Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed And My Whole Life Ahead Of Me


butterflygirl

Recommended Posts

Camillego12 Newbie

I am so glad to hear that I am not alone in this transition. I was sick and in unbearable pain for all 4 years of college. After one doctor finally took the time to help me, colonoscopy, upper endoscopy, and blood work, meetings with specialists, I have become healthy again.... Mostly. I had 2 good years and suddenly started feeling off again. One liver biposy later, and I find I also have auto immune hepatitis. THE FUN NEVER ENDS! 

 

It has been a long long road, but I am on the journey to become a gluten free, happy and healthy woman. My significant other has stayed with me through it all and as soon as I can pay off my medical bill debt, we will be married. :)

 

Has anyone else dealt with multiple autoimmune problems? How have you handled the bills if you didnt have insurance, or had crappy insurance?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

Yes, I have 3 other AI diseases on top of Celiac but all of mine have either stabilized or my symptoms were greatly reduced by following a strict gluten-free diet.....which is very good because I am not a fan of doctors and would rather manage my AI problems by diet and exercise.  I have been gluten-free for 10 years and I am not the same person I was pre-diagnosis so that goes to show how much the gluten-free diet can keep things under control.  There is no reason to believe that you cannot achieve this also, if you follow the diet as you should.  Liver issues can resolve on their own by following the diet.  The liver becomes especially irritated by gluten, if you have Celiac Disease.  I had elevated liver enzymes pre-diagnosis and they resolved on the diet.

 

I have always worked so have had good health insurance for when I needed it.  As far as racking up medical bills, pricing on tests can be negotiated, if you live in the US. Tell them you want the best price possible, if you don't have insurance.  I would also only pay them what you can afford comfortably because as long as you are making payments, they cannot do anything about it.  I think everyone should pay their debt off because it is all about personal responsibility but if it takes a bit longer, then so be it.  They'll get their money eventually.  ;)

 

Glad you are feeling better!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,241
    • Most Online (within 30 mins)
      7,748

    bennylb
    Newest Member
    bennylb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • chrish42
      I wonder how many doctors are aware of this site and would or should recommend it to their patients?
    • Zuma888
      I just got my test results after a less than 2-week gluten challenge consuming about 5 g of gluten per day on average.  Anti tTG-IgA: <0.2 AU/ml (<8 is negative) IgA: 180 mg/dl (Reference range is 70-400) I previously had been on a gluten-free diet for around 3 years or so, with occasional cheating and not being strict about cross-contamination. I am however still suffering from the effects of the gluten challenge (food sensitivities, slight brain fog, weird stool, fatigue, swollen thyroid, bodyaches). Is this likely to be NCGS rather than celiac disease given the test results and my history? Note: I have one copy of HLA-DQ8.
    • trents
      How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time. 
    • nataliallano
      Thanks Trents I'm strict with my gluten-free diet now. I just don't feel any better. I'm going to get tested for vitamins and minerals to see if I need some supplements. For sure I got some damage that doctors call Menier's and the only way they treat it is with medicine that does damage my body more than it helps.   
    • Zuma888
      Thank you Scott for your helpful response! Based on this, would you say someone who is on a gluten-free diet - but not strict about cross-contamination and occasional cheating - and tests negative for tTg-IgA while having normal total IgA is not likely to have celiac, even if they have been 'gluten-free' for years?
×
×
  • Create New...