Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Feel Like Hot Garbage

user001

By user001
in Coping with Celiac Disease

Recommended Posts

user001 Contributor
user001
Posted

I went to visit family today. Made food last night for today and brought snacks.  Didn't eat a thing besides what I brought, even brought utensils, ate from my containers. I had bakery on main certified gluten free oatmeal for breakfast, which has quinoa and amaranth too. Took enzymes before eating and I still had a little pain and now I had D. Ughhh last night my bf was out with friends and ate a bunch of trash (no gluten allowed in our house), he has a gluten issue but no gene for celiac. I think it's a fodmap problem. He was up till 3 which means I was up off and on till then also. 

 

Not sure why I'm feeling like trash, it is impossible that I had gluten, but I'm concerned that I'm having a problem with oats (been ok with quinoa and amaranth) is it possible that lack of sleep and family stress is what's going on?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SMRI Collaborator
SMRI
Posted

There is a bad GI bug going around, maybe you are just sick and it's nothing to do with celiac disease?  Stress can also cause a lot of problems.

ravenwoodglass Mentor
ravenwoodglass
Posted

Might be a good idea to drop the gluten-free oats for bit. I think it is advised we not add them into our diet until we have healed well. Drop them and then when you have been feeling okay for a while add them back in and see if you react.

There are some celiacs without one of the two commonly tested for genes. Hopefully your BF had other testing done as well before going gluten free. It sounds like he knows he has an issue with gluten but uses a lack of diagnosis as a reason to binge now and then. If his reactions are severe he should avoid it whether he has an official diagnosis of not. 

Sorry you are feeling so poorly right now and hope you improve soon.

user001 Contributor
user001
Posted
  • Author

I can't deal with his food issues, I really need to watch out for myself for now. He thinks I might have gotten gluten in my mouth from the kids. They had pancakes before we saw them and cookies while we were there. I was so careful not to touch my face, so irritated with myself! My stomach is still feeling rumbly. I was unsure about the oats, I googled but I couldn't find anything about if it was ok to eat gluten free oats after being recently diagnosed. Usually any cc leads to neurological issues for me like feeling dizzy, wobbly, tired and foggy. I felt like that before we arrived at my family's house. Then after I had stomach issues, I either ingested crumbs from the kids somehow or the stress is just bothering me from my grams nagging me and the traveling. 

beth01 Enthusiast
beth01
Posted

Day 5 of feeling like poo here, my couch is my best friend.  Debating if I want to actually brave going to the doctor or suck it up some more and see if it gets better on it's own.  I am just worried I am heading to a bout of diverticulitis right now.

user001 Contributor
user001
Posted
  • Author

Feeling better today, except my fingers feel like they got slammed in a door again. Stomach is a bit iffy. Job interview tomorrow.. oyyy vey.

 

5 days, that is terrible. You should see the doctor.

bartfull Rising Star
bartfull
Posted

If you're in the Midwest, it could be shegella. There have been outbreaks here in South Dakota, Texas, Indiana, and other places. If you're going to pick it up, it would likely be from kids. They say it can last from 5 to 7 days or in some cases even more. Severe D, bad stomach cramps, and overwhelming fatigue.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elless Rookie
elless
Posted

User001, didn't you mention you were in NJ? I too am in NJ in the philly area. It has been rediculously humid here, and sometimes that can give me issues. Maybe it could be a little bug on top of the weather.

user001 Contributor
user001
Posted
  • Author

User001, didn't you mention you were in NJ? I too am in NJ in the philly area. It has been rediculously humid here, and sometimes that can give me issues. Maybe it could be a little bug on top of the weather.

yes, i am in new jersey. I think my body doesn't handle stress well. I think between that and the oatmeal, might have done it. feeling lethargic and headachy today.

elless Rookie
elless
Posted

Well, I hope you feel better soon. It's supposed to rain tonight, so hopefully it will cool down.

kareng Grand Master
kareng
Posted

Boudin??

 

Yesterday we got a shkar( you know the ones who make those rolls) brand pizza and it was sooo delicious. The perfect cheese to sauce ratio. My bf cooked it on the oven rack so it was nice and crispy too. He sauteed some onions and green peppers for the top and chopped some black olives. totally hit the spot since my grandmother kept asking if we wanted pizza- all day while we were visiting.

