Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Cutter

silk

Recommended Posts

silk Contributor
silk
Posted

My three daughters and I have Celiac disease, as well as at least two of our grandchildren. I have been gluten-free for about 7years and my daughters have for about 3 years.  My oldest daughter, who has 4 children (two w/ celiac and we strongly suspect that the other two do as well), recently discovered Gluten Cutter.  She says it is the next best thing to sliced bread :wacko: and says she is 'beta' testing it by taking it and ingesting as much gluten as she can.  Beer, donuts, pizza.  You name it.  She says it works wonderfully well and has given it to the two known celiac children so that they can go back to eating the foods they love.  I tried to caution her that just because she is not actually feeling the ill effects of gluten, she is most definitely continuing to hurt herself and to do the same to her children and that the result could mean serious problems for her and her children for years in the future if not for the rest of their lives. Heavy sigh.... Curious to know what anyone else's experience with this miracle drug might be?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

Gluten Clutter is simply digestive enzymes.  There are many formulas of digestive enzymes and some are marketed specifically for gluten.  While they may help some folks tolerate gluten...they DO NOT prevent the autoimmune reaction to the consumption of gluten in those with Celiac Disease.  I would imagine they will have symptoms return and will have elevated celiac antibodies at their next annual testing.

 

There are drugs currently in clinical trials that may make it safer for those with Celiac to ingest some gluten...as in eat out without having to worry about CC, but those are no where near available at this point.  There is currently no treatment for Celiac Disease other than complete adherence to the gluten-free diet.

GottaSki Mentor
GottaSki
Posted

Thought I'd add a couple links:

 

Open Original Shared Link

 

Open Original Shared Link

 

A quick search should provide more info if you need to convince your daughter.  I searched "gluten cutter celiac".

 

Good luck :)

kareng Grand Master
kareng
Posted

My three daughters and I have Celiac disease, as well as at least two of our grandchildren. I have been gluten-free for about 7years and my daughters have for about 3 years.  My oldest daughter, who has 4 children (two w/ celiac and we strongly suspect that the other two do as well), recently discovered Gluten Cutter.  She says it is the next best thing to sliced bread :wacko: and says she is 'beta' testing it by taking it and ingesting as much gluten as she can.  Beer, donuts, pizza.  You name it.  She says it works wonderfully well and has given it to the two known celiac children so that they can go back to eating the foods they love.  I tried to caution her that just because she is not actually feeling the ill effects of gluten, she is most definitely continuing to hurt herself and to do the same to her children and that the result could mean serious problems for her and her children for years in the future if not for the rest of their lives. Heavy sigh.... Curious to know what anyone else's experience with this miracle drug might be?

 

 

Wow!  I was at the International Celiac Disease Symposium in Sept.  They spoke specifically about these OTC "gluten eating enyzmes".  The don't work.  There are some researchers developing one that is promising.  If she was in a real medical study, she wouldn't have extras to give others.  She would have to follow certain protocols and be seen by the researchers.

 

Is she getting these kids proper followup for Celiac?  Antibodies re-tested yearly?  Suggest she do that to prove that the GC is really helping.

 

 

Open Original Shared Link

 

Do supplements like GlutenEase (or Gluten Cutter, Digest Gluten Plus, Glutenase) offer protection against accidentally eating gluten?

We put no validity in these supplements. In fact, they may offer a false sense of protection when they provide no protection at all.

 

This is a good article that summarizes what I heard at the ICDS:

 

Open Original Shared Link

 

 

More info on the study in the US.  

 

Open Original Shared Link

BethM55 Enthusiast
BethM55
Posted

Thank you for the links and the information.  I carry GlutenEase with me, and take a couple when we eat out, as a 'just in case, it can't hurt and might help'.  After reading the articles, maybe I should save my money.  :blink:

GottaSki Mentor
GottaSki
Posted

Thank you for the links and the information.  I carry GlutenEase with me, and take a couple when we eat out, as a 'just in case, it can't hurt and might help'.  After reading the articles, maybe I should save my money.  :blink:

 

Digestive enzymes are a very good idea....my kids take them before eating out and I will when I am able to eat out again (other intolerances prevent me from eating in restaurants).  They can also be very helpful for folks that are healing and having a tough time with digesting food in general.

 

The danger for someone with celiac....is thinking digestive enzymes make it safe for direct consumption of gluten.

kareng Grand Master
kareng
Posted

Maybe I should clarify on the new drug that is being tested.  The doctors working on it say that it is not so that we can eat gluten again.  It is for those times, like travel, when you must eat out and you try to get gluten-free but there might be a tiny amount of gluten.  Also, it must be taken with a carbonated drink to work best.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


silk Contributor
silk
Posted
  • Author

Thanks very much to all of you for your replies.  I can't believe the girl is actually drinking beer and eating pizza.  She is normally very health conscious.  An avid runner.  Was a Vegan for a while. Dairy Free for a while.  Her choice but hard to see her take the gluten away from two of the kids and then give it back.  They trust her to make reasonable decisions about their health.  I would have a very hard time taking a pill and then trusting to take that first big bite of pizza for fear that I would be sicker than a dog within 15 minutes.  Again, thanks very much for your responses and the related articles.

w8in4dave Community Regular
w8in4dave
Posted

Ohhh my! I don't know If I could trust something like that. At least not without some scientific back up or studies or something. As interesting as it is but wow! 

luvs2eat Collaborator
luvs2eat
Posted

I took a long telephone survey years ago (PAID, I might add) about a new medicine that was being marketed as a pill that would allow you to eat gluten occasionally or would lessen the repercussions of eating gluten. She kept asking me if I would take such a medicine and I kept saying, "Absolutely not, and if you market this to celiacs who then THINK they can be well by lessening gluten, I would think that might be criminal!!!"

LauraTX Rising Star
LauraTX
Posted

I know a lady with celiac who takes gluten cutter when she gets glutened and claims it lessens the severity. I think she made that judgement after one use so I don't hold any merit to it.  It says on the box, prominently on the website etc that it is not for Celiacs.  What a shame for a parent to listen to misinformation and harm their child.

silk Contributor
silk
Posted
  • Author

What astounds me is that my girl is an educator.  Apparently intelligent. She came to the conclusion that the children were most likely Celiac based on the fact that I am and that they all share the same symptoms with me, although not to quite the same severity and extent that I do. And to the fact that those symptoms disappeared when they removed gluten from their diet.  Also, they do not have the other autoimmune issues that I do.  The biggest tell for all of us is the bloat and particularly for the kids and grandkids, the horrible, peel-the-paint-off-the-walls gas.  Since my daughter has been using Gluten Cutter, she has been laughing at how terrible her gas is.  HELLO!  Tummy doesn't hurt sweetie, but you can still clear the room at twenty paces?  Oh yes, this MUST be the wonderful cure we have all been waiting for!!!  Yeesh!  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748
    bigwave
    Newest Member
    bigwave
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.