Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test -- Dr Didn't Specify The Celiac Panel :(

CanadianK

Recommended Posts

CanadianK Apprentice
CanadianK
Posted

Hi all

 

I was here awhile ago asking about blood tests and my daughters anxiety, etc. Anyways, I finally got her blood test done and the Dr called with the results but then said, there are no celiac results, but her IGA is fine. What?!? Turns out my dr. didn't specify on the form that she wanted the celiac panel, instead she just wrote IgA. I'm annoyed and feeling so stupid with myself. I just went through this with myself and requested all the tests, but it felt like I had to work to convince my dr. to request the test for my daughter, that when she wrote out the requisition I didn't go over it and I didn't request all the tests I had asked for myself. 

 

I'm so disheartened. 

 

It took all my daughter's courage to get it done and in my haste I dropped the ball…

 

Of the tests she did get done:

 

Ferritin 26.8 (range 30.7-177)

Hemoglobin 129 (range 120-160)

White Blood Cell Count 3.7 (range 4-10) 

 

Her B12, sugar, kidney, thyroid and all of that is fine and normal. 

 

She's exhausted all the time and pale with dark circles under her eyes when she eats gluten (as well as the tummy aches, headaches, etc) She's continuing to eat gluten and we've been referred to a Peds GI.

 

Anyone have input about what the appt at the GI will be like? How to they usually handle things with children? 

 

Thanks for listening. I'm beating myself up over here…

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JodyM75 Apprentice
JodyM75
Posted

If you hurry and follow up fast, the lab may still have the vials of blood and they can do the correct test.  I was told my lab keeps the vials for at least 3 days. 

CanadianK Apprentice
CanadianK
Posted
  • Author

THANK YOU!! I called the lab and they keep kids blood for a month! I'm in the process of calling my Dr. to get her to add it in. I can't thank you enough!!

 

 

If you hurry and follow up fast, the lab may still have the vials of blood and they can do the correct test.  I was told my lab keeps the vials for at least 3 days. 

africanqueen99 Contributor
africanqueen99
Posted

Wow, this is just mind blowing that they keep the blood.  What awesome information to keep on hand!

beth01 Enthusiast
beth01
Posted

Most labs keep blood that they have run testing on for at least a few days. Some tests like complete blood counts, the vial of blood is only good for 24 hours, but tests that use serum or plasma, it can be good for up to 7 days to still have testing done on it if it is refrigerated or up to a month if frozen. It's all in how the lab processes the original sample though. This might not be the case for all labs. Some tests they automatically freeze the sample in case further testing is needed.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,542
    • Most Online (within 30 mins)
      7,748
    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.