Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

In Tears: Bad Doctor Saga Part 2


C-Girl

Recommended Posts

C-Girl Contributor

I got the most unusual call today after scheduling an appointment with another GI after my last Bad Doctor experience.

 

I had seen Doctor 2 after Doctor 1 diagnosed me for a number of reasons: doctor 2 was closer, doctor 2 was supposedly *the* celiac guy here and I just didn't like Dr. 1.

 

Dr. 2 said I needed an endoscopy, just as Dr. 1 did, but when I called billing to get estimates on my out of pocket costs, it was a full $1500 more than Dr. 1 to get it done by Dr. 2. Yikes! I figure, I'll just get the labs done by Dr. 1.

 

Dr. 1 then was BAD DOCTOR at my first follow-up appointment after the endo, and he made me cry.

 

Still having issues, still needing a Not Bad Doctor to care for me, I called and made an appointment with Dr. 2.

 

The nurse called me the morning of my appointment to tell me that because I had gone to another doctor, Dr. 2 would not see me. I asked why??? Oh "we don't bounce between doctors like that". I told her, but I only did it because your lab was 10x more expensive! They don't care! The doctor WILL NOT SEE ME.

 

Another M#$*(&#$ FU#$(*(*#$ doctor made me cry! I want to go stab him in the eye!!! I'm so tired of doctors reducing me to tears. What the holy hell is wrong with these people?

 

Can anyone recommend a doctor in the triangle, NC area who will NOT MAKE ME CRY? Or if he/she does, it will be tears of joy? Because I'd really like some tears of joy right now....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Maybe dr 1 would give you a referral? Send your records to dr 2? Tell them it's just closer to dr 2 so you would like to change? Maybe if dr 2 knows it's ok with 1?

C-Girl Contributor

Maybe dr 1 would give you a referral? Send your records to dr 2? Tell them it's just closer to dr 2 so you would like to change? Maybe if dr 2 knows it's ok with 1?

 

I sent my Dr. 1 records to Dr. 2 prior to the appointment time. I apparently hurt his delicate feelings by not following up with him and his overpriced lab. How could I know how much emotional investment that he had in cramming a tube down my throat? Maybe he'd been fantasizing about it for weeks and I denied him.

moosemalibu Collaborator

They clearly don't take you seriously as a patient. It shouldn't matter where your tests are performed. Doctors have colleagues and colloborate. They somehow have labeled you negatively. I know some doctors have issues with 'prescription seeking' people... but that is NOT what you are doing. So frustrating!! ((Hugs)) 

C-Girl Contributor

They clearly don't take you seriously as a patient. It shouldn't matter where your tests are performed. Doctors have colleagues and colloborate. They somehow have labeled you negatively. I know some doctors have issues with 'prescription seeking' people... but that is NOT what you are doing. So frustrating!! ((Hugs)) 

I was thinking the same thing, somehow I've been classified as a bad patient and now nobody wants to see me. So I guess I just figure stuff out through the internet now, eh? Thank god I have this forum.

KCG91 Enthusiast

The only possible logic I can think of for that decision is that Dr 2 doesn't want to base his diagnosis and treatment on someone else's work (am I correct in thinking that endoscopies, as with biopsies, sometimes miss things?).

 

Devil's advocate played, he just sounds like an a*se who is just out for the $. Really sorry for you :( *hugs*

ravenwoodglass Mentor

Sounds like one and two are both jerks.

If the first doctor diagnosed you and you just want follow up blood work to see if your antibodies are down your regular GP can order those tests. It does take a bit of time to heal and if you have other intolerances that are slowing down that process there isn't anything the doctors can do to help figure them out anyway.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

A lot of doctors have problems with patients seeking medical care elsewhere and not telling them, and for continuity of care reasons I can understand why doctor number 2 discontinued the patient relationship.  It doesn't have to have anything to do with drug seeking behavior (of course if that is present it complicates things) but if they can't keep track of what testing and treatments their patient is getting, they can't safely treat the patient, which can lead to ethical and liability issues.  Now their policy is strict, but I understand why it is there.

 

If you change doctors of the same specialty it is safest for you to stay with just one.  Bouncing between two without clearly communicating what each does can create an unsafe situation for you and increase your costs as things can be done in duplicate.  Hopefully your insurance company will pay for all the visits and not tag them as duplicate depending on what kind of payment policies they have.

