Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thanking The "old School" Posters

Guest DanceswithWolves

By Guest DanceswithWolves
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

Recommended Posts

Guest DanceswithWolves
Guest DanceswithWolves
Posted

I just want to be the first to actually start a thread thanking all the helpful members that usually post a reply back within miniutes if not days to all us newbies that are either just starting to explore their symptoms or are reaching a diagnosis.

Many of us turn to this board in hopes of some kind of answer or at least guidance.

I'm sending "big-ups" to Jnkmnky, KatiUSA, Nantzie,Darlindeb, Darkangel, Rachel--24, Jen2005, Nini and anyone else I may have missed that posts a helpful and speedy reply. You know who you are! :D

I know it can be tiring posting to so many newbies that come and go...but all of you show a range of dedication and love that goes above and beyond Celiac and all it's symptoms.

One thing's for sure, I am not gratitude-intolerant! Hee,hee,hee... :rolleyes:

Thanks again.

Sincerely,

Erik D.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

AWWWWWW aren't you sweet! From me I say, You are most welcome. It is a pleasure to me to be able to offer some help to those who are in the same boat I was 2 1/2 years ago!

Jenn2005 Contributor
Jenn2005
Posted

I am a new to Celiac also. My husband is actually the Celiac and we know what you are going thru. He gets very frustrated with all the hurry up and wait with the doctors. We find a lot of comfort and support on this message board. Its nice to know you aren't alone.

Jennifer

Jnkmnky Collaborator
Jnkmnky
Posted

Me? Well, you're welcome!!! :)

KaitiUSA Enthusiast
KaitiUSA
Posted

Thank you for that encouragement. You are very sweet. Hope you find some answers out soon and can get on the road to feeling better :)

Rachel--24 Collaborator
Rachel--24
Posted

Thank you Erik! That was a very thoughtful gesture. :D

I'm still pretty much a newbie myself. I've just somehow managed to aquire quite a bit of knowledege about celiac disease in the short time I've been gluten-free. It was only 3 months ago that I was clueless and scared and this board helped me out tremendously. People like Kaiti, Nini, Matilda, JnkMnky, gf4life, Jenvan and others were the ones who really helped me out and I'm grateful for that. :)

celiac3270 Collaborator
celiac3270
Posted

I suppose I've been here awhile, though I have been remiss in my celiac-ing duties these past few months. :unsure:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


angel-jd1 Community Regular
angel-jd1
Posted
I suppose I've been here awhile, though I have been remiss in my celiac-ing duties these past few months. :unsure:

<{POST_SNAPBACK}>

Same here celiac3270! I have just been hanging back here lately. I guess we all tend to do that sometimes. Oh well right :)

Were you on here when we had the old board?? Before it changed formats? I can't remember. I think you were..... OH well that was a couple of years ago :) time flies huh!

-Jessica :rolleyes:

Jen H Contributor
Jen H
Posted

Right on, Erik! I'm new to the board as well and would also like to say thank you. It's nice to be in contact with fellow celiacs who truly understand what I am going through. Thanks for all the advice and encouragement! I hope someday I can offer you guys some advice as well :)

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Somebody should throw Richard (lovegrov) a big thanks -- he always seems to come in with a quick three line response and quell any uncertainty!!!

Thanks Richard!

jerseyangel Proficient
jerseyangel
Posted

I second the thanks to Richard! And thanks to all of you who answered my many questions and everyone else who helped me by my just reading through the posts. As I've said before. this site has been a godsend for me these past few months--couldn't have gotten to this point without ya :D

kevsmom Contributor
kevsmom
Posted

Erik - you are absolutely right. It is way past time to thank all of our friends who have taken their time to research and post information.

celiac3270, your name was omitted from the original list of writers. With your wealth of knowledge, I would have never guessed that you were a 14 year old boy. You are wise beyond your years.

Thank you everyone for your help and support!

jcgirl Apprentice
jcgirl
Posted

I would also like to offer my sincere appreciation for all the advise that I have received here. It has helped me in my struggles to find out what was wrong with me. Thanks to everyones experiences and posts I found the courage to stand up for myself with doctors and seek out the answers that I had been searching for for the past 10 years.

My tummy, etc. THANKS you all very much :)

Nantzie Collaborator
Nantzie
Posted

Thanks so much Erik. You're very welcome. I'm honored to be among those names. I'm also so appreciative of all the help and support of everyone here. It's an amazing board.

