Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Supplements


jasonD2

Recommended Posts

jasonD2 Experienced

Hi- I just had followup tests and all my food sensitivities have diminished dramatically since going gluten-free and also taking digestive enzymes and intestinal health supplements. My thyroid panel looked ok and negative for Hasimoto's, but my T3 thyroid is low and my adrenals are under performing so my doc put me on some supplements to treat that.  Thing is the supplements make me very bloated and gassy.  One supplement that has been a life saver is activated charcoal. i take it with foods i know will cause gas (even dairy if its in a dish) and it really helps.  If i take activated charcoal with these new supplements or maybe 20 min before i take the supplements it should help with the gas but could it possibly affect the efficacy of ingredients in the supplements?  would appreciate any input.  

 

Also my Vit D has been low for a while so I am now taking 10,000 IU daily - doc feels that could also be contributing to my dysbiosis and GI problems.

 

thanks

 

Jason


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Wow!  That seems like a lot of Vitamin D!  I'm deficient too, but only take 2,000 i.u./day.  I would cut back on the Vit. D.  It will build back slowly.  Remember, Rome wasn't build in a day! 

 

I'm always leary about exceeding "normal" standards on supplements without a doctor's approval or supervision.  

 

The charcoal from what I have read and what my doctor said, that it can interfere with absorbing good nutrients.  It's to be used only sparingly.   If you are getting lots of gas, then you shouldn't be eating foods or taking supplements that cause it.  Gas can be a symptom that something is wrong.  Listen to your body.

 

You were diagnosed with many food intolerances and unfortunately, they don't always go away (I feel for you there since I'm allergic to milk, and intolerant to garlic/onions, eggs, mushrooms, nuts and now Xanthan Gum.)  My food allergies and intolerances have been with me years and years before my celiac disease diagnosis with the exception of the Xanthan Gum and they haven't dimished since going gluten free.  

 

Finally, when my doc (MD) prescribed supplements, we always took baby steps when I was introduced to them.  For example, take one pill every other day, and then daily and then increase to two a day.  Stopping or cutting back down when symptoms develop.  He also recommended stopping all supplements for a period of a month to give my body a rest.  Also, I'd always split a multi- for better absorption.  

 

Hope this helps!

pricklypear1971 Community Regular

From what I've read about activated charcoal it binds everything...which is why some people use it after a glutening to relieve symptoms. I doubt it's a good idea to take it on a regular basis if you already have nutrient absorption issues.

I understand you're trying to relieve distress, but from what I've read, charcoal probably isn't a long term solution.

jasonD2 Experienced

Well my food sensitivities have greatly diminished - probably do to healing my gut and taking digestive enzymes and HCL with all my meals.  I use the charcoal when im in situations where i dont want to be bloated (i.e. date, social, etc).  Problem now is i have supplements i need to take but they are very bloating and im not sure what else to do.  As for Vit D- it is non toxic and you can take 50,000 IU's a day - im just ramping up since im insufficient and my doc said 10,000 a day is fine.  i will drop to 5000 in the summer when im out in the sun more 

cyclinglady Grand Master

Isn't it 50,000 i.u. per week for about 8 weeks?  I'm not a doctor, but your current dosage seems excessive.

frieze Community Regular

Vit D, suggested 1000 IU for every unit of 10 you want to raise it....10000 is probably a little heavy, but shouldn't be problematic.  Take that routinely, myself.  you make that much with healthy skin exposure to the sun.

cyclinglady Grand Master

Vit D, suggested 1000 IU for every unit of 10 you want to raise it....10000 is probably a little heavy, but shouldn't be problematic.  Take that routinely, myself.  you make that much with healthy skin exposure to the sun.

My bad!  I mis-read and thought Jason was taking 50,000 per day which I really did think was excessive.  Thanks for the clarification.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jasonD2 Experienced

The RDA is 2000 IU a day but you can in theory go up to 100, 000 IU a day without any ill effects.  My doc and i discussed this at length. it just depends what the intent is. Vit D can be megadosed for therapeutic reasons or just to get back to a level of sufficiency 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      27

      My journey is it gluten or fiber?

    2. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.