Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Get Creative Describing Your Symptoms - Zombie Porcupines!

Harpgirl

By Harpgirl
in Coping with Celiac Disease

Recommended Posts

Harpgirl Explorer
Harpgirl
Posted

I've been suffering from gluten exposure recently and because I don't "look sick," I started coming up with ways to describe how I feel. I have several symptoms, but the best thing I've found to get my point across about the pain is to say that it feels like I swallowed a porcupine.

 

I stepped it up by doing something fun. On my author blog, I dressed up a picture of a porcupine to "zombify" it. Green eyes and everything. ;) "Forget brains...must destroy guts." Because there's no mercy to the pain and no perfect way to stop it than time. I'd post it here if you guys want me to, but I haven't even showed it to my boys because my 6-year-old is afraid of "zombies." lol. Didn't know if it would be okay here.

 

Anyway, creating the picture turned out to be fun. Kind of like hitting the bulls-eye on a dunk tank with a someone who knows how to throw insults.

 

So what are some creative ways that you can come up with to describe what gluten does to you?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Serielda Enthusiast
Serielda
Posted

One night the hubby and I was watching Cloverfield and he made a funny, at the time it wasn't so funny as we had in july an incident with a local PF Changs mentioned in a past post but that is another ball of wax. So back to the cloverfield deal, in the movie where the one actor Lizzy Caplan plays as Marlena Diamond gets bit and they are in the  army lab and she states I do not feel so good, and they grab her yelling we have a bite and she starts to swell and explode. Well I  obviously do not physically explode, but I cry, and turn emo, and ragey and have terrible bloating and other not nice things to  speak on. So  we refer to gluten and glutening as "glutenfield."

1desperateladysaved Proficient
1desperateladysaved
Posted

Sometimes I say that I look like the Pillsbury Doughboy!

Harpgirl Explorer
Harpgirl
Posted
  • Author

One night the hubby and I was watching Cloverfield and he made a funny, at the time it wasn't so funny as we had in july an incident with a local PF Changs mentioned in a past post but that is another ball of wax. So back to the cloverfield deal, in the movie where the one actor Lizzy Caplan plays as Marlena Diamond gets bit and they are in the  army lab and she states I do not feel so good, and they grab her yelling we have a bite and she starts to swell and explode. Well I  obviously do not physically explode, but I cry, and turn emo, and ragey and have terrible bloating and other not nice things to  speak on. So  we refer to gluten and glutening as "glutenfield."

:lol: Too funny! I haven't seen Cloverfield yet, but isn't it funny how gluten is like a horror movie? I literally have nightmares about eating gluten.

Harpgirl Explorer
Harpgirl
Posted
  • Author

Sometimes I say that I look like the Pillsbury Doughboy!

Oh yeah, I get that too. Whenever I get glutened, at some point I will also be menstruating since my symptoms tend to last 5 weeks. I have certain clothes that just will not fasten during those weeks.

Serielda Enthusiast
Serielda
Posted

I am over joyed that I don't have the monthly ordeal anymore since my hysterectomy. But before that I can remember it was absolutely horrific. I

bartfull Rising Star
bartfull
Posted

Just call me "Patty Poopy Pants with dementia and a rash" :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Harpgirl Explorer
Harpgirl
Posted
  • Author

Just call me "Patty Poopy Pants with dementia and a rash" :lol:

:lol: You should put that in a song and play it on your guitar!

bartfull Rising Star
bartfull
Posted

They call me Patty Poopy Pants

And I don't feel so hot

My brain is in a constant fog

My rash itches a lot

 

It's hard to get to sleep at night

Although I'm always tired

My doctor thinks I'm crazy so

It's time that he was fired

 

My feet are swollen every night

My joints all really ache

I get the hiccups every day

I just can't catch a break

 

I need to keep a bathroom near

Except when I'm constipated

The gas pains have me doubled over

No wonder I'm so frustrated

 

The doctor says it's IBS

Or else all in my head

Sometimes I think if I had a gun

That doctor would be dead

 