 

Tonight I took some chicken, bell pepper, jalepeno, garlic carrot and onion and cooked that up in the wok and added some ginger and curry powder (badia is certified gluten free!) and made like a curry fried rice on the deck.. it was delicious. ate wayyyy too much.

 

 

I went to visit family today. Made food last night for today and brought snacks.  Didn't eat a thing besides what I brought, even brought utensils, ate from my containers. I had bakery on main certified gluten free oatmeal for breakfast, which has quinoa and amaranth too. Took enzymes before eating and I still had a little pain and now I had D. Ughhh last night my bf was out with friends and ate a bunch of trash (no gluten allowed in our house), he has a gluten issue but no gene for celiac. I think it's a fodmap problem. He was up till 3 which means I was up off and on till then also. 

 

Not sure why I'm feeling like trash, it is impossible that I had gluten, but I'm concerned that I'm having a problem with oats (been ok with quinoa and amaranth) is it possible that lack of sleep and family stress is what's going on?

 

 

Just saw what you were eating in the dinner thread.  If you are having gut issues, some of these foods can be pretty rough.  Also, hopefully the oven rack has not had a gluten pizza cooked on it recently?  

 

You might want to try some simpler, non-processed foods for a while until you are consistently feeling good.  Then add back in one or 2 processed or harder to digest foods at a time to see if you can handle them again.

user001 Contributor
user001
Posted
  • Author

I am actually feeling pretty good today, but thanks karen.

 

I am pretty sure it was the oatmeal because I started having symptoms on the ride up to my grandmas. Then my uncle lives downstairs and smokes inside and the smell kind of emanates through the house, that always makes me feel like crap. My symptoms were confined to after I ate the oatmeal till before our late dinner.The next morning I was a bit tired but my stomach was just hungry.

 

My house is 100% gluten free. We never made pizza before on the oven rack, but it has been scrubbed and run through the dishwasher anyway. Curry didn't seem to cause me any problems, I didn't think it would, it never has before. Quite the opposite actually, always has made me feel better than other foods. I attribute that to the tumeric and ginger, which are two things that have always helped my stomach and even my arthritis.

kareng Grand Master
kareng
Posted

Sorry. It sounded like you were very ill for several days. But it was just some stomach issues for a few hours. Probably the oatmeal, then.

GF Lover Rising Star
GF Lover
Posted

I am actually feeling pretty good today, but thanks karen.

 

I am pretty sure it was the oatmeal because I started having symptoms on the ride up to my grandmas. Then my uncle lives downstairs and smokes inside and the smell kind of emanates through the house, that always makes me feel like crap. My symptoms were confined to after I ate the oatmeal till before our late dinner.The next morning I was a bit tired but my stomach was just hungry.

 

My house is 100% gluten free. We never made pizza before on the oven rack, but it has been scrubbed and run through the dishwasher anyway. Curry didn't seem to cause me any problems, I didn't think it would, it never has before. Quite the opposite actually, always has made me feel better than other foods. I attribute that to the tumeric and ginger, which are two things that have always helped my stomach and even my arthritis.

 

I think you may be in denial.  Those foods, even if they make you feel good, are not useful for your gut right now!  You are constantly posting that you feel like crap but don't seem to want to follow advice!  I think you should stick to very simple meals with no spices added.  You could have had just the Chicken and and carrots.  If you think oatmeal is a problem then don't eat it.  Stay away from all processed foods including pizza.  That's really all the advice I can give.  I hope you will give your gut a chance to heal before adding  the junk to it.  

 

Wish you well, I won't bother you anymore about this!

 

Colleen

Celiac Ninja Enthusiast
Celiac Ninja
Posted

If you have reactive celiac (not sure on the labeling there) but the general idea is the lining of the intestines will respond as if glutened (to some degree of being glutened) simply by being stressed. It's know as reactive. I definantly would agree about getting glutened from the kids. I got two and they put hands, toes, toys, etc. right up in my face and sometimes straight in my mouth. Very irritating. Do you have gluten enzymes that you can take to help process through what you've gotten in your system?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,118
    • Most Online (within 30 mins)
      7,748
    Cwbtex
    Newest Member
    Cwbtex
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Yes this is very frustrating for me ... not sure what to think.  Feels like I'm having reactions to a lot of things  Now applesauce?? I don't understand 😞 
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Heat intolerant... Yikes

      By Colleen H · Posted

      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.