Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie - Withdraw Symptoms?


Mwhaley

Recommended Posts

Mwhaley Newbie

Hi so I'm new to this and I honestly don't even know where to post this. I read a few comments about withdraw symptoms some saying I will get them and some saying I won't.

I should mention that I am currently going through several other health issues. I have been sick for 3 years now with parasites (gross I know). They found them and treated me about 2 and a half years ago and my GI doctor said they were gone. Well after the 4 rounds of treatment I started to get sick again and just kept getting worse. I went to see Dr. Taz down in Atlanta back in May and I am also seeing an acupuncture doctor here in St. Louis (who is great) and they both still believe I have a parasite so I'm going through those treatments right now.

They are also helping me go off of Nortriptyline which my GI doctor just put me on to cover symptoms. I tried going off of that a few months ago but I went off to fast and had absolutely horrible withdraw symptoms where I just wanted to curl up and die. So now they put me back on it and are taking me off of it even slower but I still think I am having withdraw symptoms but not as bad.

Do you guys think that I will also have bad withdraw symptoms from cutting gluten?

And if so do y'all know anything that would help settle an upset stomach? Or that helped you through your withdraws?

Oh and I just found out yesterday that I have celiac disease. I probably should have stated that earlier.

Sorry if this is too much to read.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Sorry you've had such a tough go.  :(

 

Withdrawal only hits some celiacs. I've seen a stat saying around 30% experience problems, but I'm not sure on that number.

 

I'm not sure what it is exactly that causes the withdrawal. I don't think it is the lack of gluten, but I'm not sure.  It could be from cutting sugars or starches. It could be something else in the wheat... I don't know.

 

I personally experienced a lot of fatigue and was very moody... very. I also remember a killer migraine that lasted almost a week.  Not everyone gets symptoms like that though.  After about two weeks I was through that and starting to get better.  During withdrawal, my bloating started to improve and my stomach aches lessened too, so it wan't all bad.

 

Best wishes. I hope it is a smooth transition for you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,221
    • Most Online (within 30 mins)
      7,748

    Jeniffer
    Newest Member
    Jeniffer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.