Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joana

Recommended Posts

Joana Newbie

Hello, my name is Joana, sorry my English is not the best
5 months ago I'm having problems in genitas organs.
Initially began to feel a burning sensation in the genitals after putting several medications for fungi the situation has improved, but it starts to get  worse
In second phase I went to genecologista he sent me  to the dermatologist because I was diagnosed dermatitis medicated me with curtisona and Protopic past two months mucous have a normal appearance but a burning sensation continues.

I'm getting desperate, I went to a lot of doctors, they  told me it could be an autoimmune disease. I researched and I think may be the cedialac disease, I will do tests.
While walking causes me burning, I can not wear underwear,  I need help please!!
Does anyone have the same symptoms, or know of anything?

Thank you, please if you know something answer me. :( 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Ouch.  My first thought was it could be a yeast (candida) infection.  That can cause a great deal of discomfort.

 

The rash associated with celiac disease is dermatitis herpetiformis (dh).  It is a horribly itchy rash that is very sensitive to gluten consumption.  We have a forum for dh here, so asking questions about it there could give you more information. https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/

 

To see if the rash is dh, a doctor will need to biopsy and test beside the rash.  You can also have blood tests done: tTG IgA, tTG IgG, DGP IgA, DGP igG, EMA IgA, total serum IgA and maybe the older AGA IgA and AGA IgG tests.  Do not eat gluten-free until testing is done.

 

I'm sure other with rash experience will offer more advice.  Best wishes.

Joana Newbie

Thank you for your answer, i never had itchy, i have a sensation of burning and hot, i will see this forum.

Best regards

Ouch.  My first thought was it could be a yeast (candida) infection.  That can cause a great deal of discomfort.

 

The rash associated with celiac disease is dermatitis herpetiformis (dh).  It is a horribly itchy rash that is very sensitive to gluten consumption.  We have a forum for dh here, so asking questions about it there could give you more information. https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/

 

To see if the rash is dh, a doctor will need to biopsy and test beside the rash.  You can also have blood tests done: tTG IgA, tTG IgG, DGP IgA, DGP igG, EMA IgA, total serum IgA and maybe the older AGA IgA and AGA IgG tests.  Do not eat gluten-free until testing is done.

 

I'm sure other with rash experience will offer more advice.  Best wishes.

kareng Grand Master

I have to say it doesn't sound like classic Dermatitis Herpetiformis.

 

Open Original Shared Link

 

Open Original Shared Link

LauraTX Rising Star

Welcome to the forum.  What country are you located in?

 

What you describe doesn't sound like a typical presentation of DH.  While it wouldn't hurt to get tested for that and Celiac disease, have you been tested for other things, such as Sexually Transmitted Diseases?  Have you had cultures done, where they can see if there is bacteria or yeast there?  It just seems like something may have been missed, such as a bad yeast infection perhaps.  I would see another doctor for a second opinion.

cyclinglady Grand Master

Research Lichen Sclerosus. It is a skin disease that some doctors classify as an autoimmune disorder. It mostly affects the genitals. Some get it on their chest. No one know why it happens. It happens mostly to women. There is no cure, but special hydrocortisone medication for it can relieve itching and some pain. It seems to affect those with hormonal issues like those with thyroid disease or menopausal hormone drops. You can not infect your partner.

A biopsy may be required.

I wish you well.

Joana Newbie

Thank you for your awnser.

I am living in Portugal, it can´t be Sexually Transmitted Diseases, because i had done tests.

I done tests for baterias and yeast and they are negative. I went to a more than one doctor.

Before this start i lose 10 kilos.

Best Regards

 

Welcome to the forum.  What country are you located in?

 

What you describe doesn't sound like a typical presentation of DH.  While it wouldn't hurt to get tested for that and Celiac disease, have you been tested for other things, such as Sexually Transmitted Diseases?  Have you had cultures done, where they can see if there is bacteria or yeast there?  It just seems like something may have been missed, such as a bad yeast infection perhaps.  I would see another doctor for a second opinion.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Joana Newbie

Thank you, for the information, but i never had itchy, and I have the mucosa with a normal appearance. I have a sensation of burning in the vagina and anus.

Best Regards

Research Lichen Sclerosus. It is a skin disease that some doctors classify as an autoimmune disorder. It mostly affects the genitals. Some get it on their chest. No one know why it happens. It happens mostly to women. There is no cure, but special hydrocortisone medication for it can relieve itching and some pain. It seems to affect those with hormonal issues like those with thyroid disease or menopausal hormone drops. You can not infect your partner.

A biopsy may be required.

I wish you well.

  • 1 month later...
Joana Newbie

Hi everyone, my intolerance to gluten tests came back negative , but I gave positive bigotry bread yeast , I have seen on other blogs people who complain that by eating bread are burning with the genitals but will very little information about it . I will two weeks without eating bread, pasta, cereals, chocolates, drink milk or any alcoholic drink, basically just as fruit, soup, meat, fish .

My situation during these two weeks seemed to be improving , but it seems I was wrong, I still have a great ardor , when stray too walk my vagina ignites , today for example I did almost nothing and I have a big burning felling. I do not have fungi , itching , done a big variety of tests all come out negative. I am desperate please share you know .
Does anyone know how long I have to go without eating bread yeast to see results ?

Thank you 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,025
    • Most Online (within 30 mins)
      7,748

    Amari Love
    Newest Member
    Amari Love
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.