Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Small Town Celiac


fradyboster

Recommended Posts

fradyboster Newbie

Anyone have advice for a new small town celiac? Diagnosed 60 days ago. Still learning, eating out is not working out. Lots of adjustments. Most don't understand.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome to the forum!

Take a minute to read our Newbie 101 thread under the "Coping" section. Here is a direct link:

https://www.celiac.com/forums/topic/91878-newbie-info-101/

Then ask lots of questions.

SMRI Collaborator

Eating out in big towns doesn't work usually either.  Unless you can find a gluten free restaurant, with a dedicated kitchen, it's really hit or miss.  In the past couple weeks, even normally reliable places have been bad for me.  It's just not worth it.

fradyboster Newbie

My local grocery has a gluten free section that contains about 12 flours and mixes. And that's it. Eating at home works but I have to travel some to get pretzels and things like that. I hate telling the waitress that I have celiac or that I have a wheat allergy because I get this stare and look like 'what are you talking about? '

cyclinglady Grand Master

Ah, we ALL get that look from food servers. Eating out with ease is what I miss most!

luvs2eat Collaborator

We're small town too... in Arkansas. While the two healthfood stores carry a lot of stuff... it's very expensive and I've ordered a lot of stuff from that online store named for that big So. America river over the years. Ordering things like Tinkyada pasta in bulk (12 packages) and the flour I like to use for baking (Better Batter) and bread mix (Pamela's) is less expensive that the stores and they bring it to my door! We don't eat out either. I've just had too many bad experiences... having the long conversation w/ waitstaff and managers only to get my order and finding it filled w/ flour tortilla strips or other no-nos. It's just not worth it. We eat simply and (mostly) freshly and rarely buy anything of a processed nature. It's difficult but doable!

nvsmom Community Regular

My local grocery has a gluten free section that contains about 12 flours and mixes. And that's it. Eating at home works but I have to travel some to get pretzels and things like that. I hate telling the waitress that I have celiac or that I have a wheat allergy because I get this stare and look like 'what are you talking about? '

 

Welcome to the board.  :)

 

Once you find a few gluten-free items that you like, you won't need more variety.  Most of us just used wheat flour before we were dagnosed, and that's just one thing, right?  I tend to keep coconut flour and Bob's Red Mill All purpose gluten-free flour in my cupboard.  I also use ground flax meal, hemp and ground chia seeds in most of my baking but they are becoming more mainstream and aren't generally marketed as gluten-free items.

 

The other gluten-free items I keep on hand are granola bars, Glutino brownie mix, a lemon cake mix, cookie crumbs, Bob's Red Mill Pizza Crust, boullion cubes, soy sauce, worchestershire sauce, and Udi's bread. I think most everything else is just plain old food.

 

A word of warning, gluten-free flours tend to not last as long as regular flour so if you are keeping it for many months, you may want to keep it in the freezer.

 

Hang in there.  You'll get in the groove.... and get used to not eating out that often.  :(  I tend to go out for coffee now - it's cheaper anyways.  ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

Get the "The How Can It Be Gluten Free Cookbook" by America's Test Kitchen. It's amazing! They have figured it all out & the recipes do not disappoint. It takes time to make them but it will save you tons of grief trying this & trying that & ending up throwing a ton of stuff in the garbage which relates to throwing money down the drain. 

You will get used to ordering your supplies online. In many ways it's much better b/c it comes right to your door. 

BlessedMommy Rising Star

I love Amazon subscribe and save, they have some great deals on gluten free items. The Bob's Red Mill is over $10 per pound at the grocery store and I can get it for about $6.50 per pound on Amazon.

SMRI Collaborator

Depending on how you ate before, most food is naturally gluten free.  Don't go overboard thinking you have to buy dedicated gluten-free foods.  Obviously for bread, pasta, etc. you will have to change, but if you usually have a meat, potatoes, vegetable for a meal, all of that will most likely be gluten-free.  Some things to watch are meats with added seasonings/broth and I've found a couple frozen vegetables that have been processed in a plant with wheat or have a gluten containing something in them, barley or something.  99% of frozen veges are fine though.

 

I'm sure there are trips into a bigger city at times.  You can stock up on bread--I like Udi's the best and it's kept in the freezer section-pasta, etc.

cap6 Enthusiast

Whole natural foods are the best.  Best for you, naturally gluten free and help to heal the gut.  I stay away, as much as possible, from any processed foods, even if they are gluten free foods.  If they have more than a couple of ingredients listed then it ceases to be  a whole natural food and instead become a food product ewhich can cause gut issues.

Stacy0w Enthusiast

I hear ya! Diagnosed a few weeks ago. Merry Christmas to me. We live in a tiny. No gluten-free restaurants within 100 miles. We have maybe a 2' section of gluten-free food at our grocery store. It's frustrating. I've been eating chicken and rice or potato. Yesterday was sad for me because all of my fav foods were a no go. Going off gluten is messing with my hormones too so I'm hoping in 6 months it won't be a huge deal for me anymore. It has to get easier! :)

squirmingitch Veteran

It gets a TON easier. Hang in there. Believe it or not, it will become second nature.

