Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Having Celiac Is Awesome


Adalaide

Recommended Posts

Adalaide Mentor

Usually we have our gripes. It's this or that, and in general it makes life at the very least a bit inconvenient for us. I realized tonight though that sometimes it's a small blessing in disguise. I'm getting ready for comic con this week and they don't allow any outside food... except for people with food allergies, intolerances, etc. So, instead of being out of the house for 12-16 hours a day for 3 days and being forced to buy overpriced food from vendors I get to bring all my own food without paying a fortune. Which means I can spend all the money I saved up on cool stuff! So sometimes, just sometimes, having celiac is awesome. B) I saw those food prices at the April con, not something I'd want to pay. A cup of coffee was $3! The food just omg. You'd have to have $75-100 to feed yourself, spend a lot of time hungry or leave and eat off site for three days. :ph34r:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CajunChic Explorer

That is a very nice perk!! I'm waiting for my perk, I know it's out there, lol.

SMRI Collaborator

I'm hoping that the hotel I need to go to will allow my toaster oven due to medical necessity :D

notme Experienced

nobody *ever* drinks my last beer  :lol: EVER!!!!  (in fact, they never drink *any* of it, which leaves me nobody else to blame LOLOLZ)  

Adalaide Mentor

nobody *ever* drinks my last beer  :lol: EVER!!!!  (in fact, they never drink *any* of it, which leaves me nobody else to blame LOLOLZ)  

 

That's great, except when you need a scapegoat. :P

LauraTX Rising Star

I'm hoping that the hotel I need to go to will allow my toaster oven due to medical necessity :D

 

Just don't tell them.  No one has to know...  Muahahahahahahahh!

 

We went to a con last year and I brought in my own lunch food, once all our friends found out I could smuggle in granola bars they had me take some in for them too, so they wouldn't have to buy expensive crap to hold them over until dinner.  On trips, I have usually been eating something I brought for lunch, and that has saved me a bunch of money.  Only have to worry about dinner.

SMRI Collaborator

Just don't tell them.  No one has to know...  Muahahahahahahahh!

 

We went to a con last year and I brought in my own lunch food, once all our friends found out I could smuggle in granola bars they had me take some in for them too, so they wouldn't have to buy expensive crap to hold them over until dinner.  On trips, I have usually been eating something I brought for lunch, and that has saved me a bunch of money.  Only have to worry about dinner.

 

I figure the cleaning people might see it though :D.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

I figure the cleaning people might see it though :D.

Stuff it back inside a bag of suitcase.  They aren't -supposed- to dig in your stuff.  But yeah if you leave it out they may say something, hehe.

Adalaide Mentor

If they say anything just be like oh... I didn't realize I wouldn't be allowed to have it. Blah blah celiac... blah blah ADA accommodation... blah blah but if I have to I'll just put it away til I leave. Then just put it away after it cools off after every use. :lol:

kareng Grand Master

Put up the do not disturb sign?

Georgia-guy Enthusiast

But then you don't get more FREE soap and shampoo to take home!

Adalaide Mentor

But then you don't get more FREE soap and shampoo to take home!

 

Ewww... unless it's one of the more fancy hotels that stuff is usually stuff I wouldn't use. Well, wouldn't have used before I turned into a hippie that doesn't use soap or shampoo. Then again I was always prissy about my care products.

africanqueen99 Contributor

So, do you guys ask for permission to bring in food when places state no outside food? I feel like I need to ask since my kids generally can't be accommodated at museums, children's events, etc, but it's a pain to find the right person to get permission. Maybe I just ask for forgiveness over permission...??

Eta: I'm talking about asking someone before I get there via email, not the teenager at the door collecting money.

Adalaide Mentor

It depends on the situation and what I'm going to. With comic con, it's right in their faqs that people with food issues can bring their own so I don't see the point in bothering anyone. Although it wasn't in their faqs in April until after I bothered someone via email and had gotten a response that bringing my own was okay. When we were going to a midnight release I stopped in early to talk to the manager because it was important to me not to run into issues that would make getting a good seat difficult when it was time for the movie. I told him I just wanted to be able to have popcorn like everyone else. (The theater serves hot dogs and so many other wheat things and is staffed by teenagers and college kids and I trust them not at all, as my daughter who works at a theater told me not to because she said nearly everyone who works at theaters cares about as much as you imagine they do about food safety and handling.) The manager was really cool about it, I don't always need food for a movie but we rarely go to the full price theater and I just wanted the "normal" experience with drinks and popcorn. If it was a museum I would ask, not because it's an outside food thing but because they may not allow food period. If their policy is simply no food, ever, in the museum then that's that. Don't bring food. If they serve food there though, then it shouldn't be an issue for you to bring your own. For the most part though, I'm an ask forgiveness kind of person. I'm really good that playing innocent, then getting indignant about how I have celiac and it isn't like I could just buy my food like a regular person and if they get pissy I'll get all ADA on them and the conversation shuts down real fast then.

cap6 Enthusiast

I love this!!!  The perks of being Celiac and why it is awesome!!!

