Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Celiac?

Fenrir

Recommended Posts

GottaSki Mentor
GottaSki
Posted

Protein, Total, Serum=  7.9 g/dL  range=6.4-8.2

Albumin, Serum=4.5 g/dl    range 3.4-5.0

Bilirubin, Total=0.7 mg/dl     Range 0.1-1.2

Bilirubin, Direct 0.2 mg/dl  Range 0.0-0.2

Alkaline Phosphatase, Serum= 158 U/L    Range=50-136 H

AST (SGOT)= 39 U/L   Range=0-37 H

ALT (SGPT)= 87 U/L Range= 0-65 H

A/G Ratio= 1.32     Range=1.00-2.00

 

 

Makes me feel a little better seeing the numbers. They are high but not that much, not uncommon for people with Celiac disease to have liver enzymes 15-20 or so points high when they are loaded up on gluten. The labs were drawn in the afternoon and that morning I ate a couple of donuts and had a couple of gluten packed bars for a snack just before I got the Drs. Office since I wasn't expecting to get my blood drawn. 

 

Elevated liver enzymes correct with time gluten-free.  Mine were very high at diagnosis and came down at a consistent rate until they were normal.  They have lived at a nice "normal" low for about three years now.

 

Welcome to the club....with time those elevated liver enzymes become part of the puzzle and their decrease is comforting....at least it was for me.

 

Hang in there :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 66
  • Created
  • Last Reply
Fenrir Community Regular
Fenrir
Posted
  • Author

Well, starting to seem like i'm lactose intolerant or at least more sensative to it now than I was before. Really massive bloating and gas after eating a cup of yogurt.

 

I'm going to be miserable for a while when I go gluten-free, I eat yogurt and breat pretty much everyday.

GottaSki Mentor
GottaSki
Posted

Well, starting to seem like i'm lactose intolerant or at least more sensative to it now than I was before. Really massive bloating and gas after eating a cup of yogurt.

 

I'm going to be miserable for a while when I go gluten-free, I eat yogurt and breat pretty much everyday.

 

You will likely get your yogurt back -- try it again after six months gluten-free :)

Celiacandme Apprentice
Celiacandme
Posted

How your endoscopy/scope been scheduled? I'm glad you are starting to get some answers. Hope your scope is scheduled soon so you can go completely gluten free and get on the road to feeling better.

Fenrir Community Regular
Fenrir
Posted
  • Author

Unfortunately, all the GI groups around here are pretty busy so I don't get in until the 21st of April.

ezgoindude Explorer
ezgoindude
Posted

Unfortunately, all the GI groups around here are pretty busy so I don't get in until the 21st of April.

Quick question Fennir,

 

By change did you notice any stomach pain or differences in stool prior to them thinking your gallbladder was the cause?  After cutting it out any difference in shape, color, or consistency?

 

Lol, nasty that I'm even asking but I'm currently going through this battle myself in getting a diagnosis and my guts occassionally burning and just funky looking stool is throwing me off.  Only been gluten/milk free for almost 4 months.

Fenrir Community Regular
Fenrir
Posted
  • Author

Quick question Fennir,

 

By change did you notice any stomach pain or differences in stool prior to them thinking your gallbladder was the cause?  After cutting it out any difference in shape, color, or consistency?

 

Lol, nasty that I'm even asking but I'm currently going through this battle myself in getting a diagnosis and my guts occassionally burning and just funky looking stool is throwing me off.  Only been gluten/milk free for almost 4 months.

Well, yes, I have had light colored stools since before I had my gallbladder out. Still happens sometimes now. Also have floating poop frequently, Both of those can be caused by celiac or a gallbladder issues.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fenrir Community Regular
Fenrir
Posted
  • Author

My joints have been killing me the last couple weeks, particularly my knees. Can hardly make up stairs these days.

 

Two weeks until my biopsy. :(

cyclinglady Grand Master
cyclinglady
Posted

Hang in there!

GFinDC Veteran
GFinDC
Posted

Quick question Fennir,

 

By change did you notice any stomach pain or differences in stool prior to them thinking your gallbladder was the cause?  After cutting it out any difference in shape, color, or consistency?

