Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Man I Was Bumbed!

w8in4dave

By w8in4dave
in Coping with Celiac Disease

Recommended Posts

IrishHeart Veteran
IrishHeart
Posted

I guess if I were only interested in celiac (wheat, rye and barley), I would have read the first post in this thread and, seeing it was about corn, not read any farther. But that's just me.

 

Anyway, I'm glad for you that you have no further intolerances. :)

 

and....what I would give to "only" have celiac without "additional intolerances" or other AI diseases and complications.

(which seems to be more the norm than the minority around here)

 

.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


w8in4dave Community Regular
w8in4dave
Posted
  • Author

I know! My sentiments exactly! 

w8in4dave Community Regular
w8in4dave
Posted
  • Author

I completely agree with you about me making any statements concerning what a corn intolerant person may eat. That's not my area of expertise, as it were. And I apologize. I wouldn't have even read that post if it had been in a forum thread devoted to "other insensitivities/intolerances" etc. Corn intolerance is not Celiac Disease. Many believe they are soy, casien/dairy, corn, cheese intolerant. And I'm probably leaving some others out here. It's very unfortunate, and I'm not unsympathetic of them. I just don't have the time and energy to follow everything. I'd rather just focus on Celiac Disease. You know, wheat, barely, and rye.

 

I'm guessing, and I'll defer to you on this, that as with Celiacs, there's a wide range in degree of corn intolerance. Some Celiacs, I'd say most, can eat foods that don't contain any listed gluten ingredients. And others are so sensitive that they must take exteme measures to avoid any possible exposure, no matter how infinitesimally small and unlikely that may be.  

 

Because of my ignorance of corn intolerance, I took one look at Velveeta's ingredients and didn't see any obvious corn.  And then when I looked up the three were discussing, I still didn't see any actual corn in the finished products. Just because a culture is grown on a medium, doesn't necessarily mean there's any of that medium left in the finished product. For instance, from those same sources, it states that even when Maltodextrin is derived from wheat, no wheat protein is left in the finished product. 

 

But I digress from the business at hand. And that's me getting out of the corn business. 

 

Again, please accept my sincere apologies. I promise to butt out of any corn business from now on.

 

best regards, larry mac 

Certainly did not mean to cause a ruckus, I think this is all a learning experience to us all. I do have Celiac, I do have corn intolerance , I did not say hubbs used Velveeta he used some off the wall brand. I am so sorry If I offended anyone by posting this. Will try and stay on topic of Celiac. 

IrishHeart Veteran
IrishHeart
Posted

Certainly did not mean to cause a ruckus, I think this is all a learning experience to us all. I do have Celiac, I do have corn intolerance , I did not say hubbs used Velveeta he used some off the wall brand. I am so sorry If I offended anyone by posting this. Will try and stay on topic of Celiac. 

But hon, you ARE on topic. You did not offend anyone.

Do not let one person's comment cause you to feel as if you did something wrong.

If the moderators of the board did not move it out of the coping section, then we feel it's a coping issue.

You're still new at this and you were telling us how you coped with yet another new hurdle.

Am I right?

 

Please, do not give it another thought!

You got supportive replies and that's the whole point.

 

All's well that ends well. ;)

w8in4dave Community Regular
w8in4dave
Posted
  • Author

OK :) To stay on topic. I will now say being corn intolerant and Celiac and Lactose intolerant. I am considering the Paleo diet. I call them Doits :)Not Diets.  I am so tired of looking at labels and trying to figure out what is Corn and what is not.I am no scientist.  I think it will be easier for me to just not eat processed. I think all I have to give up besides processed is Rice & Potatoes , Ohhh and Beans ...I had a beginners Paleo book need to look it up. Beans and Rice <- my fav! Soooo hmmm .... Maby Monday will be my day? Eat the rest of the rice I cooked yesterday, maby have Beans and Rice for the last time :) but I have got to do something. Maby this is the way to go? This processed cheeses and Processed Cream of soups and proccessed chips and processed processed processed.... Sick of reading labels and having reactions. I know we read it here all the time. Sick and tired of being sick and tired! I have got to do something. This will be my next thing. 

 

TY IrishHeart I will try and keep that in mind. Cannot imagine being miss DX'd for 25 years! 

GF Lover Rising Star
GF Lover
Posted

Wendy,

 

Why not consider just dropping all processed foods for now.  You don't know that rice and beans are a problem for you.  Many of us can't eat a lot of processed foods. I get some cookies once in a blue moon but I try to keep it all one ingredient food choices.  This is much easier to do than cutting out items that you don't know if you have a problem with or not.  It is also much healthier. Do this for a good 2 months and see how you do.  You can address a possible additional intolerance at that point if your still having problems.  I know others may say to limit everything now and add back in but the corn in processed food seems to be your problem.  