 

I have learned how to eat healthy and how to cook.  We now eat Paleo and organic and even my non-celiac partner's health has improved. 

 

If we have dinner at a friend's house sometimes my dinner looks better than what everyone else is eating (hee hee)

 

And yes, we save a lot of money when attending events!!  Whew!  More shopping money in our pockets for sure. 

I have a letter from my doctor stating that I have Celiac and must carry my own food.  Have only needed to use it a couple of times, once was when flying, but it has come in handy.   I have mentioned that I have food "allergies" when entering an event if it looks like I might have trouble and offer to show them my doctor letter but have never met with any rudeness or anything like that. 

LauraTX Rising Star

....Maybe I just ask for forgiveness over permission...??.....

 

Yep.  Especially if there is other food around, I just take it in with me.  I have a doctors note as well, I get her to re write it at every annual exam so it has a current date.  If it is a really strict place where bags are checked and such, I just make sure I have my note on me, I don't call ahead.  Especially with kids and food allergies, I would think staff would be less intrusive than with an adult.  I always carry food in discreetly, be respectful, etc.  I have brought my own burger bun into restaurants and I never say anything, just pull it out of my purse once the waitperson walks off :) 

Georgia-guy Enthusiast

Haha, I love the doctor's note idea, but some of us can't get that. :-/

LauraTX Rising Star

Haha, I love the doctor's note idea, but some of us can't get that. :-/

 

If you can't get a doctors note easily, get some of those dining cards.  With the giant red writing of what you can't have, they should be able to figure out what is going on is legitimate.  I have never had to show my doctors note yet, in a year and a half.

Georgia-guy Enthusiast

If you can't get a doctors note easily, get some of those dining cards. With the giant red writing of what you can't have, they should be able to figure out what is going on is legitimate. I have never had to show my doctors note yet, in a year and a half.

I'm not really concerned about it too much, I can throw legal threats around in most circumstances (such as a theater or con), the only time I would be worried about it would be if I were to fly.

BlessedMommy Rising Star

Why the worry over flying?

 

Aren't people allowed to bring their own food in a carry on?

notme Experienced

as long as it's not peanuts (or nuts).  i notice the airlines don't give out nuts as snacks anymore.  

 

i have had no problem getting food onto the plane.  i guess they are not worried ima blow up the plane with my turkey sammich.  i did, however, get detained when i tried to 'smuggle' a bag of masa harina home from new mexico.  can't remember if they took it away or not.  turns out, they sell it at my local grocery store.   <_<

notme Experienced

That's great, except when you need a scapegoat. :P

we were over at a friend's house sunday night, and he grabbed a redbridge instead of his oktoberfest (and put it in a bottle wrap, so, he didn't notice - he is farsighted and the bottle labels were similar) so, hahaha, he is my scapegoat!!  :D  

 

(ironically, one of his long time nicknames is "goat boy" lololz couldn't have worked out better!!!)  :D

SMRI Collaborator

Why the worry over flying?

 

Aren't people allowed to bring their own food in a carry on?

 

It depends....you can bring food on that you purchase after you go through security or anything you bring through security that meets TSA guidelines so just make sure you check those before you load up on food for flying or you may have to toss it all at security.  There are some exceptions for medical reasons but not everything is accepted even for medical reasons.

africanqueen99 Contributor

Lordy, the last time I flew with the kids we had several lay-overs and a full day's travel.  I had an entire backpack full of Go Picnics and snacks and desserts and...  We just bought drinks once we got through TSA.  Much lighter by the end of the trip.

Georgia-guy Enthusiast

I'm not looking at flying any time soon, I prefer to drive and enjoy the scenery. But I am NOT the type to "throw food away" at security. They would have to stand there and wait while I eat every bit of it before walking through the stupid sensors. (And as far as buying food after passing through TSA, I don't trust places in the airport to begin with, plus regular food is ridiculous, I would probably have to sells soul to get a crumb of something that is gluten free.) Speaking eating every bit of food before going through security, I went to 6 flags last summer and they said I couldn't bring my still sealed bottle of soda in with me (that way they could charge $10 for a 20oz bottle), I stood there blocking the line up and guzzled down 6-20oz bottles of soda and handed the empty bottles to "security" before walking though....not the smartest choice to guzzle 6 bottle of soda and then spend the day in the heat, but they let me bring the other 6 in with me.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,929
    • Most Online (within 30 mins)
      7,748

    Mike Rowicki
    Newest Member
    Mike Rowicki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.