Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gained Over 60Lbs And Cant Loose It.


Cindy Anderson

Recommended Posts

Cindy Anderson Newbie

I was diagnosed 7 months ago at the age of 40 and I have gained 60 lbs. Little more complicated. I also was diagnosed with anorexia because I did not like food this is how they found out that I was celiac. I am eating more. Very diligent on the no gluten. Working on gluten in bandaids and make up and such now. But I am so frustrated and depressed about the weight. I have been added on iron for low iron, I have been put on a multi due to low nutrients, I have been put on vit d 5000 a day, I have been put on fiber and a stool softener because I am constipated all day. They have checked me for my thyroid it is just fine. They are now also checking my heart because I have developed an arrhythmia and either have signs of just had a small heart attach or on the verge of one. How long does it take a body to heal before I can start leveling off on the weight and feeling better. ANy thoughts. Oh I just had double food surgery in Feb. so the exercise has been a slow process but I move more than I did when I did not have the foot surgery.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gary'sgirl Explorer

Hey there Cindy, :)

 

I really think that with the weight issue it's just depends on the person and what all is going on inside the body. I have gained a lot of weight and it has all been mostly over the last two years when I have barely been able to eat. Just to try to understand what my body was doing, I weighed myself several times when I was so sick that all I could tolerate was broth to eat, and on two separate occasions of only eating (well, I guess it's actually drinking :) ) broth I gained 7 to 10 pounds. Now if that doesn't prove that it's not all about caloric intake then I don't know what does! :blink:

 

My doctor told me that when your body is so damaged and trying to heal itself in an effort to protect your cells it will surround each cell with fluid, and that can make you "gain" weight really fast, but it's not true weight in the same way that, say, gaining "fat" is.

I don't completely understand it, but my sister who has had some really bad health problems had this happen to her and she gained a lot of weight, but over the past couple of years she slowly has been getting better, and she is smaller that she has ever been. I think when she really gets well completely she probably should gain a little bit back. 

 

All that to say, just don't give up, and don't let the weight gain get you down if you can help it. :) I try to look at it as just a part of this process to my body healing and I try, though hard at times, to not put any time constraint on myself. I don't know if that helps you at all, but I hope you can find some encouragement in it. :) But if not know that your not the only one. ;)

 

Hang in there and don't lose hope!

cyclinglady Grand Master

As long as your are eating healthy and not getting even a tiny bit of gluten into your diet, your body weight should eventually level off.  Now, you should not be consuming more (or even less) that the recommended calorie amounts for your height and age (google for calorie count for you).  

 

You didn't mention how damaged your intestines were.  If you were a Marsh Stage III or IV, that can explain the constipation issues (no villi to push that food through!)  It takes time to heal villi!

 

Think about gentle swimming or water aerobics for exercise, provided your doctor approves it (e.g. current heart issues).  

 

It took you years to get sick and it will take a few years to get better.  Please be patient and embrace the new healthier you!  

  • 2 months later...
disham Newbie

I have been diagnosed with Celiac for a little over a year now, and I also have gained more weight being on a Gluten Free diet. It's EXTREAMLY FUSTRATING. I have always been over weight due to a Thyroid issue but with meds I have been able to keep it somewhat under control and have stayed healthy other then the weight issue. Now I feel like its a bigger battle and I hate it so much. This weight gain is really scaring me.

 

If you too, have experienced weight gain what have you done with the diet to help it? Could really use some insight.

 

Dawna

w8in4dave Community Regular

Try eating a more natural diet like eating Fresh veggies and Meat instead of a bunch of gluten-free pre packaged foods. Alot of gluten-free pre packaged foods have alot of corn in it. If we eat to much of it. Guess what it does? It makes us gain weight. Since I have been corn intolerant it makes it so much easier to eat. Fresh fresh fresh! :) Just a suggestion.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,671
    • Most Online (within 30 mins)
      7,748

    Paul1567
    Newest Member
    Paul1567
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.