Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starting To Question Celiac In My 10 Year Old Daughter

mamat78

Recommended Posts

mamat78 Apprentice
mamat78
Posted

HI everyone,

I have been here for a while because I live a gluten free lifestyle due almost entirely to skin issues. My daughter (adopted but biologically my cousin) is 10 years old and less than the 5th percentile for both height and weight. Over the summer, she has actually lost weight which is a bit of a concern for me. It dawned on me last night when she was complaining of a stomach ache, that maybe we should look at getting her tested for celiac disease. So, these are some of the reasons why I am starting to think that maybe we should get her tested: 

 

  • her bio aunt (dads sister) has celiac disease.
  • Her bio dad had IBS
  • I (bio cousin-same side of family) have DH when I am on wheat although tested negative. 
  • Stomach aches off and on that last for a few days and then fine again for a few weeks. 
  • diarrhea when her stomach is bothering her. (she complains after she eats and it hurts intermittently until she eats again) 
  • Behaviour has been really not good in the last 10 months and she is a very quiet natured sweet kid (irritable, anger outbursts etc)
  • Seems "in the clouds" and actually looking at considering add meds in the fall but holding off because I am not ready. 
  • less than the 5th percentil for height and weight.
  • Losing weight in the last 3 months and hasnt grown at all in height.
  • often feels bloated (most dinners) 

 

I guess my question is, am I questioning this too much because I am familiar or do we have good enough reasons to push for testing? 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamat78 Apprentice
mamat78
Posted
  • Author

i forgot to add that she has been getting headaches more in the last 6 months as well. not every day by any means but at least 2-3 times per month for 1 or 2 days in a row. 

nvsmom Community Regular
nvsmom
Posted

I think those are enough reasons to get her tested.  Bring that list to the doctor and ask for the tTG IgA, tTG IgG, DGP IgA, DGP IgG, EMA IgA and total serum IgA.  Don't have her go gluten-free until after all testing is complete.

 

Good luck with the doctor.

1desperateladysaved Proficient
1desperateladysaved
Posted

I think you are on the right track and do hope it works out for you and your daughter.  Please do get the tests Nicole recommended as those symptoms are not normal.  There must be a reason for them.

mamat78 Apprentice
mamat78
Posted
  • Author

not sure if it was coincidence or not but dinner was the only meal my daughter managed to eat a lot of and also didnt feel sick...gluten free pasta. I am going to chart what is going on for the next little bit. We are supposed to go back to the ped doc early november so I may just bring her to our family doc and ask for those blood tests. Looking at my "list" again tonight makes me wonder how come I havent considered this before?? 

cyclinglady Grand Master
cyclinglady
Posted

Make sure she is getting gluten and has been getting it before you test. We have a gluten-free house, but I manged to give my daughter gluten everyday in her lunch for months before she was tested (she tested negative, but will need follow-up testing every few years).

africanqueen99 Contributor
africanqueen99
Posted

Can you get into her Ped sooner?  If it's celiac or a gluten issue that's a long time of not feeling well when testing doesn't take too long.  Especially since she still has to be on a gluten containing diet until all testing is complete.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamat78 Apprentice
mamat78
Posted
  • Author

I can get her into her regular gp to request it as well. Hard to get into ped but could try that route as well. 

Cara in Boston Enthusiast
Cara in Boston
Posted

Why wouldn't you get her tested?  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      329

      Terrible Neurological Symptoms

      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I...
    2. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      329

      Terrible Neurological Symptoms

      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Doctors
      8

      Second chance

      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever
    4. knitty kitty
      - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

      It's important to correct the B12 deficiency first, replenishing the stores of B12 in the body within organs and tissues. As more B12 becomes available, the body will adjust how much folate to absorb from the diet. Dietary folate sources include leafy greens, broccoli, and Brussels sprouts, and liver. (Avoid spinach due to high oxalates and risk...
    5. Scott Adams
      - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

      Vitamin B9 (Folate): The UL for Folic Acid is set at 1,000 mcg (1 mg) per day for adults. This limit primarily applies to synthetic folic acid found in supplements and fortified foods, not naturally occurring folate in food. High intake of folic acid can mask the symptoms of Vitamin B12 deficiency, which can lead to neurological damage if left untreated....
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,670
    • Most Online (within 30 mins)
      7,748
    PamelaV
    Newest Member
    PamelaV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I know lol)  and supplied it with all the clinical evidence I've had from tests etc.... After hours of "discussing" with it and finding research it "concluded" it's a chronic neuroplastic sensitization syndrome but of course said I should only get a proper diagnosis from a  doctor. When I saw the doctor on 9th February because this got worse he looked through all my medical history and the course of the "condition". I didn't tell him I'd used ChatGPT or mention what I thought it is because I still don't really know until I have a formal diagnosis. He came with the same conclusion as ChatGPT. Just thought it was an interesting co-incidence perhaps. As for myself, I'm not forming any conclusions til I can really know exactly what's happening and why and what stops it. Only then can I truly know.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown the medication max dose even though there is nothing physically wrong with my body. A bit earlier I had violent shocking evil burning nerve pain that made me nearly pass out and want to die again, also noticed this seems to be associated with sudden water retention. I've made hardly any pee in nearly 12 hours and despite drinking loads. Mouth is super dry. I am getting the "correct" sort of this when I've finished the current ones, so not long now. Can only get it on the internet here. Then I can say how it might change anything.
    • Jmartes71
      Second chance

      By Jmartes71 · Posted

      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever 
    • knitty kitty
      Pain in the right side of abdomen

      By knitty kitty · Posted

      It's important to correct the B12 deficiency first, replenishing the stores of B12 in the body within organs and tissues.    As more B12 becomes available, the body will adjust how much folate to absorb from the diet.  Dietary folate sources include leafy greens, broccoli, and Brussels sprouts, and liver.  (Avoid spinach due to high oxalates and risk of kidney stone formation.). Folate level should be checked in future just in case Celiac malabsorption affects it.   Thiamine deficiency can be found with B12 deficiency.  B12, Pyridoxine B6, and Thiamine B1 all are involved with nerve health and nerve transmission.  These three vitamins together to improve nerve health better than just one of them alone.  They relieve neuropathy and pain, and improve brain function.  You're being an amazing mom for advocating for your daughter's health!  Hurrah! Interesting Reading: B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pmc.ncbi.nlm.nih.gov/articles/PMC6930825/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Thiamin metabolism in vitamin B6 or vitamin B12 deficient rats https://pubmed.ncbi.nlm.nih.gov/859042/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/#:~:text=The neurotropic B vitamins -B1,neuropathies [3%2C 4].
    • Scott Adams
      Pain in the right side of abdomen

      By Scott Adams · Posted

      Vitamin B9 (Folate): The UL for Folic Acid is set at 1,000 mcg (1 mg) per day for adults. This limit primarily applies to synthetic folic acid found in supplements and fortified foods, not naturally occurring folate in food. High intake of folic acid can mask the symptoms of Vitamin B12 deficiency, which can lead to neurological damage if left untreated. This is because folic acid supplementation can correct anemia caused by B12 deficiency without addressing the underlying neurological damage. Some studies suggest that excessive folic acid intake might increase the risk of certain cancers, such as colorectal cancer, particularly in individuals who have precancerous lesions.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.