 

I understand you went back to the Dr 1 because of the lower lab costs, but if you don't trust a doctor and they completely rub you the wrong way, fire them and do not go back.  Also, when lab costs are involved, typically you can find out what the preferred laboratory is for your insurance company and use them.  If the tests were more because they are running different or more thorough tests, perhaps you should get the more thorough ones done.

 

Now, you may still be able to see Doctor 2.  I would call up and ask for the same person that called you, and just tell them you are sorry, you were just trying to get the lowest cost for things, but if it is okay can you terminate your relationship with Doctor 1 and only see Doctor 2?  If you do this nicely they may take you back as a patient.

C-Girl Contributor

A lot of doctors have problems with patients seeking medical care elsewhere and not telling them, and for continuity of care reasons I can understand why doctor number 2 discontinued the patient relationship.  It doesn't have to have anything to do with drug seeking behavior (of course if that is present it complicates things) but if they can't keep track of what testing and treatments their patient is getting, they can't safely treat the patient, which can lead to ethical and liability issues.  Now their policy is strict, but I understand why it is there.

 

If you change doctors of the same specialty it is safest for you to stay with just one.  Bouncing between two without clearly communicating what each does can create an unsafe situation for you and increase your costs as things can be done in duplicate.  Hopefully your insurance company will pay for all the visits and not tag them as duplicate depending on what kind of payment policies they have.

 

I understand you went back to the Dr 1 because of the lower lab costs, but if you don't trust a doctor and they completely rub you the wrong way, fire them and do not go back.  Also, when lab costs are involved, typically you can find out what the preferred laboratory is for your insurance company and use them.  If the tests were more because they are running different or more thorough tests, perhaps you should get the more thorough ones done.

 

Now, you may still be able to see Doctor 2.  I would call up and ask for the same person that called you, and just tell them you are sorry, you were just trying to get the lowest cost for things, but if it is okay can you terminate your relationship with Doctor 1 and only see Doctor 2?  If you do this nicely they may take you back as a patient.

I had my records sent from dr 1 to dr2. He basically said he had nothing to offer that dr1 didn't, without having the courtesy to see me in person.

I wouldn't want to see him now, even if he would. I shouldn't have to apologize for my choices and am highly offended that you suggest I should apologize to doctor 2. Why? He should be apologizing to me. Why don't I have the right to try and save upwards of $900?

HavaneseMom Explorer

Hi Coffngrl,

I'm sorry to hear you had another bad experience with a doctor. He is obviously not the right match for you and I hope you will be able to find one that you like soon. I found this older thread that had recommendations for doctors in NC. There are a few mentioned, but I don't know if any of them are near you.

https://www.celiac.com/forums/topic/13214-north-carolina-doctor-looking-for-one/

Good luck and I hope you find the right doctor soon.

Gemini Experienced

I had my records sent from dr 1 to dr2. He basically said he had nothing to offer that dr1 didn't, without having the courtesy to see me in person.

I wouldn't want to see him now, even if he would. I shouldn't have to apologize for my choices and am highly offended that you suggest I should apologize to doctor 2. Why? He should be apologizing to me. Why don't I have the right to try and save upwards of $900?

You did nothing wrong. You have the same problem I did 25 years ago.........too many jerky docs who aren't helping you. You do not need any reason to switch doctors, other than trying to find the best person to help you with a diagnosis of for help with on going problems. Doctors are there to help and if they aren't, then you fire them and move on. I am sorry you have gone through this.......I know what that is like and it's discouraging to know this is still is going on 25 years later. Keep looking because there may be one that will be a perfect fit.

anti-soprano Apprentice

I drive 90 minutes into a major metro area to see my GI doc.  The doctors I saw in my town were idiots and missed the dx- even with an endo and blood tests looking for OTHER autoimmune diseases.  Gahhh.

 

Sorry you're having trouble.  Since I don't go to the GI often, I don't mind going to an absolutely thorough professional who I have to make a special trip for.  It's so very worth it to me. Hope you find a solution that makes you weep for joy!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,340
    • Most Online (within 30 mins)
      7,748

