Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starting To Question Celiac In My 10 Year Old Daughter

mamat78

Recommended Posts

mamat78 Apprentice
mamat78
Posted

HI everyone,

I have been here for a while because I live a gluten free lifestyle due almost entirely to skin issues. My daughter (adopted but biologically my cousin) is 10 years old and less than the 5th percentile for both height and weight. Over the summer, she has actually lost weight which is a bit of a concern for me. It dawned on me last night when she was complaining of a stomach ache, that maybe we should look at getting her tested for celiac disease. So, these are some of the reasons why I am starting to think that maybe we should get her tested: 

 

  • her bio aunt (dads sister) has celiac disease.
  • Her bio dad had IBS
  • I (bio cousin-same side of family) have DH when I am on wheat although tested negative. 
  • Stomach aches off and on that last for a few days and then fine again for a few weeks. 
  • diarrhea when her stomach is bothering her. (she complains after she eats and it hurts intermittently until she eats again) 
  • Behaviour has been really not good in the last 10 months and she is a very quiet natured sweet kid (irritable, anger outbursts etc)
  • Seems "in the clouds" and actually looking at considering add meds in the fall but holding off because I am not ready. 
  • less than the 5th percentil for height and weight.
  • Losing weight in the last 3 months and hasnt grown at all in height.
  • often feels bloated (most dinners) 

 

I guess my question is, am I questioning this too much because I am familiar or do we have good enough reasons to push for testing? 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamat78 Apprentice
mamat78
Posted
  • Author

i forgot to add that she has been getting headaches more in the last 6 months as well. not every day by any means but at least 2-3 times per month for 1 or 2 days in a row. 

nvsmom Community Regular
nvsmom
Posted

I think those are enough reasons to get her tested.  Bring that list to the doctor and ask for the tTG IgA, tTG IgG, DGP IgA, DGP IgG, EMA IgA and total serum IgA.  Don't have her go gluten-free until after all testing is complete.

 

Good luck with the doctor.

1desperateladysaved Proficient
1desperateladysaved
Posted

I think you are on the right track and do hope it works out for you and your daughter.  Please do get the tests Nicole recommended as those symptoms are not normal.  There must be a reason for them.

mamat78 Apprentice
mamat78
Posted
  • Author

not sure if it was coincidence or not but dinner was the only meal my daughter managed to eat a lot of and also didnt feel sick...gluten free pasta. I am going to chart what is going on for the next little bit. We are supposed to go back to the ped doc early november so I may just bring her to our family doc and ask for those blood tests. Looking at my "list" again tonight makes me wonder how come I havent considered this before?? 

cyclinglady Grand Master
cyclinglady
Posted

Make sure she is getting gluten and has been getting it before you test. We have a gluten-free house, but I manged to give my daughter gluten everyday in her lunch for months before she was tested (she tested negative, but will need follow-up testing every few years).

africanqueen99 Contributor
africanqueen99
Posted

Can you get into her Ped sooner?  If it's celiac or a gluten issue that's a long time of not feeling well when testing doesn't take too long.  Especially since she still has to be on a gluten containing diet until all testing is complete.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamat78 Apprentice
mamat78
Posted
  • Author

I can get her into her regular gp to request it as well. Hard to get into ped but could try that route as well. 

Cara in Boston Enthusiast
Cara in Boston
Posted

Why wouldn't you get her tested?  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Heatherisle
      - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      Pain in the right side of abdomen

      Hi again Sorry to be a pain but my daughter started on her Vitamin B medication a week ago, not sure what dosage as she hasn’t said. However she has been feeling much worse the last couple of days with back pain, bowel and tummy problems, blurry vision, tingling. Had GP appointment after work and has been sent to hospital for scan of head and bloods. ...
    2. Scott Adams
      0

      When Campus Dining Falls Short: What Georgetown's Food Struggles Reveal About Celiac Disease and Dietary Equity (+Video)

    3. MogwaiStripe
      - MogwaiStripe posted a topic in Dermatitis Herpetiformis
      0

      Dermatitis Herpetiformis Cleared up With EpiPen, etc.

      I had to rush to the hospital last week due to anaphylactic shock from taking a dose of an antibiotic. Received EpiPen, steroids, antihistamines, zofran (all injected/IV). When I woke up the next day, ALL of the rashes I've had that started since going gluten free were cleared up. EVEN THE dermatitis herpetiformis was gone. Has anyone else experienced this...
    4. Dr. Gunn
      - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual.
    5. trents
      - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,666
    • Most Online (within 30 mins)
      7,748
    S.Aulman
    Newest Member
    S.Aulman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi again Sorry to be a pain but my daughter started on her Vitamin B medication a week ago, not sure what dosage as she hasn’t said. However she has been feeling much worse the last couple of days with back pain, bowel and tummy problems, blurry vision, tingling. Had GP appointment after work and has been sent to hospital for scan of head and bloods. She should have had other bloods done when she had her B12 and folate done but GP didn’t put them on the list, ie Vitamin D levels, ferritin, thyroid function tests, glucose. She phoned us this morning very upset and worried. Told her it was probably the body’s reaction to the medication and that it might get worse before it gets better. My husband and I live in the Western Isles and she’s in Glasgow so we can’t exactly jump on a bus and be there at the moment. Hoping you have some words of wisdom for me and sorry again for annoying you. Thanks
    • MogwaiStripe
      Dermatitis Herpetiformis Cleared up With EpiPen, etc.

      By MogwaiStripe · Posted

      I had to rush to the hospital last week due to anaphylactic shock from taking a dose of an antibiotic. Received EpiPen, steroids, antihistamines, zofran (all injected/IV). When I woke up the next day, ALL of the rashes I've had that started since going gluten free were cleared up. EVEN THE dermatitis herpetiformis was gone. Has anyone else experienced this or happen to know why that would happen? The meds they gave me were all meds that I've taken to try to resolve the rashes, but they never worked in pill form. I'm wondering if it the addition of the epi that helped, it if injected steroids and antihistamines were what did the job.
    • Dr. Gunn
      Test interpretations

      By Dr. Gunn · Posted

      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      Test interpretations

      By trents · Posted

      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Test interpretations

      By Dr. Gunn · Posted

      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.