Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starting To Realize Hurt Feelings Aren't As Important As Personal Health


Nicole Thomas

Recommended Posts

Nicole Thomas Newbie

I know folks say it a lot on this board, but I feel it has to be said once again. I have a very big meat and potatoes kind of family. They do most things homemade and if you don't eat, feelings are generally hurt.

 

I was really nervous about yesterday, but I hadn't been to a family function since I went gluten free close to 6 months ago, so I decided to go anyway. I did eat before I left, but upon my arrival, my aunt (the hostess) was slightly annoyed when I said I couldn't eat most of what she made.

 

She assured me the ham was gluten free, and it was the only thing I touched (I maybe ate 3-4 bites before handing the rest off to hubby).

 

Later, she brought out her first ever homemade carrot cake, and once again I was asked if I'd like some. When I said no thank you, she got pissy about it and gave me a look that basicaly said 'it won't kill you.'

 

The rest of the family had cake while I sat playing with the dog. Family members made a point of telling me how wonderful it was and, once more, someone asked 'you can't have one bite?'

 

At this point I was frustrated and sorely disappointed. I looked at them and said no, I can't just have one bite. You know that peanut allergy this uncle has or this allergry you have? You get really sick from a little bit, right? Well, so do I.

 

That got them to shut up until I was getting ready to leave. Folks were commenting on how nice dinner was and I agreed. My aunt got moody again and said I couldn't say if the dinner was nice or not since I hadn't eaten much of anything.

 

I guess she was right, because the company wasn't very good either.

 

In any case, by the time I got home, I wasn't feeling well. This morning, I feel even worse and am certain I got glutened somehow.

 

I asked in advance if I could bring something, but she said no. This is the aunt I expect to understand me the most. I'm not sure if it was ignorance yesterday or what, but I now know family functions aren't for me. I'll go to barbecues and something that's outside, but I won't go in a house that has gluten. It's too big of a risk.

 

So, while I may end up hurting feelings, I can't afford to risk my health. Not anymore.

 

Your health is more important than keeping others happy. If they can't understand that this isn't some fad, then it's on them. You're the one who will be sick that night, the next day or even days after. Don't risk your health.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I will say that, if you have a basically nice family, it can get better.  We do hear about families where, if its not Celiac, they would find something else to complain about.  That situation won't get better.

 

For my family, I usually have all events at my house.  My sister might make a gluteny dessert. I like that because that is one less thing I have to make.   We get out dessert after all the other food is put away.  She has started bringing other things after discussing it with me.  But, anyway.... back to what I was trying to say.... It took a while, but people started getting it.  I just had to reinforce the gluten-free thing and show by example. I had to still show up and expose them to it. After time,  it just becomes normal.  With my hubs side, I either bring my food or eat ahead.  And always bring a snack.  We stayed too long and everyone started eating again....except me because I didn't bring anything.

w8in4dave Community Regular

Wow !! So sorry to hear you had a rough time. I don't ask if I can bring anything I just do it. I eat only what I bring. This is what I don't understand. People find out they have Celiac or are intolerant, They clean their cupboards , get new pots and pans. Get a gluten-free kitchen so they don't have to worry about stuff. Then they go eat at someones house and they get glutened. Even if the ham was gluten-free she has no idea how to "NOT" contaminate it. the pan it was cooked in the utensils she was using. who knows maby the seasonings? I bring my own dish to pass give myself a huge serving 1st then let everyone eles contaminate and I don't eat anymore of it. I do not eat from anyone eles dishes even if they swear they are gluten-free and in my case Corn free also. I will not take the chance. I make enuf mistakes myself I cannot trust anyone who is not Celiac to just whip something up and say here ya go it's Gluten Free. In time your family will start to understand. It is a huge health risk for you. I am so glad my family understands. They don't even try and feed me anymore. I just bring my own. My friends are the same way. They ask me what I can and cannot eat. I say "You don't worry about me! I will bring my own" . 

djl Newbie

Sorry you had a bad experience. I was diagnosed two months ago and at first it seemed to get a few family members very angry. Yesterday was our first holiday and in addition to the gluten free meal my brother's family cooked for me there was a variety of gluten and dairy free desserts available.

I found fighting with facts and information is better than getting loud (my family usually takes this road). But you're correct, if they don't get it that's their problem. When you start to feel better the thought of eating gluten again can be terrifying. Stick to your guns and eventually they'll get it.

