Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Documentary Show


JenM

Recommended Posts

JenM Apprentice

There will be an episode of Mystery Diagnosis on The Learning Channel dealing with Celiac this week. (I think it's Thursday, but I'm not sure.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kevsmom Contributor

Mystery Diagnosis - Like Mother, Like Son will air on Discovery Health Channel on October 28 at 8:00 p.m. and October 30 at 5:00 p.m. It is about a child discovered to have Celiac Disease.

celiac3270 Collaborator

Discovery health channel--is that different from the regular Discovery Channel?

nettiebeads Apprentice
Discovery health channel--is that different from the regular Discovery Channel?

<{POST_SNAPBACK}>

Yep, unfortunately. Sometimes they will put things on the regular Discovery or TLC from the health channel to promote the health channel, but not on a regular basis. It costs way too much for me to extend my cable to include the health channel, darn it. But a friend at work saw that program already and told me about it (and this was after I had a fiasco at a seminar where the meal was provided, banquet style). He said that the mother had celiac disease, didn't realize that her boy had it too, as he was asymptomatic. But he did have learning/memory problems. It was because of that that he was dx with celiac disease. My friend said that she was feeding him healthy foods, but starving him at the same time because of the malabsorption issues. At least ONE person in my office has a better understanding of what I can experience if glutened.

elonwy Enthusiast

My boss saw it, told me all about it. It was cool, I think she understands it alot more now. She's been cool about it but has been hinting that I've been kinda hypochodriacing a little. I flipped out at someone cause they were eating a sandwich and just walked up and put thier hand in the bag of Cheetos I was munching on, I just gave him the cheetos. She thought I was overreacting, and now she's like "wow, its really hardcore and they think lots of people have it" So its getting out there, slowly.

jrom987 Apprentice

Thank you! I just set my TiVo to record that. :D

celiac3270 Collaborator
Yep, unfortunately.  Sometimes they will put things on the regular Discovery or TLC from the health channel to promote the health channel, but not on a regular basis.  It costs way too much for me to extend my cable to include the health channel, darn it.  But a friend at work saw that program already and told me about it (and this was after I had a fiasco at a seminar where the meal was provided, banquet style).  He said that the mother had celiac disease, didn't realize that her boy had it too, as he was asymptomatic.  But he did have learning/memory problems.  It was because of that that he was dx with celiac disease.  My friend said that she was feeding him healthy foods, but starving him at the same time because of the malabsorption issues.  At least ONE person in my office has a better understanding of what I can experience if glutened.

<{POST_SNAPBACK}>

Aww...darn.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

I just watched that! I should've recorded it! Those catatonic seizure like episodes the kid had are like the ones I had as a child... they tested me for epilepsy and dx it as "non specific seizure disorder" Wild...

stef-the-kicking-cuty Enthusiast
Those catatonic seizure like episodes the kid had are like the ones I had as a child... they tested me for epilepsy and dx it as "non specific seizure disorder" Wild...

I couldn't watch it unfortunately. But I'm starting to get interested. What's that? Catatonic seizure like episodes...? testing for epilepsy...? I didn't know, that was possible. Waaay long ago in germany I once had a blood test and my doctor told me, that I have to be careful not to get an epileptic attack??? (not sure what you call this in english???) What's this? And how could he find out with a normal blood test??? Weird...

Guest nini

it's hard to describe... in my case I had periods where I would "zone out" where I was aware of everything going on around me but I couldn't respond at all, and outward appearances looked like I was daydreaming or just not paying attention... but I also had episodes where I would involuntarily jerk all over for a few seconds and forget everything I was saying right before it happened.

Neurological disorders are now being recognized as being connected to celiac and gluten intolerance, the boy on the show didn't have any digestive symptoms, only neurological ones.

stef-the-kicking-cuty Enthusiast
and outward appearances looked like I was daydreaming or just not paying attention...

Sounds like me, but I never actually "zoned" out!

cornbread Explorer
Neurological disorders are now being recognized as being connected to celiac and gluten intolerance, the boy on the show didn't have any digestive symptoms, only neurological ones.

<{POST_SNAPBACK}>

This is great that they chose to showcase smoeone with neurological symptoms. I find it hard for people to comprehend (believe) how much gluten effects my brain. I think you say food intolerance and people just figure if you eat too much of that food you'll have to run to the bathroom. FOr me it's nothing like that. It's good that they are shattereing the celiac myth of it just being a GI problem.

ianm Apprentice

I had few gut issues, it was all weight, mental and fatigue issues. The brain fog would get so bad I was like a zombie sometimes.

  • 4 months later...
ms-sillyak-screwed Enthusiast

Did this show ever air again?

debmidge Rising Star

If you go to the Discovery Health Channel website, offshoot of Discovery Channel, they offer you a chance to find out when a show will re aired; and enter in the title of it and they'll email you when it's on next time.

D.

Guhlia Rising Star

It's going to run again April 9th.

ms-sillyak-screwed Enthusiast

Guhlia -- Thank you. I'm going to tune in...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    2. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      12

      gluten free cookie recipes

    4. - Florence Lillian replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fermented foods, Kefir, Kombucha?

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,910
    • Most Online (within 30 mins)
      7,748

    probinson3870
    Newest Member
    probinson3870
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
    • Florence Lillian
      I have had celiac for many years and still had terrible digestion. I cook from scratch, never eat anything with gluten ( A Gut that needs special attention seems to affect many who suffer from celiac) .  I made my own Kombucha, it helped my Gut much more than the yogurt I made but I still had issues. Water Kefir did nothing. As a last resort I made MILK Kefir and it has really started healing my Gut. It has been about 2 months now and I am doing so much better. It was trial and error getting the right PH in the Kefir ferment that agreed with my stomach, too little ferment, too much, I finally hit the right one for me. Milk Kefir has the most probiotics than any of the other. I can't find my notes right now but there are at least 30 probiotics in Kefir, Kombucha has about 5-7 and yogurt around 3 if I recall correctly.  I wish you all the best, I know how frustrating this condition can be. 
    • Charlie1946
      @cristiana Hi, thank you so much, I will look into those books for sure! And get bloodwork at my next appointment. I have never been told I have TMJ, but I have seen information on it and the nerve issue while googling this devil plague in my mouth. Thank you so much for the advice!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.