Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You List "gluten" As An Allergy?


CeliacMommaX2

Recommended Posts

CeliacMommaX2 Enthusiast

When you fill out paperwork for medical, school, camp, etc info, do you list "gluten" as an allergy?  I want people to be aware and wonder if mis-informing people (by saying she has a gluten allergy) would keep my daughter safer in various environments.  I also wonder if I need to list wheat, barley, and rye specifically since there are still many people who don't know what gluten is...

Thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Authentic Foods
Little Northern Bakehouse



Celiac.com Sponsor (A8-M):
Tierra Farm


nvsmom Community Regular

I do.  I list it under food allergies and in the medical issues area on paper work.  I usually write : Has Celiac disease - cannot eat gluten (wheat, barley, rye, etc) - please do not give him food.

kareng Grand Master

I write it on my stuff just like Nicole says - Celiac disease - NO gluten - wheat, rye, barley, oats.

I add oats because non- gluten-free oats aren't OK but a camp or hospital might serve granola or oatmeal.

When I had a outpatient procedure, the recovery nurse asked what I could have and we settled on Sprite and applesauce - nothing else. There may have been things like jello or juice I could have but it was easier to just list the drink and the food they were going to give me and not give them choices to confuse them.

nvsmom Community Regular

Hmm, oats.  I never thought of that.  Thank you! :)

greenbeanie Enthusiast

On the allergy line of camp and school forms, we also put "wheat, rye, barley, oats (celiac disease - must avoid even tiny amounts, but antihistimines won't help)," or something like that. Several camp directors and pharmacists have advised that we list it as an allergy, because staff are generally well-trained to take food allergies seriously, and any substitute or new staff member who looked at the form would see the allergy flag immediately. However, I add the bit about antihistimines because if she ever was given gluten inadvertently, I don't want them to compound the problem by then giving her an antihistimine with unverified ingredients.

Even her primary care doctor, who knows celiac isn't an allergy, told us he was listing it as an allergy in their computer system to make sure the info was displayed prominently.

africanqueen99 Contributor

Yep.  All of the above.  I write "Celiac Disease - can not eat or play with gluten (wheat, oats, rye, barley).  All food will be sent from home." in the allergy area AND the "other" area. 

 

I do it to get a straight flag to the nurse.

mommyto2kids Collaborator

I second what they all said.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Daura Damm
Holidaily Brewing Co.



Celiac.com Sponsor (A8-M):
Daura Damm


cap6 Enthusiast

Depending on the situation, yes I list as an allergy as that is what most people understand. And if I had a celiac child I think I would be writing it in red!!!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      130,151
    • Most Online (within 30 mins)
      7,748

    max it
    Newest Member
    max it
    Joined

  • Celiac.com Sponsor (A20):
    Holidaily Brewing Co.


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Little Northern Bakehouse



  • Upcoming Events

  • Posts

    • Zuma888
    • N00dnutt
      Hi @terrymouse Generally, after a Celiac Seriology Blood Test, if something anomalous shows up, the follow-up will be a Gastroscope. Your Endocrinonogist will be looking to see if you still have (Villi). Villi are Tenticles/Hairs that are prevalent throughout the small intestine; their function is to extract nutrients, vitamins and water. The absense of Villi will typically result in watery bowl movements, other telltale signs being, lethargy, feeling cold, always hungry (valuable nutrients are being bypassed). I was diagnosed 12 years ago. One other thing associated with an AutoImmune Disease, they generally have a companion, in my case I have Hypothyroidism, other may have Hyperthyroidism (Hashimoto's). Others may get Eczema, or some other skin disorder, usually due to not getting the proper nutrition your body needs.   HTH Mark.  
    • jeriM
      Thank you Knitty Kitty,   I have all the information for the nutritionist sitting in front of me, but I've procrastinated.   Between you and Scott - I'll contact him tomorrow and get started on a better me.   Thank you both for all the support and information.    
    • knitty kitty
      Hi, @jeriM, I can attest to Celiac and eye problems being connected!  There's a higher rate of Sjogren's Syndrome in Celiac people than in those without celiac disease.  Sjogren's Syndrome causes dry eyes and can even lead to dry mouth which can alter taste and smell.  Have your doctor check for Sjogren's.  Correct low Vitamin D, which regulates the immune system.  Talk to your nutritionist about including in your diet plenty of Omega Three's. Omega Three's help keep our eyes moist and lubricated.  You know how oil floats on water, same thing with our eyes!  Fun fact:  Our eyes are derived from the same sort of tissues as our digestive tract in a developing fetus. Oh, check your thyroid function, too.  Hashimoto's thyroiditis frequently occurs with Sjogren's. Autoimmune diseases tend to cluster in celiac disease.  I also have Diabetes type two.   Discuss with your nutritionist the benefits of a low histamine diet.  A low histamine diet can help reduce inflammation and gets those inflammation markers down.  I like the Autoimmune Protocol Diet, a Paleo diet that promotes intestinal health. Best wishes!  Keep us posted on your progress!
    • jeriM
      Ah, Scott,    Ha ha!  Thats almost a reasonable assumption given the prices during the shortage.  However, our eggs?  We always gave them away to friends and seniors we know, so no mansion here.  Now we have to buy eggs like everyone else.   The house we found, we loved so much that it made it worth it for us to give up the chickens.  A hard decision.   
×
×
  • Create New...