Nicole Thomas Newbie

That's what I'm starting to think as well. I have a feeling it may have been the knife they used to cut the ham, or the cutting board or any number of small things. I want to be with family because we're close. And Karen was also right. My family is the type that will complain on one thing or another, i just happened to be the focus yesterday. I've found some amazing gluten free meals/snacks I could take along, so I'll be sure to do that in the future. That said, I am curious. Those of you who take your own dish, do you keep away from items that need to be heated? Or, do you risk using the microwave?

notme Experienced

we do the church dinner quite a bit, so i will make something that is gluten free, take some out and bring it in a separate container.  i never eat what's on the 'buffet' EVEN IF I BRING IT AND IT STARTS OUT GLUTEN FREE.  (true story:  i used to play a game with myself.  the Can't Eat THAT Game.  watch how fast things get contaminated.  crouton drops into the big bowl of green salad.  whelp.  can't eat THAT :(  somebody sticks the pasta spoon into the chili.  whelp.  can't eat THAT...)  it's over pretty quick, lolz, just bring your own so you don't starve to death or have to be sick for days on end.  and, if you happen to bring some of your dish home that is leftover, don't be tempted to eat it  :)  no, no, no!  :)

 

it does get easier  :)  it's a hard concept for people to understand, but eventually they ..........well........ actually, no, they still offer me up their food, but it is quickly followed with a "you're not gonna eat this,, are you."  NOPE!  smile big :D  move along ;)

GottaSki Mentor

I agree with -- it may get better with time.  Our extended family and friends took a bit of educating to the fact that "just a little gluten" was indeed slowly killing me. 

 

I think the last time I had someone treat me the way you were treated yesterday was at about a year and half gluten-free -- not counting new acquaintances -- I don't give a flying fig what new folks think...in fact people's reaction to my need to be completely gluten-free is often a good barometer for choosing new friends ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CaliSparrow Collaborator

I'm sorry some of your family members were inconsiderate yesterday. Back before I understood how vigilant I had to be, I sent an email to Original Pancake House to find out more about their "gluten-friendly" pancakes (I know, I know). They sent me the most impressive response. They explained all the reasons why they did NOT want me walking in their door. They went in-depth into how long flour hangs in the air and how they don't dedicate towels or utensils, etc. They went into detail on the many ways I could be cross-contaminated by their restaurant. They underlined and bold certain sentences for extra emphasis. I showed it to my mother-in-law. She asked if I would print it out for her and I did.

Before reading your post, I thought my husband's family broke the mold on the emotional intelligence scale but now I'm thinking my MIL passed around the memo! Before that she was frustrated when I couldn't eat her food. She derives pleasure from feeding her family.

Family can be complicated and sometimes it takes longer but eventually, the change (you) becomes normalized and people adjust. If someone doesn't adjust, they have a problem and it's not yours to solve! It took one or two of these situations for my health to weigh more than not hurting someone's feelings.

Experiencing another's reaction does serve as a nice built-in barometer for potential friendships!

I hope you feel better soon.

Monklady123 Collaborator

This was, and still is to some extent, something I wondered about. I guess I don't come from a family that's tied up in food issues, because I can't imagine any one of them getting angry or hurt if I didn't eat something they'd prepared. I'm sorry for those of you who do have family (or friends) like this. :(

Nicole Thomas Newbie

Thank you all so much. I'm still not feeling quite right today, but not as bad as yesterday. I hate how easily we can get sick as it really wears you down. Fortunately, it looks like this gluten reaction will only last 2-3 days before I'm back to where I was on Saturday.

GottaSki Mentor

Glad you are feeling better :)

kareng Grand Master

That's what I'm starting to think as well. I have a feeling it may have been the knife they used to cut the ham, or the cutting board or any number of small things. I want to be with family because we're close. And Karen was also right. My family is the type that will complain on one thing or another, i just happened to be the focus yesterday. I've found some amazing gluten free meals/snacks I could take along, so I'll be sure to do that in the future. That said, I am curious. Those of you who take your own dish, do you keep away from items that need to be heated? Or, do you risk using the microwave?

 

 

I will use the microwave or the oven.  I even try to bring food that is similar if possible.  Unless the microwave is really dirty, with food falling off the "ceiling" it shouldn't be a problem.  

NoGlutenCooties Contributor

I don't ask.  I do let them know that I will be bringing my own food - seems only polite to let them know they don't have to count on another person to feed.  And I bring my own.  If they don't like it, that's just tough nuggies for them.  If they argue, I make it clear - I either bring my own food or I don't go.  Period.

 

Also... are you sure the ham was gluten free?  I know some deli meat has filler crap in it that can have gluten - I have no idea about a whole ham, as I never eat them.  Anyone know if a ham can have gluteny fillers infused in it?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,815
    • Most Online (within 30 mins)
      7,748

    Mackenzie whitley
    Newest Member
    Mackenzie whitley
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.