Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Low Back Pain Normal When Having An Attack?


Sbwife14

Recommended Posts

Sbwife14 Rookie

Idk what I've come in contact with but I'm having the excess, bloating and gas but my low back is very sore. I can't get comfortable with stomach or back. Advice?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Make sure you are completely gluten free (cross contamination) including all medications, lipstick etc. Patience is the next step. Think about removing all dairy from your diet cause damage villi often can not release the enzymes need to digest lactose (milk sugar).

Short term fix? Heating pad for your back?

Keep a food journal to help determine other possible food intolerances (besides milk).

Oh, have you had a bone scan? I am 52 and had two vertebrae fractures just after my diagnosis. The pain was awful and I did NOTHING to cause the fractures! Osteopenia in hips and lower spine (one point from osteoporosis) and doc think I have osteoporosis in my upper back. A year later and I am feeling great. My hips and ribs are also no longer hurting which I attributed to old age!

cap6 Enthusiast

I had extreme lower back pain before being diagnosed, when I was at my sickest.  Every time I ate gluten (altho didn't know it was the prob at the time) I had back pain so bad I wanted to cry.  It could very well be a symptom of glutening.

Sbwife14 Rookie

Thank y'all so much! I had a bad attack over the weekend and carried over to today. Saw my PCP this evening. She is scheduling CT abdomen with contrast, repeat EGD, colonoscopy with biopsy. The only thing I've ever had done was labs and EGD. Every time I have an attack bad low back pain accompanies. The seat Warner's in my car are awesome! Otherwise I just deal with it. I'm concerned about cross contaminating...I am new and this is a hard adjustment for me...still learning.

golfman Newbie

I have had low back pain and stomach pain for over a month now. Also no appetite. I have been gluten free for almost 2 weeks. Shouldn't I be feeling much better by now?

cyclinglady Grand Master

I have had low back pain and stomach pain for over a month now. Also no appetite. I have been gluten free for almost 2 weeks. Shouldn't I be feeling much better by now?

Patience! It takes time to heal!

I know you feel bad. I felt a bit better by six weeks to notice a difference. It has been a year and a half and I finally starting to feel really good.

Hang in there!

Sbwife14 Rookie

I definitely felt a difference in the first week begin gluten free.....it's hard to not cross contaminate.....hoping it'll all get better with time


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



golfman Newbie

Thanks! I'm trying to be patient! It's just so hard when you have no appetite and don't sleep good because the pain keeps waking you up. :(

Sbwife14 Rookie

I understand! Hang in there!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,914
    • Most Online (within 30 mins)
      7,748

    Momxiety
    Newest Member
    Momxiety
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.