    Linda Whelan
    Newest Member
    Linda Whelan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      While a definitive causal link remains unclear, vitamin D's known role in immune modulation and intestinal barrier integrity suggests that it plays a significant role in the development and progression of celiac disease.  Reduced 25(OH)D levels are associated with celiac disease.  In celiac disease, gluten can damage these tight junctions, and vitamin D may play a protective role in this context. 
    • Ginger38
      I have posted a lot on here and find that the support , advice and information here is much more helpful than anything else.. ever. I am really tired of the back and forth advice in the medical community and I am beyond frustrated and over all of it currently. I will try to keep this as brief as possible. I have positive TTG IGA antibodies - and I have had these every time I have been tested. The first time they were positive I was told I did not have celiac and couldn't have celiac but I was gluten intolerant and to go gluten free. I did this for about 3-4 months, dedicated I might add, and I did feel better. However, my blood glucose went up drastically and since I was already pre-diabetic and insulin resistant already, I was then told to stop the gluten free diet and resume eating gluten as it would be better for my diabetes.I have been on a yo yo diet and roller coaster since between the gluten free and not gluten free. I decided to see a gastro doc and after him promising me I had celiac based on all my symptoms and positive antibodies but we needed that actual diagnosis in order to be treated correctly, and we just needed the EGD with biopsies to have that diagnosis, I reluctantly agreed to go fully on the gluten challenge for 8 weeks prior to having an EGD and colonoscopy, both with biopsies . The gluten challenge was miserable. At first I was horribly constipated, I gained 9 pounds during the challenge, had horrible swelling issues, terrible bloating, looked and felt pregnant, had rashes and itching, couldn't stay awake, had extreme brain fog, exhaustion, speech difficulties, palpitations, tachycardia , menstrual issues, had an insatiable hunger, mood swings, just all the things. All of this to get the tests and biopsies done and they looked "okay" .. so even though I was told to live like a celiac all of the sudden I am no longer at risk.. I am just gluten intolerant.  I also have uncontrolled diabetes that they feel is made worse by the gluten free diet, so again after all these tests, but having all the symptoms and still having positive antibodies I feel like I am stuck with the choice in regards to my health of addressing the diabetes or the celiac (still don't believe I am not actually Celiac).  So I have been having gluten off and on to try and manage my diabetes, even though most recently, because I have been so physically sick again (that can't be good for diabetes either right??)  with stomach pain, burning, diarrhea, stools that are yellow in color and contain mucus, nausea, some vomiting, sour stomach, I was told I need to just eat gluten free so my stomach will improve, and we will just put you on insulin - I don't want to go on insulin yet, and especially if I do not actually have to. I don't understand why I am backed in this corner of feeling like I have to choose to eat for my diabetes or my stomach, but not both, but I am over it.   So currently in regards to GI symptoms - I consistently have nausea, vomiting, diarrhea, abdominal pain, gas , bloating, reflux, sour stomach, yellow stools with mucus.  I am also exhausted and have been itching. I have been having increased swelling, pain, and horrible numbness and tingling, especially in my hands. I am also having an increase in relentless nightmares and night terrors. I have also been having chest pain and palpitations and tachycardia. I have even tried taking digestive enzymes to help break down gluten - (specifically the Gliadin X) and they just seem to make me feel worse. I have trouble with digestion of things like salads, beans, broccoli, etc. on a good day, and that is even worse when I have gluten on any kind of semi-regular basis.   I just can't keep doing this. Mentally, physically and emotionally I am just DONE. I already have a lot of stress in my life.. I am a single mom to a daughter who has her own health issues and is somewhat special needs. I need to be 100% to be what she needs from me, especially with all the running back and forth we have been doing to the doctors and hospitals. So I am no doctor... but I just don't think they are right about any of this. I truly feel I am celiac.. and either the damage just wasn't bad yet, or they just missed the area that has damage, or its all a precursor to full blown celiac (kind of like pre-diabetes/insulin resistance is for actual diabetes). I don't want to live miserable and feel bad all the time. I also don't want my diabetes to be so out of control I have major complications, and I don't feel like insulin is a great option if not truly needed. At this point, if I ever feel like I have a somewhat clear path of what I am dealing with,  I feel like I am looking at MONTHS to YEARS of trying to heal my body. Please help!
    • Ginger38
      No, I have not been checked for any other deficiencies or issues. No one will check these things since my EGD looked normal and there was no damage. I recently saw my gastro doc and it is just frustrating. I have diabetes, which is basically uncontrolled, and I keep being told, stop eating gluten free, because the gluten free diet is contributing to my diabetes worsening. Then I am told oh just eat gluten free and you can go on insulin, which I don't feel like is a good answer either. So I end up eating gluten because they tell me it's okay or that I should bc of my diabetes. I am so sick today - physically mentally emotionally - just tired of this roller coaster ride.  I am open  for any realistic advice... I feel like I get more support here than in real life 
    • somethinglikeolivia
      I will definitely be looking into this! Thank you so much! 
    • trents
      @N00dnutt, been there, done that! Cheers!
×
×
  • Create New...