grand Master
cyclinglady
Posted

I agree with Frieze.  My first line of defense for allergies is Benedryl (or generic version).  I keep the kind that dissolve under the tongue with me in my purse.  

NoGlutenCooties Contributor
NoGlutenCooties
Posted

I also wonder if it is environmental I run a craft shop for the month of Dec. 

 

I think you may be onto something there.  I tend to be very sensitive to anything smelly and am allergic to dried flowers - they make my eyes red, itchy, and puffy.  Fresh cut wood, markers, glue... all are pretty much a guaranteed headache for me.

WestCoastGirl Apprentice
WestCoastGirl
Posted

I really don't think it's the rice.

 

Have you considered lactose intolerance?

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Well I don't think it is lactose. I can go months without it. I just dont eat much cheese and drink much milk. can't tell you the last time I drank milk. but anyway. I think it is the environment. I should of known. I will still have the Dr. check my thyroid. 

WestCoastGirl Apprentice
WestCoastGirl
Posted

Well I don't think it is lactose. I can go months without it. I just dont eat much cheese and drink much milk. can't tell you the last time I drank milk. but anyway. I think it is the environment. I should of known. I will still have the Dr. check my thyroid. 

Right, but the thing is you did eat cheese the day you swelled, right? Not trying to talk you into it, LOL. Just putting it out there. Good luck with your thyroid test!

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Right, but the thing is you did eat cheese the day you swelled, right? Not trying to talk you into it, LOL. Just putting it out there. Good luck with your thyroid test!

Might have ... Not sure ! I don't remember... I will keep an eye on that also, Just to be sure,  Thanks :) So far all my thyroid tests have been negative .... I think I will eat Rice tomorrow and see how it affects me. Just to rule it out. Ya never know. 

WestCoastGirl Apprentice
WestCoastGirl
Posted

Good luck and I hope you figure it all out and feel better! We really are like scientific experiments on ourselves in this quest. Eliminate this, try that...It's the only way to know what we can eat and what we can't.

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Ok last week alot of chicken and potatoes. No swelling, yesterday I had a chicken salad for Lunch, I didn't eat breakfast, I had a lil steak for dinner with some left over steamed Broccoli , gluten-free quinoa.  Bam snoring thru the night and woke up with a swollen face. I did read not very many are allergic to Quinoa. Do you think it could be the beef? I read this Open Original Shared Link It says :

 

Digestive Symptoms:

  • Abdominal pain
  • Indigestion
  • Nausea and vomiting
  • Diarrhea

Respiratory Symptoms:

  • Runny nose
  • Stuffiness of the nose
  • Sneezing
  • Watery eyes
  • Coughing
  • Asthma (wheezing)

Cutaneous Symptoms:

  • Swelling and itchiness of the skin
  • Lip, tongue and throat swelling
  • Hives

Anaphylaxis is a more serious complication that cannot be disregarded. This will begin with the swelling of the face, rapidly progressing and affecting the entire body. Without proper medical attention anaphylaxis will end up into a life-threatening anaphylactic shock.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how much gluten do I need to eat before blood tests?

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for...
    2. catnapt
      - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how much gluten do I need to eat before blood tests?

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I...
    3. trents
      - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Accuracy of testing concerns

      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal.
    4. Theresa2407
      - Theresa2407 replied to chrish42's topic in Doctors
      4

      Doctors and Celiac.com

      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one. We have held yearly conferences with continued education classes. We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott. In those many years we may have had 2 doctors attend. We sent them information, with no response. I talked to...
    5. Scott Adams
      - Scott Adams replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,254
    • Most Online (within 30 mins)
      7,748
    Christie Fassel
    Newest Member
    Christie Fassel
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      Accuracy of testing concerns

      By trents · Posted

      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
    • Scott Adams
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.