Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Get Creative Describing Your Symptoms - Zombie Porcupines!

Harpgirl

By Harpgirl
in Coping with Celiac Disease

Recommended Posts

Harpgirl Explorer
Harpgirl
Posted

I've been suffering from gluten exposure recently and because I don't "look sick," I started coming up with ways to describe how I feel. I have several symptoms, but the best thing I've found to get my point across about the pain is to say that it feels like I swallowed a porcupine.

 

I stepped it up by doing something fun. On my author blog, I dressed up a picture of a porcupine to "zombify" it. Green eyes and everything. ;) "Forget brains...must destroy guts." Because there's no mercy to the pain and no perfect way to stop it than time. I'd post it here if you guys want me to, but I haven't even showed it to my boys because my 6-year-old is afraid of "zombies." lol. Didn't know if it would be okay here.

 

Anyway, creating the picture turned out to be fun. Kind of like hitting the bulls-eye on a dunk tank with a someone who knows how to throw insults.

 

So what are some creative ways that you can come up with to describe what gluten does to you?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Serielda Enthusiast
Serielda
Posted

One night the hubby and I was watching Cloverfield and he made a funny, at the time it wasn't so funny as we had in july an incident with a local PF Changs mentioned in a past post but that is another ball of wax. So back to the cloverfield deal, in the movie where the one actor Lizzy Caplan plays as Marlena Diamond gets bit and they are in the  army lab and she states I do not feel so good, and they grab her yelling we have a bite and she starts to swell and explode. Well I  obviously do not physically explode, but I cry, and turn emo, and ragey and have terrible bloating and other not nice things to  speak on. So  we refer to gluten and glutening as "glutenfield."

1desperateladysaved Proficient
1desperateladysaved
Posted

Sometimes I say that I look like the Pillsbury Doughboy!

Harpgirl Explorer
Harpgirl
Posted
  • Author

One night the hubby and I was watching Cloverfield and he made a funny, at the time it wasn't so funny as we had in july an incident with a local PF Changs mentioned in a past post but that is another ball of wax. So back to the cloverfield deal, in the movie where the one actor Lizzy Caplan plays as Marlena Diamond gets bit and they are in the  army lab and she states I do not feel so good, and they grab her yelling we have a bite and she starts to swell and explode. Well I  obviously do not physically explode, but I cry, and turn emo, and ragey and have terrible bloating and other not nice things to  speak on. So  we refer to gluten and glutening as "glutenfield."

:lol: Too funny! I haven't seen Cloverfield yet, but isn't it funny how gluten is like a horror movie? I literally have nightmares about eating gluten.

Harpgirl Explorer
Harpgirl
Posted
  • Author

Sometimes I say that I look like the Pillsbury Doughboy!

Oh yeah, I get that too. Whenever I get glutened, at some point I will also be menstruating since my symptoms tend to last 5 weeks. I have certain clothes that just will not fasten during those weeks.

Serielda Enthusiast
Serielda
Posted

I am over joyed that I don't have the monthly ordeal anymore since my hysterectomy. But before that I can remember it was absolutely horrific. I

bartfull Rising Star
bartfull
Posted

Just call me "Patty Poopy Pants with dementia and a rash" :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Harpgirl Explorer
Harpgirl
Posted
  • Author

Just call me "Patty Poopy Pants with dementia and a rash" :lol:

:lol: You should put that in a song and play it on your guitar!

bartfull Rising Star
bartfull
Posted

They call me Patty Poopy Pants

And I don't feel so hot

My brain is in a constant fog

My rash itches a lot

 

It's hard to get to sleep at night

Although I'm always tired

My doctor thinks I'm crazy so

It's time that he was fired

 

My feet are swollen every night

My joints all really ache

I get the hiccups every day

I just can't catch a break

 

I need to keep a bathroom near

Except when I'm constipated

The gas pains have me doubled over

No wonder I'm so frustrated

 

The doctor says it's IBS

Or else all in my head

Sometimes I think if I had a gun

That doctor would be dead

 

For years I've suffered needlessly

With nausea and tootin'

When all I really had to do

Was take myself off gluten

Harpgirl Explorer
Harpgirl
Posted
  • Author

They call me Patty Poopy Pants

And I don't feel so hot

My brain is in a constant fog

My rash itches a lot

 

It's hard to get to sleep at night

Although I'm always tired

My doctor thinks I'm crazy so

It's time that he was fired

 

My feet are swollen every night

My joints all really ache

I get the hiccups every day

I just can't catch a break

 

I need to keep a bathroom near

Except when I'm constipated

The gas pains have me doubled over

No wonder I'm so frustrated

 

The doctor says it's IBS

Or else all in my head

Sometimes I think if I had a gun

That doctor would be dead

 

For years I've suffered needlessly

With nausea and tootin'

When all I really had to do

Was take myself off gluten

That is awesome!  :lol:

GottaSki Mentor
GottaSki
Posted

During my worst flares we use my least favorite, yet extremely accurate nickname....'Human Amoeba'.

'BubbleGirl' takes care of my "allergic" reactions to environment and exercise.

And then there is one many of us like to use...I'm feeling froggy...started when someone with brain fog mistyped...and it fits.

Harpgirl Explorer
Harpgirl
Posted
  • Author

During my worst flares we use my least favorite, yet extremely accurate nickname....'Human Amoeba'.

'BubbleGirl' takes care of my "allergic" reactions to environment and exercise.

And then there is one many of us like to use...I'm feeling froggy...started when someone with brain fog mistyped...and it fits.

lol, my hubby and I use BubbleGirl too. When I'm making dinner, I hold at least one thoroughly washed hand up as if I were a surgeon avoiding contamination of my patient.

lmj623 Apprentice
lmj623
Posted

On Tuesday when i was hitting the peak of my emotional madness (post glutening) at work I wanted to put a sign around my neck that said "warning: volatile specimen. Approach with caution" or something along the lines of me being a psycho b. sigh.. now I am just to the week long lingering of nausea and multiple trips to the bathroom. Happy wedding anniversary!

 

something weird is going on in there...

Serielda Enthusiast
Serielda
Posted

Lol@the "bubble girl" comments. My baby has in several occasions that he's opted sticking me in a bubble. It usually ends up with me saying nih uh, let's no be ridiculous.

During my worst flares we use my least favorite, yet extremely accurate nickname....'Human Amoeba'.

'BubbleGirl' takes care of my "allergic" reactions to environment and exercise.

And then there is one many of us like to use...I'm feeling froggy...started when someone with brain fog mistyped...and it fits.

Pegleg84 Collaborator
Pegleg84
Posted

Bartful, you're the best!

 

And aside from my boyfriend singing silly songs about me pooping (which is kind of endearing in a gross annoying way), I just say that, when it really bad post-glutening emotional rages, "Either it'll kill me or I'll kill someone, whichever comes first"

 

Yep, my gut hates me.

Sock Newbie
Sock
Posted

Lava diarrehia. Sometimes with constipation at the same time. Yeah, I didn't think it was possible either, but I'm on the cutting edge of bathroom science. Boldly going where no man will admit to having gone before...

 

"Either it'll kill me or I'll kill someone, whichever comes first"  ...I'm stealing that.

beth01 Enthusiast
beth01
Posted

I can finger paint with my poop from one day and have every color of the rainbow available to me.  Enough said.

across Contributor
across
Posted

,

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    2. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    3. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    5. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.