Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itching And Prickles

Karla99

Recommended Posts

Karla99 Newbie
Karla99
Posted

I was diagnosed last month (biopsy and blood) and have tried to be VERY careful about what I eat and yet I am still having what I call the "prickle-itches". This travels all over my body and drives me crazy (even keeps me awake at night). Is this something anyone else has gone through? What am I doing wrong??????

Thanks for any help you can give me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elisabet Contributor
elisabet
Posted
I was diagnosed last month (biopsy and blood) and have tried to be VERY careful about what I eat and yet I am still having what I call the "prickle-itches".  This travels all over my body and drives me crazy (even keeps me awake at night).  Is this something anyone else has gone through? What am I doing wrong??????

Thanks for any help you can give me.

<{POST_SNAPBACK}>

My son had almost the same problem,we eliminated,diary,soy,and gluten,and all these are gone.

good luck

quantumsugar Apprentice
quantumsugar
Posted

Have you looked into DH? Open Original Shared Link Open Original Shared Link "The symptoms of intense burning, stinging and itching cannot be overemphasized" and "may keep patients awake at night".

Or, on the other hand, I get some kind of itchy ezcema/rash when I get any gluten, dairy, or soy--additional allergies should definitely be checked into, and make sure you've eliminated all gluten in everything, down to cosmetics, condiments, etc.

Rachel--24 Collaborator
Rachel--24
Posted

I know exactly what your talking about...I get that too but its not so bad that it keeps me up at night or anything. It sometimes happens after I eat and it happens alot after I've been glutened. There is no rash involved. Its just a weird feeling.

jpsych Newbie
jpsych
Posted

Your not alone. I was diagnosed over a month ago and had the same problem. My doctor prescribed me a prescription antihistimine that worked but made me tired. I don't have any itching problems now. It could be a detoxing response from getting off of gluten...or not.

Hope you feel better.

Karla99 Newbie
Karla99
Posted
  • Author

Thanks for all the responses....I have no rash just the "problem". I see the doctor on Monday so hopefully he'll have a GREAT answer. I can't tell you how much this forum helps me. You are all the greatest!!!!

julie5914 Contributor
julie5914
Posted

I feel like there's little bugs biting me at night. Is that what it feels like? I am taking magnesium b/c I was low on it last doc visit. Hoping it stops cause it makes me spazz out.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lorka150 Collaborator
lorka150
Posted

Do you mean, like, inside your body?

Rachel--24 Collaborator
Rachel--24
Posted
I feel like there's little bugs biting me at night. Is that what it feels like? I am taking magnesium b/c I was low on it last doc visit. Hoping it stops cause it makes me spazz out.

<{POST_SNAPBACK}>

Yeah...what is that all about? I get that too...or it feels like bugs are crawling on me. :blink:

Karla99 Newbie
Karla99
Posted
  • Author

I also have the "bugs" crawling on me at night but the prickle/itch is kind of like little needles pokeing you but not to the point of hurting sorta like an itch...really hard to explain but drives a person crazy.

Rusla Enthusiast
Rusla
Posted

All of you who have DH did you get it when you were first gluten free also?

I itch so much I have a back scratcher in my bag at work.

Claire Collaborator
Claire
Posted

First off to repeat myself, I do not have celiac disease. I have not yet been tested for non-celiac gluten sensitivity. I have been tested and diagnosed with Type II, Delayed Food Reactions and LGS.

On the reactive foods list is wheat, barley, rye. among many other things.

Before my diagnosis for DFR and LGS I had constant itching (intense - especially at night) accompanied by fierce cold chills. There was no rash. With the diagnosis (which did not specify gluten) I gave up bread and flour laden foods. Within a week the itching and chills went from nearly intolerable to manageable - i.e. flare ups at times but symptom free a lot of the time. As I didn't know the issue to be gluten I made no attemp to go gluten-free. I now am Gluten-free Casein-free - since August.

Because there may be more than one culprit you will be disappointed if you look for gluten to be responsible for all your symptoms. This leads you to expect everything nasty to go away - and immediately. It doesn't work tht way. Food sensitivities is almost a certainty if you have LGS> If you have celiac you are almost certain to have LGS. Any number of other foods could be causing your problem. I have had episodes of chills and itching when I know I had not been exposed to any grains. It had to be one of those other things. Claire

Noelle126 Apprentice
Noelle126
Posted

I also get the bugs crawling itchy feeling..I always thought I was just weird.,...thankfully I am not the only one! :blink:

jerseyangel Proficient
jerseyangel
Posted

I used to feel the "crawlies", too especially the 2 years before going gluten-free. It was mostly in my legs in bed at night. Sometines, they would also affect my left arm, neck and face. They are mostly gone now :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,542
    • Most Online (within 30 mins)
      7,748
    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.