Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When To Test.


SGWhiskers

Recommended Posts

SGWhiskers Collaborator

I have Celiac disease so we've kept my daughter gluten free until testing would be reliable for her. Fortunately, we have an awesome support system and several gluten free friends. However, I've forgotten how old she needs to be for reliable test results. I'd rather err on the side of over cautious.

So, how old should kids be before testing is pretty consistently reliable?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I have not found any set ages in my limited research. The older the better, though. I would consider testing before she starts school. No one wants to be deal with being sick and going to school.

I waited a year before I tested my kid (13 years old), but that was due to all the healthcare reform. We are self-employed and even though we could afford insurance, getting it was difficult! She never stopped eating gluten and had no symptoms. With two of us, we think she is doomed, but we are ever hopeful!

StephanieL Enthusiast

When DD started preschool we gave her gluten in home for a few days to be sure she didn't have a horrible reaction to it. Then when she started I knew she would get getting gluten containing snacks at school on a daily basis.  At the winter holiday break we had her tested.   She is now in K and since they don't have the same snack she is back to being gluten free except when we go out to eat.  We chose to have a gluten-free house for all the kids to keep DS safe (he's the oldest).  We have a younger kid who we are planning on the same approach with.

SGWhiskers Collaborator

Since we are homeschooling, we don't have the pressure of lunchrooms and snacktime.

nvsmom Community Regular

Toddlers are the hardest to test.  Usually they say 2 and under is tricky.

 

If she resumes eating gluten, remember that she'll need to be retested every two years for life.  It might be safer to just keep her gluten-free until she wants to test.

StephanieL Enthusiast

Since we are homeschooling, we don't have the pressure of lunchrooms and snacktime.

Accommodations carry over to college too so it may not be something now/today but may be something for the future you may need.

nvsmom Community Regular

Accommodations carry over to college too so it may not be something now/today but may be something for the future you may need.

 

True. Because you don`t need the accommodations yet, there is no rush to test now if you don`t want to.

 

I`m in Canada, and homeschooling too, and up here they generally trust whatever the parent tells them.  For instance, my boys attend classes with the local public school board through the homeschool program. My oldest has a tree nut allergy, mild asthma, and a gluten sensitivity which I suspect is celiac disease but his one and only test (two years ago) was negative, but I have just told them he has those helath issues and celiac disease - they did not ask to see any proof at all.

 

I have no idea how it works in colleges, but I probably won`t have my kids in rez - most kids don`t use that up here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,586
    • Most Online (within 30 mins)
      7,748

    Hurricansparkles12
    Newest Member
    Hurricansparkles12
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.