For years I've suffered needlessly

With nausea and tootin'

When all I really had to do

Was take myself off gluten

Harpgirl Explorer
Harpgirl
Posted
  • Author

They call me Patty Poopy Pants

And I don't feel so hot

My brain is in a constant fog

My rash itches a lot

 

It's hard to get to sleep at night

Although I'm always tired

My doctor thinks I'm crazy so

It's time that he was fired

 

My feet are swollen every night

My joints all really ache

I get the hiccups every day

I just can't catch a break

 

I need to keep a bathroom near

Except when I'm constipated

The gas pains have me doubled over

No wonder I'm so frustrated

 

The doctor says it's IBS

Or else all in my head

Sometimes I think if I had a gun

That doctor would be dead

 

For years I've suffered needlessly

With nausea and tootin'

When all I really had to do

Was take myself off gluten

That is awesome!  :lol:

GottaSki Mentor
GottaSki
Posted

During my worst flares we use my least favorite, yet extremely accurate nickname....'Human Amoeba'.

'BubbleGirl' takes care of my "allergic" reactions to environment and exercise.

And then there is one many of us like to use...I'm feeling froggy...started when someone with brain fog mistyped...and it fits.

Harpgirl Explorer
Harpgirl
Posted
  • Author

During my worst flares we use my least favorite, yet extremely accurate nickname....'Human Amoeba'.

'BubbleGirl' takes care of my "allergic" reactions to environment and exercise.

And then there is one many of us like to use...I'm feeling froggy...started when someone with brain fog mistyped...and it fits.

lol, my hubby and I use BubbleGirl too. When I'm making dinner, I hold at least one thoroughly washed hand up as if I were a surgeon avoiding contamination of my patient.

lmj623 Apprentice
lmj623
Posted

On Tuesday when i was hitting the peak of my emotional madness (post glutening) at work I wanted to put a sign around my neck that said "warning: volatile specimen. Approach with caution" or something along the lines of me being a psycho b. sigh.. now I am just to the week long lingering of nausea and multiple trips to the bathroom. Happy wedding anniversary!

 

something weird is going on in there...

Serielda Enthusiast
Serielda
Posted

Lol@the "bubble girl" comments. My baby has in several occasions that he's opted sticking me in a bubble. It usually ends up with me saying nih uh, let's no be ridiculous.

During my worst flares we use my least favorite, yet extremely accurate nickname....'Human Amoeba'.

'BubbleGirl' takes care of my "allergic" reactions to environment and exercise.

And then there is one many of us like to use...I'm feeling froggy...started when someone with brain fog mistyped...and it fits.

Pegleg84 Collaborator
Pegleg84
Posted

Bartful, you're the best!

 

And aside from my boyfriend singing silly songs about me pooping (which is kind of endearing in a gross annoying way), I just say that, when it really bad post-glutening emotional rages, "Either it'll kill me or I'll kill someone, whichever comes first"

 

Yep, my gut hates me.

Sock Newbie
Sock
Posted

Lava diarrehia. Sometimes with constipation at the same time. Yeah, I didn't think it was possible either, but I'm on the cutting edge of bathroom science. Boldly going where no man will admit to having gone before...

 

"Either it'll kill me or I'll kill someone, whichever comes first"  ...I'm stealing that.

beth01 Enthusiast
beth01
Posted

I can finger paint with my poop from one day and have every color of the rainbow available to me.  Enough said.

across Contributor
across
Posted

,

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,893
    • Most Online (within 30 mins)
      7,748
    RyanDunn
    Newest Member
    RyanDunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JulieRe
      Oral thrush question

      By JulieRe · Posted

      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      Gluten free beer ?

      By Ceekay · Posted

      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Oral thrush question

      By Rejoicephd · Posted

      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      Advice while waiting for testing

      By Scott Adams · Posted

      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      Daura Damm (a sponsor here) uses AN-PEP enzymes and filtering in their brewing process to reduce/remove gluten, and it actually tests below 10ppm (I've see a document where they claim 5ppm). 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.