 

Lol, nasty that I'm even asking but I'm currently going through this battle myself in getting a diagnosis and my guts occassionally burning and just funky looking stool is throwing me off.  Only been gluten/milk free for almost 4 months.

Hey EZ,

 

If you read up on having your gallblader removed you will find that the follow-on symptoms may include problems with diahrea and stool changes.  They say that tends to improve over time, like a year or so.

 

Open Original Shared Link

 

There have been quite a few people post on the forum about having their gallbladders removed prior to finding out they had celiac disease.  IMHO it's possible in some cases they may have been able to save their gallbladders if they knew about the gluten-free diet and began following it earlier.  The gallbladder reacts to chemical signals from the small intestine to discharge it's contents.  So if the small intestine is damaged and not sending those chemical signals the gallbladder is left helpless/up the creek.

 

Having your gall bladder out means the liver bile is continually being dumped into the small intestine instead of being held until needed by the gallbladder.  It's kinda similar to walking around with a full bladder and never urinating.  Eventually that is going to cause a problem.  If nothing else when it gets high enuff your eyes will turn yeller. :)

 

Of course if the gallbladder is already diseased/iretrievably damaged it needs to come out.  But it is worthwhile trying the gluten-free diet as a fix if that is not the case.  Once the small intestine heals and can make the chemical signals again, things may start working better in the gallbladder.

ezgoindude Explorer
ezgoindude
Posted

 

Thanks for the reply Fenrir!  I feel you on the joint pain,  mine is only located in the lower back at the moment. 

 

 

Sup GFinDC!  I should have added that I haven't had any surgery yet, heck, they haven't even suspected my gallbladder after the mysterious endoscopy......

 

What is really bugging me is I haven't had a "normal" stool in months, pretty much right before I started getting crazy symptoms beyond the IBS excuses.

 

The stool is the right shape but color is off,  always light brown/ligh green?/tan......

 

 

Its also annoying that I'm doing an elimination diet but not finding relief and what could be problems other than gluten.  For example, I've brought back bell pepper and onion this week, and do necessarily feel worse, you know? so I can keep eating them?  then you read accounts online and nightshade veggies are supposed to be the worst for you?

 

Sorry for the rants but I tend to use this forum in some ways to vent when its been 6 months of testing with little to no idea on what they want to diagnose me.

GFinDC Veteran
GFinDC
Posted

Thanks for the reply Fenrir!  I feel you on the joint pain,  mine is only located in the lower back at the moment. 

 

 

Sup GFinDC!  I should have added that I haven't had any surgery yet, heck, they haven't even suspected my gallbladder after the mysterious endoscopy......

 

What is really bugging me is I haven't had a "normal" stool in months, pretty much right before I started getting crazy symptoms beyond the IBS excuses.

 

The stool is the right shape but color is off,  always light brown/ligh green?/tan......

 

 

Its also annoying that I'm doing an elimination diet but not finding relief and what could be problems other than gluten.  For example, I've brought back bell pepper and onion this week, and do necessarily feel worse, you know? so I can keep eating them?  then you read accounts online and nightshade veggies are supposed to be the worst for you?

 

Sorry for the rants but I tend to use this forum in some ways to vent when its been 6 months of testing with little to no idea on what they want to diagnose me.

 

Hi EZGoingDude,

 

The thing about food intolerances is, they don't come in a one size fits all package.  I might be intolerant to ABC and C,  while you might be intolerant to X, Y and Z.  That's why elimination diets are so helpful, they reveal the food intolerances of the person doing the diet, not some random others.

 

II don't know how you are doing your elimination diet.  A good way is to start with a very small number of foods, often 5 foods, and then slowly build up from there.  Slow as in adding only one new food every 3 to 5 days.  If you add too many foods to quickly it wil confuse the results.

 

Starting off with the just 5 foods for two weeks you should see an improvement in symptoms.  If you don't have any change either you are intolerant to one or more of the 5 foods you started with, or there is some other issue going on.

 

Another common digestive issue for us is gut flora whackiness, or dysbiosis.  That's where probiotics can  be helpful.

ezgoindude Explorer
ezgoindude
Posted

Yea, after the blood tests come back I'm thinking of saving up for a food allergy test.... I caved and bought digestive enzymes to help the body, wouldn't hurt the gallbladder anymore, right? (haven't even checked that one yet....) 