SMRI Collaborator

I would also talk to the manager of your grocery store to see if they can stock other gluten free foods for you, bread and pasta especially.  Udi's bread and some others come frozen so it's easier to keep in a store with lower turnover of products.  I'm going to guess you are not the only one in your town that would buy the gluten-free products too.

bartfull Rising Star

In my tiny town it took a while but there is a nice woman who works at one of the grocery stores. I got to know her and she kept pushing the manager, telling him she had had lots of requests for gluten-free foods. They finally started stocking them and now have a whole section on a separate "island", away from gluten foods. Breads, pastas, baking mixes, salad dressings and dips, cookies, crackers, chips, lara bar type things, soups, sauces, you name it.

  • 4 weeks later...
mynxr Rookie

I live in a small town in coastal NC.  They are finally starting to stock some gluten free items.  Udi's bread is just too expensive so I make my own.  My husband and I through trial and error have found a great bread recipe that tastes just like regular bread.  The texture is a little firmer but other than that, it's wonderful.  Depending on the things you like to eat, there are gluten free cookbooks out there for just about everything.

 

One thing a lot of people don't mention is that if you have been diagnosed with Celiac then the difference in price between gluten free items and their "normal" equivalent is a medical tax deduction.  It doesn't help in the short term but at tax time, it can be a definite blessing.  Just make sure to keep your receipts.

 

I don't know what state you live in but another thing that's tax deductible is sales tax.  We didn't really worry about it in Ohio because most things weren't taxed.  However, here in NC, it was literally sticker shock because they tax EVERYTHING!  Plus they have more than one tax rate so figuring it out in your head as you grocery shop is impossible.  So, we keep all our receipts and I have a spreadsheet for sales tax, medical items, etc.

 

Hang in there.  It does get easier.  Every once in a while, I do get blindsided by something but for the most part it's not bad.  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to FannyRD's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

    2. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

    3. - trents replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

    4. - FannyRD posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,180
    • Most Online (within 30 mins)
      7,748

    Eldret419
    Newest Member
    Eldret419
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • FannyRD
      Thanks for the resource! I will check it out!
    • Scott Adams
      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Living with celiac disease can be especially hard when you’re in a smaller town and don’t have many people around who truly understand it, so you’re definitely not alone in feeling this way. Ongoing fatigue, joint pain, and headaches are unfortunately common in people with celiac disease, even years after diagnosis, and they aren’t always caused by gluten exposure alone. Many people find that issues like low iron, low vitamin D, thyroid problems, other autoimmune conditions, or lingering inflammation can contribute to that deep exhaustion, so it’s reasonable to push your doctor for more thorough blood work beyond just vitamin B. As for eggs, it’s also not unusual for people with celiac disease to develop additional food intolerances over time; tolerating eggs as an ingredient but not on their own can point to sensitivity to the proteins when they’re concentrated. Some people do better avoiding eggs for a while, then carefully testing them again later. Most importantly, trust your body—if something consistently makes you feel awful, it’s okay to avoid it even if it’s technically “allowed.” Many of us have had to advocate hard for ourselves medically, and connecting with other people with celiac disease, even online, can make a huge difference in feeling supported and less isolated.
    • trents
      Welcome to the celiac.com community, @Cecile! It is common for those with celiac disease to develop sensitivity/intolerance to non-gluten containing foods. There is a high incidence of this with particularly with regard to dairy products and oats but soy, eggs and corn are also fairy common offenders. Like you eggs give me problems depending on how they are cooked. I don't do well with them when fried or scrambled but they don't give me an issue when included in baked and cooked food dishes or when poached. I have done some research on this strange phenomenon and it seems that when eggs are cooked with water, there is a hydrolysis process that occurs which alters the egg protein such that it does not trigger the sensitivity/intolerance reaction. Same thing happens when eggs are included in baked goods or other cooked dishes since those recipes provide moisture.  So, let me encourage you to try poaching your eggs when you have them for breakfast. You can buy inexpensive egg poacher devices that make this easy in the microwave. For instance:  https://www.amazon.com/Poacher-Microwave-Nonstick-Specialty-Cookware/dp/B0D72VLFJR/ Crack the eggs into the cups of the poacher and then "spritz" some water on top of them after getting your fingers wet under the faucet. About 1/4 teaspoon on each side seems to work. Sprinkle some salt and pepper on top and then snap the poacher shut. I find that with a 1000 watt microwave, cooking for about 2 minutes or slightly more is about right. I give them about 130 seconds. Fatigue and joint pain are well-established health problems related to celiac disease.  Are you diligent to eat gluten-free? Have you been checked recently for vitamin and mineral deficiencies? Especially iron stores, B12 and D3. Have you had your thyroid enzyme levels checked? Are you taking any vitamin and mineral supplements? If not, you probably should be. Celiac disease is also a nutrient deficiency disease because it reduces the efficiency of nutrient absorption by the small bowel. We routinely recommend celiacs to supplement with a high potency B-complex vitamin, D3, Magnesium glycinate (the "glycinate" is important) and Zinc. Make sure all supplements are gluten-free. Finally, don't rule out other medical problems that may or may be associated with your celiac disease. We celiacs often focus on our celaic disease and assume it is the reason for all other ailments and it may not be. What about chronic fatigue syndrome for instance?
    • FannyRD
      I work as a renal RD and have a Celiac pt which has been rare for me (I might have had 3-4 Celiac pts in 15 years). I wondered if anyone can confirm that these medications are gluten free and safe for Celiac.  Ferric citrate (Auryxia)  Sucroferric oxyhydroxide (Velphoro)  lanthanum carbonate (Fosrenol) sevelamer carbonate (Renvela)   Thank you!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.