Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recoving Quikly After Eating Contaminated gluten-free Food


Currantbun

Recommended Posts

Currantbun Rookie

I went out for lunch with my family yesterday and ordered some gluten-free food as you do!  Within 3-4 minutes of eating I knew I'd been glutened.  My body began to feel like it was on fire and my throat began to feel tight.  I was quickly rushed outside to get some air.  When all the commotion settled down I was told that during the episode my skin had began to go beetroot red and my veins looked like they were protruding through my skin.  The heat radiating from my chest was immense.  I also had a heat like rash between my thumb and forefinger; always on the right hand. 

 

I have had these episodes before and they almost always happen when I have been glutened through supposedly gluten free food.  What I find ironic is I recover relatively quickly after these attacks.  I woud be recovered within an hour or less.  If I am stupid enough to eat non gluten-free than I will be in free fall for days.

 

Not that I am complaining but what's with this really quick recovery after eating contaminated gluten-free food?    


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

It almost sounds like you had an allergic reaction to something you ate.  Are you diagnosed with an allergy or Celiac Disease?

 

Colleen

ravenwoodglass Mentor

gluten-free I was thinking the same thing. The tight throat concerns me. It is possible to have both celiac and an allergy. OP you need to mention this to your doctor as allergic reactions can go from annoying to deadly with no warning. 

abqmalenurse Newbie

You are definitely describing a wheat allergy, not a Celiac reaction. This will become worse and can advance easily into anaphylaxis.

 

First step for you is to get an Epi-pen and never go anywhere without it.

 

Second step is to talk to your doctor and get a full food allergy panel, to make sure it's only wheat (or confirm it is wheat). This is expensive but in your case may save your life.

  • 1 year later...
Currantbun Rookie

Hi guys,

I would like to thank everybody personally who answered this thread last year.  I was diagnosed with a cows milk and yeast allergy.  You guys saved my life so thank you so much.

 

Gemini Experienced
6 hours ago, Currantbun said:

Hi guys,

I would like to thank everybody personally who answered this thread last year.  I was diagnosed with a cows milk and yeast allergy.  You guys saved my life so thank you so much.

 

WOW!!!!!  Glad you got that figured out.  I have had mild anaphylactic reactions from allergies (seasonal) and it is NOT fun. Hope you feel a lot better now.  :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.