 

What would be the recommended amount of probiotics daily?  the stores have it vary between 5billion to 200billion,  I bought 20billion thinking an average would be good.

 

Let us know about the biospy Fenrir,  from my endoscopy the doctor could see damage yet my biopsy shows healthy and normal........ getting nowhere!

GFinDC Veteran
GFinDC
Posted

Yea, after the blood tests come back I'm thinking of saving up for a food allergy test.... I caved and bought digestive enzymes to help the body, wouldn't hurt the gallbladder anymore, right? (haven't even checked that one yet....) 

 

What would be the recommended amount of probiotics daily?  the stores have it vary between 5billion to 200billion,  I bought 20billion thinking an average would be good.

 

Let us know about the biospy Fenrir,  from my endoscopy the doctor could see damage yet my biopsy shows healthy and normal........ getting nowhere!

 

Hi Ezgoing,

 

There aren't any set standards for amounts to take yet. 

 

Celiac Now (Harvard) probiotics, Prebiotics etc.

Open Original Shared Link

 

I have some that are 5 billion and some that are 10 billion etc.  The little buggers are going to multiply in your gut after all, so it's not critical I don't think.  But taking them every day for a while is good, so they can get established.

Fenrir Community Regular
Fenrir
Posted
  • Author

Well, only a few days until I have the colonscopy/EGD with biopsy.

 

I never would have expected to be excited to get a colonoscopy/EGD done but I just want to know what's wrong and get it fixed.

 

Knees continue to kill me lately, now headaches.

 

Hopefully this will be all over soon, because it seems to be getting worse.

Fenrir Community Regular
Fenrir
Posted
  • Author

Well, had the colonscopy and EGD with biopsies done yesterday. Went pretty well, wasn't as bad as I thought.

 

The GI doc says I probably don't have Crohn's which is good. Colonoscpy was negative for pretty much anything of cocern. EGD noted some reflux which I have had in the past but otherwise on visual looked fine.

 

Just waiting for biopsies to come back later in the week. She also did biopsies of the colon just because they were in there.

GFinDC Veteran
GFinDC
Posted

I hope they come up with some clear answers for you fenrir.  Waiting for test results sure is fun eh?  :)

Fenrir Community Regular
Fenrir
Posted
  • Author

Well, I wasn't expecting to get the results the next day but I it is official, I have Celiac Disease. 

 

I'm strangely happy about that, at least now I know what it is and it's not something worse. 

 

Colon biopsy negative so everything good there. 

 

Feels good to have a direction after 6 months of chronic pain and not feeling well. Good thing we figured this out as well, symptoms were getting worse. 

kareng Grand Master
kareng
Posted

Well, I wasn't expecting to get the results the next day but I it is official, I have Celiac Disease. 

 

I'm strangely happy about that, at least now I know what it is and it's not something worse. 

 

Colon biopsy negative so everything good there. 

 

Feels good to have a direction after 6 months of chronic pain and not feeling well. Good thing we figured this out as well, symptoms were getting worse.

Welcome to the club! Unfortunately, the secret decoder rings have been on back order for 2 years. :)

cyclinglady Grand Master
cyclinglady
Posted

Supply issues still??????

Welcome, Fenrir!

LauraTX Rising Star
LauraTX
Posted

Good to hear you finally have some answers, Fenrir.  Welcome to the "Nooooooo I don't wanna be in that club" club.  :)

Fenrir Community Regular
Fenrir
Posted
  • Author

Thanks for the welcomes.

 

This is the coolest uncool club that I never wanted to be a part of...... :P

1desperateladysaved Proficient
1desperateladysaved
Posted

Glad you are now ready to start your new gluten free life.  I am so glad you got a definitive diagnosis and so soon after the scope!

 

Dee

GFinDC Veteran
GFinDC
Posted

Wow, those were quick test results!

 

So, time to learn how to eat gluten-free then.  There is a whole new world of whole foods and gluten-free alternatives to explore.  It can be kind of fun to try out new foods that you may not have considered in the past.  Welcome to the 1% club Fenrir! :)

GottaSki Mentor
GottaSki
Posted

Welcome to the best club none of us ever wanted to join.

 

Good health awaits...cheers!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748
    Betty Siebert
    Newest Member
    Betty Siebert
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.