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Doctor Unable To Explain, Please Help


dartmania2002

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Gemini Experienced

It would be helpful to know if the elevated test was the tTg or the DGP?  I asked that question in my post previously and the answer makes a big difference as to what may be going on.  Again, if the doctor has not run the DGP and only the tTg, that is no indicator of dietary compliance.

 

Rashes are caused by many things and it could be from a contact allergy.  A good dermatologist could biopsy the area to tell if it is DH, so don't assume it is until you look into it further.


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dartmania2002 Newbie

My igA is high while my igG My doctor seamed surprised and said that he didn't understand why one was so high and the other so low. At this point he has me going for a breath test as well as checking the H.pylori again. I am also going for more bloodwork.... He appears as confused as me as to what in the world is going on here.

I also had him look at my skin for Dermatitis herpetiformis and he was unsure about that as well, but did write me a script for the Dapzone, but told me to refrain from using it until my Dermatologist gets back to me about my biopsy of the area.

anand Newbie

Have u done a intestinal permeability test... U may want to do it and set a baseline for it also....

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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