Nancy

darkangel Rookie
darkangel
Posted

I'm a newbie, too. I guess I'm just a little too free with my opinions... :rolleyes:

And I've done a ton of research since I was diagnosed with ulcerative colitis in '99. I have a library of digestive health books. When your doctors tell you there's no hope, you have to strike out on your own for answers.

Rachel--24 Collaborator
Rachel--24
Posted
I'm a newbie, too. I guess I'm just a little too free with my opinions...  :rolleyes:

And I've done a ton of research since I was diagnosed with ulcerative colitis in '99. I have a library of digestive health books. When your doctors tell you there's no hope, you have to strike out on your own for answers.

<{POST_SNAPBACK}>

I would like to send out one more BIG thank you and that is to the Admin (Scott) because without him this board would not exsist and I would imagine alot of us would still be sick without the support and advice of the people here.

Carriefaith Enthusiast
Carriefaith
Posted

I think that everyone deserves a big thank you :) Many people put in a lot of voluntary time into this site and helping others. I'm sure we have all learned valuable and important information from others on this site, myself included. I don't know what I'd do without this site sometimes. So thanks to everyone :D

darkangel Rookie
darkangel
Posted
I would like to send out one more BIG thank you and that is to the Admin (Scott) because without him this board would not exsist and I would imagine alot of us would still be sick without the support and advice of the people here.

<{POST_SNAPBACK}>

Hear, hear!

danikali Enthusiast
danikali
Posted

Yes!!!!! Thank you everyone!!!! Even some "newbies" who want to figure it out with me!!! :D

I really do find SO MUCH COMFORT IN THIS FORUM! You all understand me, and though family and friends in my life care about me, I'm sure, they don't really KNOW what I'm going through and they are just as frusterated as me because I AM NOT THE SAME PERSON WHEN I'M SICK! And I'm sure you all of you feel bad for the people in your life as well sometimes when you can see that just because WE are the sick ones, doesn't mean we are the only ones suffering. This site helps me "get back to myself" because it let's me know I'm on the right track and in turn, I am a little bit more sane to the people in my life every day!

SO THANK YOU! I REALLY DO LOVE THIS WEBSITE and of course the caring people who make it!!!!!!!!!!!!!!!!!!!!!!!!!!

-Danielle :)

celiac3270 Collaborator
celiac3270
Posted

Jessica, I wasn't here for the old board, but I joined shortly after (maybe two months after?) the formation of the "new" board.

Absolutely a huge thank you to Scott!!! :D

Guest nini
Guest nini
Posted

I have to say my big "thank you" goes to celiac3270 and Kaiti for helping me navigate this site and helping me through some of the rough spots.

Rachel--24 Collaborator
Rachel--24
Posted
Thank you Erik! That was a very thoughtful gesture.  :D

I'm still pretty much a newbie myself. I've just somehow managed to aquire quite a bit of knowledege about celiac disease in the short time I've been gluten-free. It was only 3 months ago that I was clueless and scared and this board helped me out tremendously. People like Kaiti, Nini, Matilda, JnkMnky, gf4life, Jenvan and others were the ones who really helped me out and I'm grateful for that.  :)

<{POST_SNAPBACK}>

I realized I forgot to mention someone on my previous list. That person is Tarnalberry....she's always helping people and she also gives out recipes. :D

I'm sure there are others I'm forgetting but basically everyone who takes time out of their day to answer questions gets a Thank You!

KaitiUSA Enthusiast
KaitiUSA
Posted

Everyone on here who helps out really deserves a big thank you..it's all of you that make this site what it is. I know I have got to know some great people on here and you all are just great.

And of course a big thank you to Scott for starting such a great site :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      results from 13 day gluten challenge - does this mean I can't have celiac?

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st worst 12 days of my life Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    2. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks. Even at 8000 I felt no noticeable difference. Then after...
    3. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

      I don't know if I am getting sufficient Omega Threes. I read about phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    4. Scott Adams
      0

      Gluten-Free Cantonese Steamed Fish with Ginger, Scallions, and Sizzling Oil

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      results from 13 day gluten challenge - does this mean I can't have celiac?

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue. I have eaten a supposedly high lectin diet (I say supposedly because lectin...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748
    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.