Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joana

Recommended Posts

Joana Newbie

Hello, my name is Joana, sorry my English is not the best
5 months ago I'm having problems in genitas organs.
Initially began to feel a burning sensation in the genitals after putting several medications for fungi the situation has improved, but it starts to get  worse
In second phase I went to genecologista he sent me  to the dermatologist because I was diagnosed dermatitis medicated me with curtisona and Protopic past two months mucous have a normal appearance but a burning sensation continues.

I'm getting desperate, I went to a lot of doctors, they  told me it could be an autoimmune disease. I researched and I think may be the cedialac disease, I will do tests.
While walking causes me burning, I can not wear underwear,  I need help please!!
Does anyone have the same symptoms, or know of anything?

Thank you, please if you know something answer me. :( 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Ouch.  My first thought was it could be a yeast (candida) infection.  That can cause a great deal of discomfort.

 

The rash associated with celiac disease is dermatitis herpetiformis (dh).  It is a horribly itchy rash that is very sensitive to gluten consumption.  We have a forum for dh here, so asking questions about it there could give you more information. https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/

 

To see if the rash is dh, a doctor will need to biopsy and test beside the rash.  You can also have blood tests done: tTG IgA, tTG IgG, DGP IgA, DGP igG, EMA IgA, total serum IgA and maybe the older AGA IgA and AGA IgG tests.  Do not eat gluten-free until testing is done.

 

I'm sure other with rash experience will offer more advice.  Best wishes.

Joana Newbie

Thank you for your answer, i never had itchy, i have a sensation of burning and hot, i will see this forum.

Best regards

Ouch.  My first thought was it could be a yeast (candida) infection.  That can cause a great deal of discomfort.

 

The rash associated with celiac disease is dermatitis herpetiformis (dh).  It is a horribly itchy rash that is very sensitive to gluten consumption.  We have a forum for dh here, so asking questions about it there could give you more information. https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/

 

To see if the rash is dh, a doctor will need to biopsy and test beside the rash.  You can also have blood tests done: tTG IgA, tTG IgG, DGP IgA, DGP igG, EMA IgA, total serum IgA and maybe the older AGA IgA and AGA IgG tests.  Do not eat gluten-free until testing is done.

 

I'm sure other with rash experience will offer more advice.  Best wishes.

kareng Grand Master

I have to say it doesn't sound like classic Dermatitis Herpetiformis.

 

Open Original Shared Link

 

Open Original Shared Link

LauraTX Rising Star

Welcome to the forum.  What country are you located in?

 

What you describe doesn't sound like a typical presentation of DH.  While it wouldn't hurt to get tested for that and Celiac disease, have you been tested for other things, such as Sexually Transmitted Diseases?  Have you had cultures done, where they can see if there is bacteria or yeast there?  It just seems like something may have been missed, such as a bad yeast infection perhaps.  I would see another doctor for a second opinion.

cyclinglady Grand Master

Research Lichen Sclerosus. It is a skin disease that some doctors classify as an autoimmune disorder. It mostly affects the genitals. Some get it on their chest. No one know why it happens. It happens mostly to women. There is no cure, but special hydrocortisone medication for it can relieve itching and some pain. It seems to affect those with hormonal issues like those with thyroid disease or menopausal hormone drops. You can not infect your partner.

A biopsy may be required.

I wish you well.

Joana Newbie

Thank you for your awnser.

I am living in Portugal, it can´t be Sexually Transmitted Diseases, because i had done tests.

I done tests for baterias and yeast and they are negative. I went to a more than one doctor.

Before this start i lose 10 kilos.

Best Regards

 

Welcome to the forum.  What country are you located in?

 

What you describe doesn't sound like a typical presentation of DH.  While it wouldn't hurt to get tested for that and Celiac disease, have you been tested for other things, such as Sexually Transmitted Diseases?  Have you had cultures done, where they can see if there is bacteria or yeast there?  It just seems like something may have been missed, such as a bad yeast infection perhaps.  I would see another doctor for a second opinion.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Joana Newbie

Thank you, for the information, but i never had itchy, and I have the mucosa with a normal appearance. I have a sensation of burning in the vagina and anus.

