Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some Questions


Zebra007

Recommended Posts

Zebra007 Contributor

Hey I have a few questions if that's okay.

 

I have extremely dry facial skin, its bad.  This morning I slapped on Vaseline, and then applied more half an hour later, I think I am drinking enough water, and I know I am eating well and taking the correct vitamins, it could of course be linked to my other ailments, but I thought I would ask here first if its a symptom that other people have with Gluten intolerance.

 

I have had a rash on my back that runs along my spine for years, probably ten, I have never had it diagnosed, I just thought it was Lichen Planus, which I also have!  it probably is actually....I looked at some pics online, people with dermatitis herpetiformis on their back, and the rash looked similar except mine distinctly follows my spine all the way down, only on my spine...whereas in the pics it is dotted all over the back.  .Would I need to go to a dermatologist to be tested for sure and what is the procedure, is it painful, I would really kind of like to know what it is now.

 

Recently I found out I am intolerant to Casein in Dairy, is there anybody else on this site that is the same and that can recommend a good site to go to for help and advice sometimes.  For example I started taking Wellbutrin two days ago, I think I have been feeling depressed for a while, and because it has dairy derivatives in it I took a lactose and protein enzyme, to counteract the effect of the tablet.  It sounds a bit silly really, but I felt it was probably the best plan of action.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MycasMommy Enthusiast

I can only say I take Wellbutrin for depression as well. Over a year now.  Its really great. I cannot comment on the dairy thing as I am a mutant and can digest it with ease. The Wellbutrin will take about 2-3 WHOLE weeks before you really really begin to start feeling great. The first couple of weeks it makes you extra hyper and it may be hard to sleep. I get mine without the extended release. It is easier to digest (according to my surgeon) and If I want to try weaning myself from it, it will be easier. I often forget to take the 3rd pill until too late at night and so I just do not take it (or I will be awake all night running in place). Also... *coughS*  it REALLLLLY revs up your libido. uhmm yeah...

cyclinglady Grand Master

Lactose (milk sugar) intolerance is not the same as casein (milk protein) intolerance or allergy. Avoidance is best.

Zebra007 Contributor

MycasMommy..I am in Costa Rica, and therefore everything is very limited in terms of what you can buy, whether that is Meds or food.  They dont have the 100mg tablets, and only appear to have the 150mg and 300mg tablet here, and these are the extended release, but I can ask next time I pick up some more if they have them without the extended release, but I doubt it, and so I have been taking the 150mg in the morning and in a couple of days plan on taking another in the afternoon, so I will then be on the 300mg strength.  Is that what you are taking?  Anyway I need something, I was doing fine, battling on, but the Dairy thing tipped me over the edge I think, its actually quite hard, depressing, not taking any Dairy, and I think it was the final straw.  Last night I was crying over my plate of healthy nibbles, and so I do need something.

 

 

 

cycling lady..Yes I know your right, but I am hoping the enzyme I am taking with the table which states it covers lactose and protein intolerance might be okay, I think I will look further online for more information on this.

MycasMommy Enthusiast

I just looked.  I take 3 100mg tablets every day.. sometimes I do not take the last one because I forget until it is too late at night, but it does not seem to be a very big deal and my mood is up and I remain steady. :)

Zebra007 Contributor

Thanks a lot..I appreciate your thoughts.  I am having trouble sleeping, but as you say that should pass, and hopefully my libido will return!  :D   

 

I looked on line again yesterday and it says that Wellbutrin does not contain lactose! and so I think there is some conflicting information out there, but anyway I am relieved about that.

MycasMommy Enthusiast

Youre very welcome.  Yes the trouble sleeping will, indeed, pass.  Unless you start taking that second dose too late in the afternoon.  So just be very mindful of it.  You will start feeling like you want to work hard and get things done with a great gusto of energy too.  I use that to help me sleep at night. :D  The libido thing though.. jeeezzzzz.. be careful!! hahahah I DID warn you.  :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

some people do great with the welbutrin - my sister loooved it.  i tried taking it to quit smoking, and it kicked my butt :(  it made me increasingly depressed and by the time i got to the dosage level that my doc was working me up to, i was suicidal <completely and totally NEVER like me.  it scared the daylights out of my husband and i called my doc and she said stop taking it right now.  wierd that i had no withdrawal, or if i did, it felt better than when i was on it.  

 

not trying to scare you, just be aware.  like i said, it worked wonders for my sister.  i hope it works for you, too :)  ps - i had the exact opposite result with my libido.  mine is normally over-active and it made me not interested....

MycasMommy Enthusiast

some people do great with the welbutrin - my sister loooved it.  i tried taking it to quit smoking, and it kicked my butt :(  it made me increasingly depressed and by the time i got to the dosage level that my doc was working me up to, i was suicidal <completely and totally NEVER like me.  it scared the daylights out of my husband and i called my doc and she said stop taking it right now.  wierd that i had no withdrawal, or if i did, it felt better than when i was on it.  

 

not trying to scare you, just be aware.  like i said, it worked wonders for my sister.  i hope it works for you, too :)  ps - i had the exact opposite result with my libido.  mine is normally over-active and it made me not interested....

 

 

 

Oh my goodness!!! :o

 

I am so sorry it went so badly for you.  It does say if you feel that way to call right away etc.  I am glad you knew what to do.  Buproprion HCL (Wellbutrin) is in a class by itself on the depression drug chart.  It works ina very different way from the other options. There is a lot of great literature on it if you want to look it up.  The way I understand it, it goes around the "back way" as far as the chemicals in your brain.  I am sorry to hear you had such a bad experience.  It is usually the other depression medications that kill the libido. Why cant you be normal?  ( I am JOKING!!!!)

LauraTX Rising Star

Wellbutrin has generics, and there are likely multiple manufacturers of these, in the various strengths and IR/SR/XL.  If one has lactose, check out another one, it may not.  

Zebra007 Contributor

Hey thanks a lot folks...I did read a lot of info on Wellbutrin before taking it, and so its interesting to hear of two very different stories/effects, I guess it confirms what I read.   I will definitely watch my mood and see how I go!

 

On a happy note, today I found a store that stocks fresh Silk Almond milk!!! the stuff they have on the shelves in the supermarket is either Soy or it contains some additives that aren't all that good for me, and so I felt ridiculously happy about that. I had been making my own milk from Almonds, and that is nice to do sometimes, but it was getting ridiculously expensive and a bit tiresome. :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748

    Jamie0230
    Newest Member
    Jamie0230
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...