 

Colleen

w8in4dave Community Regular
w8in4dave
Posted
  • Author

TY Colleen, 

 That may be easier than going on Paleo, And for 2 months sure is doable! I do know corn is a problem for me , there is no question about that. I was cooking last night and was reading ingredients and looked up and sure enuf something was corn derived so I ended out just having Chicken. Thats when it hit me about the processed stuff. For some reason it just struck me as Paleo. But I guess you have a good point. I LOve Beans and Rice :) I wouldn't have to give them up :) 2 months thats a deal! See what happens. If I am still suffering from "Something" then I will take rice away. Only because I eat more rice than beans and potatoes. for 2 months. If still problems I will cut out Potatoes. But I have a feeling just cutting out Processed will do ALOT! Thanks! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

I agree with Colleen. Before you go all caveman, ditch anything from a package. Use my 5 ingredient rule: If the label has more than 5 ingredients (and I cannot pronounce half of them and even my chemist hub shakes his head and makes that face like "er, that's not food, that's just chemicals")  LOL

then, I don't eat them 

 

And for what it's worth, I have been on a primal diet for 7 weeks,....it's not horrid, but let's just say....... I still drink vodka.  :lol: 

 

Keep your rice and beans if you can!  ;) 

GottaSki Mentor
GottaSki
Posted

I agree with Colleen and Irish....ditch everything processed before removing other foods.

w8in4dave Community Regular
w8in4dave
Posted
  • Author

TY I think thats exactly what I am going to do :) I like to take the advise of the ones who have been there done that. As of today I am no processed foods :) for 2 months and see where that gets me :) I appreciate all the help in this :) 

GF Lover Rising Star
GF Lover
Posted

Wendy,

 

Glad to hear you are giving it a shot.  You have learned so much already and the corn intolerance is very difficult to deal with (just ask Barty) and so many processed foods have corn deriviitives.  I'm not eating anything processed right now either (different reason) so we can do this together  :)

 

Colleen

bartfull Rising Star
bartfull
Posted

Yeah, I'm still eating some processed foods. I went without them for a long time and when I finally found gluten-free/corn-free ice cream and gluten-free/corn-free potato chips, I jumped on them.

 

As a matter of fact, I found a new (to me) brand of potato chips the other day. The health food store was out of Kettle Brand but they had Boulder Canyon Olive Oil chips. Now, I love Kettle Brand but they are incredibly greasy. I mean if you tip the empty bag the greas will actually drip out! These Boulder Canyon chips are not as greasy and even if they were, we all know olive oil is good for us. So yeah, I'm still getting the salt and the calories, but I don't feel quite so guilty. And they are yummy. :)

w8in4dave Community Regular
w8in4dave
Posted
  • Author

It's a deal Colleen :) 

 

Bartful I do have some chips I like , They are "Better Made" made with cotton seed oil/ Palm oil and sea salt. I will miss them for a while but Ohhh well! I will get over it for two months. At least it's not in the middle of summer where there are partys all the time. This is a good time to do this. 

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Ohh no I just read where Cotton Seed oil is not good for Celiacs Pfftt!

KCG91 Enthusiast
KCG91
Posted

I agree with Colleen. Before you go all caveman, ditch anything from a package. Use my 5 ingredient rule: If the label has more than 5 ingredients (and I cannot pronounce half of them and even my chemist hub shakes his head and makes that face like "er, that's not food, that's just chemicals")  LOL

then, I don't eat them 

 

And for what it's worth, I have been on a primal diet for 7 weeks,....it's not horrid, but let's just say....... I still drink vodka.  :lol: 

 

Keep your rice and beans if you can!  ;) 

Yesss the five ingredient rule looks like something I can do! I had a week of rehearsals, performances and late nights which meant living mostly on the only packet of crisps in the vending machine I knew were gluten-free. And now I have flu for the first time in five months. I think my body would appreciate the five ingredient rule... 

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Yesss the five ingredient rule looks like something I can do! I had a week of rehearsals, performances and late nights which meant living mostly on the only packet of crisps in the vending machine I knew were gluten-free. And now I have flu for the first time in five months. I think my body would appreciate the five ingredient rule... 

Do it KC :) 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    2. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread

      Your concern about certified gluten-free cricket powder is completely valid, as cross-contamination in both feedstock and processing is a real issue. Currently, the availability of certified gluten-free options is limited, but brands like Chapul and Entomo Farms, which I believe have offered products processed in dedicated facilities and labeled gluten-free...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,542
    • Most Online (within 30 mins)
      7,748
    CC324
    Newest Member
    CC324
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.