Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Kiddos Tested?

mfalbo

Recommended Posts

mfalbo Rookie
mfalbo
Posted

Hi all!

I have a quick question regarding my 2 sons (2 year old and an 8 year old).  Myself being recently diagnosed with Celiacs and not having stomach issues ever.  Should I get my sons tested, they have an appointment the end of this month just for a check.  Is it worth asking to see if they can test for it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


africanqueen99 Contributor
africanqueen99
Posted

YES!  All first degree relatives should be tested while on a gluten containing diet.  It's a simple blood test

 

Without that "guideline" my older daughter wouldn't have been DX.

cyclinglady Grand Master
cyclinglady
Posted

Yes!

Though I waited until the Affordable Heathcare went into effect. We are self-employed and In the past, I had hard time getting health insurance. I could afford it, but kept getting rejected!

My only symptom was anemia and our PCP/GP did not blink an eye, when I asked for my 13 year old to be tested. He also ran a CBC panel to check for anemia too. She tested negative, but will continue to get retested every few years.

nvsmom Community Regular
nvsmom
Posted

Ditto!  I think the kids' chances of getting celiac disease are as high as one in ten, and that's over their entire lifetime.  Even if they have a negative test this time, if they continue to eat gluten they will need to be retested every two years or as soon as they exhibit any symptoms.  If they are entirely gluten-free, they won't need to be retested.

mfalbo Rookie
mfalbo
Posted
  • Author

Thanks everyone! That makes me feel better!

  • 2 weeks later...
Cara in Boston Enthusiast
Cara in Boston
Posted

Yes - just repeating what has already been said.  All first degree relatives of a person with confirmed Celiac Disease need to be tested every two years, regardless of symptoms.  Test sooner if symptoms are present.

mfalbo Rookie
mfalbo
Posted
  • Author

Thanks everyone! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommyto2kids Collaborator
mommyto2kids
Posted

Thanks everyone! 

I think the general population has a 1 in 100 chance of getting it and first degree relatives have a 1 in 25 chance of getting it in their life.

  • 2 months later...
florentine Newbie
florentine
Posted

I just got my kids tested and my daughter got a positive result, my son did not. I will make sure to get him tested every 2 years, I didn't know about that, I thought he was good for the long run.

nvsmom Community Regular
nvsmom
Posted

I just got my kids tested and my daughter got a positive result, my son did not. I will make sure to get him tested every 2 years, I didn't know about that, I thought he was good for the long run.

 

Yes, celiac disease can show up at any age so he'll have to continue to keep an eye out for it even as an adult.

florentine Newbie
florentine
Posted

Don't want to hijack the post, but is it ok for him to eat gluten at school for now? I don't see aby reason to upset him and not be able to eat like his friends for no reasons( even if I HATE the crap some parents bring)

StephanieL Enthusiast
StephanieL
Posted

Don't want to hijack the post, but is it ok for him to eat gluten at school for now? I don't see aby reason to upset him and not be able to eat like his friends for no reasons( even if I HATE the crap some parents bring)

 

The recommendation is that they eat a "normal" diet and test every 2-3 years OR if they show any signs and symptoms. As long as you are safe in the house wrt food prep or he buys at school, not an issue.

cyclinglady Grand Master
cyclinglady
Posted

Don't want to hijack the post, but is it ok for him to eat gluten at school for now? I don't see aby reason to upset him and not be able to eat like his friends for no reasons( even if I HATE the crap some parents bring)

I send my kid to school with a lunch that is full of gluten. I usually buy her pre-packaged gluten items. I treat her to a gluten snack (fast food) when we are running errands. She gets plenty of gluten.

florentine Newbie
florentine
Posted

Ok! Thanks! I will let him eat what is offered, it is a snack sharing type of school, I can pack things, but they would still offer him what they have. I just wished parents would bring healthy forms of gluten at school though, not cake and cheap brownies. He enjoyed his gluten at Thanksgiving already

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,996
    • Most Online (within 30 mins)
      7,748
    Sasha Bondarev
    Newest Member
    Sasha Bondarev
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      Gluten free nuts

      By Scott Adams · Posted

      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By Scott Adams · Posted

      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.