Best Regards

Research Lichen Sclerosus. It is a skin disease that some doctors classify as an autoimmune disorder. It mostly affects the genitals. Some get it on their chest. No one know why it happens. It happens mostly to women. There is no cure, but special hydrocortisone medication for it can relieve itching and some pain. It seems to affect those with hormonal issues like those with thyroid disease or menopausal hormone drops. You can not infect your partner.

A biopsy may be required.

I wish you well.

  • 1 month later...
Joana Newbie

Hi everyone, my intolerance to gluten tests came back negative , but I gave positive bigotry bread yeast , I have seen on other blogs people who complain that by eating bread are burning with the genitals but will very little information about it . I will two weeks without eating bread, pasta, cereals, chocolates, drink milk or any alcoholic drink, basically just as fruit, soup, meat, fish .

My situation during these two weeks seemed to be improving , but it seems I was wrong, I still have a great ardor , when stray too walk my vagina ignites , today for example I did almost nothing and I have a big burning felling. I do not have fungi , itching , done a big variety of tests all come out negative. I am desperate please share you know .
Does anyone know how long I have to go without eating bread yeast to see results ?

Thank you 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

    2. - Russ H replied to Ginger38's topic in Related Issues & Disorders
      27

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - GFhappygirl commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

    4. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

    5. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,714
    • Most Online (within 30 mins)
      7,748

    jsaoyagi
    Newest Member
    jsaoyagi
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Russ H
      Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
    • knitty kitty
      @Heatherisle, You have good reason to worry.   Ask the doctors to do an Erythrocyte Transketolace Activity Assay to test for Thiamine B1 deficiency.  Thiamine deficiency is frequently found in B12 deficiency.  Deficiencies in all the B vitamins are common with malabsorption due to Celiac disease.  Thiamine can run out in as little as three days.   Thiamine deficiency symptoms can be mistaken for other diseases such as MS and Guillian-Barre Syndrome.  Thiamine deficiency symptoms include pain in legs and abdominal pain as well as depression and gastrointestinal symptoms. Thiamine B1, Pyridoxine B6 and Cobalamine B 12 together relieve nerve pain. References and Interesting Reading: Wernicke’s encephalopathy mimicking multiple sclerosis in a young female patient post-bariatric gastric sleeve surgery https://pmc.ncbi.nlm.nih.gov/articles/PMC8462913/ Thiamine Deficiency Masquerading As Guillain-Barré Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11872742/ Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke’s Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC6429982/ Is there a Link between Vitamin B and Multiple Sclerosis? https://pubmed.ncbi.nlm.nih.gov/28875857/ Thiamine Deficiency and Neurological Symptoms in Patients with Hematological Cancer Receiving Chemotherapy: A Retrospective Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC8559079/ The Effects of Vitamin B in Depression https://pubmed.ncbi.nlm.nih.gov/27655070/ Thiamine Deficiency Neuropathy in a Patient with Malnutrition due to Melancholic Depression https://pmc.ncbi.nlm.nih.gov/articles/PMC10942818/ Myopathy in thiamine deficiency: analysis of a case https://pubmed.ncbi.nlm.nih.gov/16920153/ Neurologic complications of thiamine (B1) deficiency following bariatric surgery in adolescents https://pubmed.ncbi.nlm.nih.gov/38705013/ B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pubmed.ncbi.nlm.nih.gov/31490017/ Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults https://pmc.ncbi.nlm.nih.gov/articles/PMC6459027/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Update on Safety Profiles of Vitamins B1, B6, and B12: A Narrative Review https://pmc.ncbi.nlm.nih.gov/articles/PMC7764703/  
    • Heatherisle
      Hi  There’s been no mention of her adrenal glands as far as I know
    • Theresa2407
      Have they checked her Adrenal glands.    
    • Heatherisle
      Just an update on my daughter. She is still in hospital and getting quite depressed about everything. She had a CT scan of head and chest to rule out stroke in view of her symptoms. Thankfully there is no evidence of that so they now want to do an MRI to rule out MS so this is freaking her out and it’s not doing me much good either!!!They’re also going to do further blood tests to check vitamin levels. My husband and I are trying to reassure her the best we can that hopefully it’s just her body’s reaction to having the Vitamin B medication and it’s affecting her nervous system etc. Think the tingling has subsided but still having some lower back and pelvic pain and some leg pain. Thanks for reading and my apologies if I sound paranoid.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.