Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dedicated Facilities Or Not


BlessedMommy

Recommended Posts

BlessedMommy Rising Star

Do you only eat products made in dedicated gluten-free facilities? If so, why? If not, why not?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

If  a  person is a super  sensitive  celiac  then   they  eat  only from a dedicated  /gluten-free   business... But  with that  being  said  it  does  limit  gluten-free  choices  &  varieties.... but  again  some  have  no  choice  they  just  get  very ill  so  it is  a must  for them....and  they  usually  figure  that  out  as  they  go along   with  the gluten-free  lifestyle.....good  thing  is more  & more  companies  are  putting  out millions  to make  their  business  dedicated....

Most  can get  away with  eating  from  places  that  have  established  guidelines  that produce  both  wheat  & gluten  foods....ie:  General Mills....they produce  both  wheat  cereal & gluten-free  cereal but  they  maybe  wash  down  the  equipment  & such  before  making  the  gluten-free  or  it is  made in the  same  building using  different  equipment.. several scenarios...

 

either  way it  is a personal choice  for  each  person....

kareng Grand Master

Yes.  My kitchen is a shared facility.  That is way different than shared equipment.  Most companies don't disclose this.  There is no rule that they have to.  

1desperateladysaved Proficient

I have had reactions that lead me to believe that I must be extremely careful.  I am working towards growing much of my own food, searching for companies that produce one crop, and also washing carefully everything that can be washed.

 

Dee

BlessedMommy Rising Star

Washing is always a good idea--if possible. When eating at a continental breakfast in a hotel, I rinse off the hardboiled eggs before eating.

psawyer Proficient

I eat foods made in facilities that also process ingredients I avoid. The alternative is just too restrictive. If you refuse shared facilities, you will never, ever eat at a restaurant, or at a family member's house. Just because there are noodles in the next room does not mean that there are noodles in your soup. Good Manufacturing Practices, as observed by all major food manufacturers, call for isolation of ingredients and cleaning between runs. As another member noted, disclosure of share facilities is voluntary.

livinthelife Apprentice

As a rule, I try not to, but, as others have said, it's not required to be labeled so I probably eat a lot more of these "shared facilities" foods than I think when I opt for a package of something.

 

I know Lay's jalapeño kettle chips (total cheat guilty pleasure!!) bother me since I keep a food journal and they seem to be a common "trigger" food, so I don't eat them anymore. Having said that, I'm still learning and it very well may be a reaction to something else. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DougE Rookie

Like many of the other replies, I will eat products that declare that they are made in a shared facitlity.  One exception is bakeries (I can just imagine flour hanging in the air everywhere). 

  • 3 weeks later...
NatureChick Rookie

For me it depends on the item and the brand.

For premade foods, I definitely notice a difference between dedicated facilities and not. When I think I've gotten a minor contamination, I normally give the suspect food a second or third try before scratching it off my grocery list permanently. Aimee's brand comes to mind when it comes to having some problems, though some products seem to be worse than others. The opposite would be Glutinos, a brand I don't  remember ever having glutened me.

Things like nuts are always hit or miss but I have had better luck buying bulk than packaged items. I only do organic, but find that unsalted poses the least risk, while salted can be a problem. I presume that means that flour is used as an anti-flaking agent for a powdered ingredient somewhere in their processing line. I never buy nut mixes. 

I actively avoid gluten-free items made by my grocery-store's bakery. I've only tried it once and it was definitely more gluten than a minor contamination so I have to presume that it is because the kitchens are contaminated with regular flour dust. 

The grocer's butcher counter is also hit or miss. The less that needs to be done to a cut of meat, the lower the chances of problems. So a simple chunk of meat would be the safest, a ground or sliced product somewhere in the middle, having had to go through another machine, and a product like a sausage that might contain more ingredients (and more chances of cross contamination) won't ever be on my grocery list again. But I do buy packaged sausages that say gluten-free on the label, so it is the facility that is the problem.

But I'm super lucky that the grocery stores at which I shop have excellent gluten-free labeling or sections, only carry minimally-processed products which cuts down on issues, and carries lots of gluten-free options so I'm not tempted to take many risks. 

I also did a ton of research when I first went gluten-free which helped me avoid mistakes. That said, it took me more than a month to finally admit that I had to give up my favorite spaghetti sauce, even calling the manufacturer to double check because it was so much better than the competition and its ingredients really "shouldn't" contain any gluten. But most companies are buying their tomato paste premade and it often contains ingredients other than tomatoes. 

Oh, and distilled products that "should" be gluten-free are another risky area. I do make sure to read labels to make sure things like vinegar are made from corn rather than wheat.

And I also won't trust a human being to tell me that something is gluten-free. There are plenty of people on this forum who eat things that I know from experience contain gluten. Though it is great for them that their reactions are so minor they can be overlooked, I'm glad I have a "tell" symptom that responds to minute amounts because I'd much rather know.

  • 1 month later...
SoLacey Newbie

"Oh, and distilled products that "should" be gluten-free are another risky area. I do make sure to read labels to make sure things like vinegar are made from corn rather than wheat."

 

I wonder, how can you tell if vinegar is made from corn rather than wheat?  I have definitely been reacting to some vinegars.  I've been just avoiding them all together unless it's something I have already eaten and was fine with. 

 

I'm super  sensitive so I won't eat anything in a box that was made in shared facilities.  I have gotten very sick from gluten free products that I later found out were made on shared equipment.  I had some frozen potatoes the other night that said gluten free.  I wasn't too worried about cross contamination because they were potatoes after all.  After getting sick I did some searching and found that the Ore-ida tater tots were processed on shared equipment.  I got super sick from Sweet Baby Rays BBQ sauce, also says gluten free, also made on shared lines. 

 

I feel somewhat lucky that I am so sensitive, I worry for those that aren't that because they may not get as sick they might be doing damage internally and not know.  My sister and my son both have it and aren't quite as sensitive as I am, I see them doing things that freak me out. :)
 

StephanieL Enthusiast

Yes.  My kitchen is a shared facility.  That is way different than shared equipment.  Most companies don't disclose this.  There is no rule that they have to.  

Yes to this.  

 

Just as a facility doesn't need to disclose if allergens are used in the plant or even run on the same lines, they don't have to disclose if gluten is in the facility.  There are some brands that are better at labeling than others and have a better reputation. It's all about comfort levels for sure!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,548
    • Most Online (within 30 mins)
      7,748

    Lunaluv
    Newest Member
    Lunaluv
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.