Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Say Anything?


Googles

Recommended Posts

Googles Community Regular

I got food as gifts from my extended relatives. They often give food as gifts. Last year my relative searched a lot for a baking mix that went with a cookbook and was gluten free. But I don't think they really understand what gluten free means. This year everything she sent me food wise contained gluten. I am very thankful for the gifts that they gave me. I don't know if I should mention when I thank them for the gifts that they got me that I will be sharing the food with friends since I can't eat any of it. I don't want them to think I don't appreciate the gift, but I don't want them going and buying me food year after year that I can't eat. Any advice? Thanks. Just another piece of information. Since I live on the other side of the country I don't see these relatives so they don't understand about the whole gluten free thing as they haven't been part of that part of my life as I was diagnosed after I moved. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StephanieL Enthusiast

I would say thank you and take it to a neighbor, work or the police station for them to enjoy.  They were informed and tried but it's hard to remember esp if they don't see you all the time.  I say be grateful and pass it along.  My DH doesn't drink (hasn't ever since I have know him so over 20 years).  He was gifted a bottle of wine for Christmas.  He took it, said thanks and that was that. 

LauraTX Rising Star

In cases like this, you really have to judge based on your relationship with the person, etc.  If you don't feel that mentioning "My friends really liked those things you got me, I had to give them to them since they contained my allergen, so they say thank you, too! haha!" (Kind of a way to say it with humor)... Then I would wait until around your birthday, or a few months before Christmas next year, and just let people know to avoid giving you food since you have a food allergy that can make things difficult.  I use both of these techniques depending on the person.  With my general extended family, anytime around holidays I tell them, or tell someone to tell them, just don't get food for Laura.  Kind of like when I extend an invite to someone to come to my house, I always remind them to let me handle the food so they can just relax, and that jogs their memory, since it may not be at the top of people's minds.

 

People who you are not close to, or who may not handle being told things like "I can't eat your gift but thanks!" well, just let it pass and like StephanieL said, give it to someone who will enjoy.  But if you are going to see someone year after year, sometimes it is a sanity saver to throw out the "no food for me" message early before the holidays.  Just use your best judgement, be grateful, but remember you don't have to be completely dishonest with everyone every time.

sunny2012 Rookie

I get food from a good friend all the time. Even gluten-free foods can be cross contaminated when shelved among gluten flours, breads, and such. She just does not get it. So I simply thank her for her thoughtfulness and toss the entire package or bag.

 

Some people simply don't realize that we can end up starving to death if we constantly take risks. And I am not certain that constant destruction of the intestinal lining won't lead to scaring that prevents healing after too much assault.

heatman Rookie

If you decide to say something you could suggest that since your diagnosis you've been cooking a lot so kitchen supplies (such as bowls and whisks) are always a great gift. They're still food related gifts and very useful! I know around the holidays it can be so hard to get family to understand what gluten-free really means! Good luck.

GF Lover Rising Star

My brother gave us a hugh box of chocolate confections for Christmas (in person).  It had chocolate covered pretzels in their too.  I didn't say anything to him as he was giving a gift.  They will be enjoyed by my neighbors.  I don't worry about it.  It's once a year and I don't expect everyone to keep track of my health issues.

 

Colleen

Googles Community Regular

Thank you everyone. This is the first time I've had to deal with this as most people stopped giving me food once I was diagnosed. This relative being the exception. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

I had no problem at all giving away the peppermint bark a neighbor gave me. I just thanked him and said it looked good, then gave it to one of my students later. (It might have been safe but there's no way I'll eat something made in a gluten eater's kitchen.)

 

But then another guy gave me some homemade cheesecake. I disposed of that too, but now I've got a craving for cheesecake. :lol: Guess I'll have to make a gluten-free version for myself pretty soon.

Seeking2012 Contributor

I got food as gifts from my extended relatives. They often give food as gifts. Last year my relative searched a lot for a baking mix that went with a cookbook and was gluten free. But I don't think they really understand what gluten free means. This year everything she sent me food wise contained gluten. I am very thankful for the gifts that they gave me. I don't know if I should mention when I thank them for the gifts that they got me that I will be sharing the food with friends since I can't eat any of it. I don't want them to think I don't appreciate the gift, but I don't want them going and buying me food year after year that I can't eat. Any advice? Thanks. Just another piece of information. Since I live on the other side of the country I don't see these relatives so they don't understand about the whole gluten free thing as they haven't been part of that part of my life as I was diagnosed after I moved. 

 

Just email or facebook your relatives a list of safe brands (Bob's red mill gluten-free, Udi's, Dove, etc) or ask everyone to not give food as gifts.

julissa Explorer

I teach at a gym and got some food from some of my students. they don't know me well, so I just thanked them and gave it away. anyone who knows me would never give me food, LOL 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      High TTG-IgG and Normal TTG-IgA

    2. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    4. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,867
    • Most Online (within 30 mins)
      7,748

    mark847
    Newest Member
    mark847
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.