Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

School Trips

Schleebee's Momma

Recommended Posts

Schleebee's Momma Newbie
Schleebee's Momma
Posted

New to the forum, new to celiac momdom.  Anyone out there have advice on sticking your celiac teen on a bus for a sixteen hour drive to Universal Studios for a chorus adjudication trip?  I just don't see how this is going to be possible.  They will stay four days then return home via another sixteen hour bus trip.  Universal does not guarantee gluten-free meals and I can't exactly pack a week of food.  And she can't exactly drive to a store while she is there.  I'd hate to have her miss out on the experience.  And I can't have her eat nothing but baked potatoes and grilled chicken salads all week.  What is with that and restaurants offering only those items gluten-free btw?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MycasMommy Enthusiast
MycasMommy
Posted

There are many restaurants at universal right?

 

Open Original Shared Link

 

All you can do is a little pre research, print out the avaiable options and hope for the best that she doesn't get glutened. The only other thign I can think of is that you DO pack a week of food in a cooler... if she is staying in any kind of hotel they should have a mini fridge she can store thigns in and a microwave to heat up things.  She is a teenager and she will want to go out with her classmates though.  You have to let her fly solo here and there, how else will she prepare herself for being an adult?  This is something she will have to face all of her life. If she goes and gets glutened even with the safe options, she will be the one to suffer. That feels terrible to know as a parent but what other way is there>?

MycasMommy Enthusiast
MycasMommy
Posted

oh here is another great article!

 

 

Open Original Shared Link

Schleebee's Momma Newbie
Schleebee's Momma
Posted
  • Author

Thanks!  I know, bit of a worry wart only because we are less than six months since diagnosis and her small intestine is/was a MESS.  I totally agree with the flying solo thing, but I'm finding that accidental glutening is usually incompetence on someone else's part, not hers.  Still in a very frustrated state of mind with that sad state of affairs.  Glad to have found this forum.  Why reinvent the wheel!  THANKS again.

bartfull Rising Star
bartfull
Posted

This is a school trip? You need to look into a 504 plan. I don't have kids but you can google it. It falls under the disabilities act and it requires the school to accomidate her diet. You should look into this regardless of this trip.

 

If you don't have time to get this into place, talk to the teachers and chaperones of this trip and see if they can do something to help.

MycasMommy Enthusiast
MycasMommy
Posted

Actually, that is a great idea Bartfull.  Go through the different restaurants there (or food carts?) and print off everyone's gluten-free menu options. Make 3 copies of it all. Hand one stapled copy to your daughter, and the other two to her direct chaperones.  You can speak to them about it. It LOOKS like (and I may be wrong) that just about every restaurant there will have some sort of gluten-free option. So almost anywhere her classmates want to go, she should be able to get something there. Its good for the chaperones to know if they are the ones deciding where everyone is going to eat though.

Schleebee's Momma Newbie
Schleebee's Momma
Posted
  • Author

She already has a 504, for the adhd that has suddenly disappeared since her diagnosis and new lifestyle.  I had the diagnosis included back in the fall, so she should be covered.  The teacher has sent me the trip coordinator's email and I'm in the process of finding out the itinerary now, including which restaurants they will be eating in.  Although most people don't understand the gravity of the situation and it is easier to just deal with myself.  On a side note: I don't let her eat at the school as they are completely clueless and I don't trust them to give her proper nutrition since they think ketchup is a vegetable. So she is used to packing her own food.  But for the trip I'm going to see if Amazon grocery delivers to the hotel once I have that info.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

If they are going on a bus, maybe she could take a cooler and a box of food?  Find out if the hotel has micro waves and ask for a fridge for her room for "medical need".  Freeze things like scrambled eggs or chili that she could eat in the am or the evening when she is at the hotel.  Pack some things to make a sandwich to take for lunch.  Go Picnic makes little meals like a Lunchable that are easy to pack.  You can get little packets of PB or hummus or almond butter to eat with crackers or carrots

celiac293 Newbie
celiac293
Posted

It might be worth trying to find out whether there are any kids, teachers or chaperones from any of the other participating choruses who have to eat gluten free too.  I have two kids with celiac, and while I haven't yet found any classmates who have celiac, I have been pleasantly surprised to find three of their teachers who are gluten free.  Those teachers have been an enormous help with school trips.  Good luck!

nvsmom Community Regular
nvsmom
Posted

Pack a BIG cooler.

 

I've sent my grade 7 son away to cadet camp a couple of times and the cooler is a help. They do have some gluten-free food but giving him some extra muffins, loaves, nuts, granola bars, crackers, and Chex was a big help to him.  I even sent along extra fruits and lunch meats to help fill him up. It's doable.

 

 I have also lived out of a cooler for a few days - it isn't too hard if you pack more than enough. 

 

Plan ahead and it will be a great time for her.  Best wishes.  :)

  • 1 month later...
gilligan Enthusiast
gilligan
Posted

What about those freeze dried backpacking meals?  Add hot water and stir.  The ones I had pre-celiac were really good, and I know they make gluten free ones now.  They are light weight and don't take up much space.  If nothing else, she could eat one in the morning, snack during the day, and eat another one at night to keep from getting hungry.  The last thing anyone needs is a fun trip that goes sour due to getting glutened.

StephanieL Enthusiast
StephanieL
Posted

Amazon Pantry is a service where you can send a large box anywhere in the US for $6.  We used it on trips to Boston and Orlando in the past year.  We did have fridges at both hotels so I sent things like hemp milk, cereal, bread and sunbutter.  Snacks too (chips and tortillas and the like).  It is well worth the $ for the peace of mind to know my DS had food there ready for him when we got there!

mamaw Community Regular
mamaw
Posted

You already  got  some  great  ideas  here... all I wanted  to  say is  ---- it is wonderful  that  ADHD has  left  your  child after  going  gluten-free... wish other  parents  would  consider  gluten-free  for  there  kids!

It  is  also  wonderful  that  you  are   aware  of life with celiac  , your  child  is  very lucky  to have  concerned parents, I  see many  who care  less about  their  kids  well being....

With  pre-planning &  some  of those  good suggestions  , she  will be safe  & have a great  experience..... can you go as a chaperone?That  way  your  mind  we also be at  ease...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748
    Miyasato
    Newest Member
    Miyasato
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.