Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tummy Troubles


mpflynn

Recommended Posts

mpflynn Newbie

I know for you celiac veterans this probably will all sound silly, but I would love any guidance. I know no one else with celiac and only have knowledge in what cites like celiac.com tell me. I am far from any specialist, I live in the middle of nowhere! I so appreciate any thoughts thank you

I have been gluten free for two years now but some things have never been resolved, despite my being off of gluten.

It only happens after I eat, and it it usually high glycemic, or sugary foods such as fruit, pop. etc. I often feel very faint, and think it may be tied to a lack of electrolytes such as salt in my diet (but I'm not sure at all) I take multivitamins and magnesium with electrolytes but it doesn't seem to solve the issue. Im not for sure why, but I had a passing out episode a little over a year and a half ago and the doctors could not find anything wrong, but a bananana with all that potassium fixed it! So I eat bannas whenever I am faint, which is very often! ( despite the feeling so hyper then drunk/exhausted afterwards)I am always thirsty, I drink roughly a gallon of water a day! I am weak (muscle weakness), exhausteed often, I sleep 8-10 hours a night and it doesn't seem enough. I don't digest fruit, or dairy well maybe that has something to do with it. Yes I know I said I eat bananas because the potassium seems to help the dizzy spells but then my tummy is upset.

I truly live off kefir, that yogurt probiotic drink ( I homemake my own from milk and kefir grains) it is the only thing that helps my tummy digest what I eat! and it is the only advice my general doctor could give me! If I go too many days without kefir, I am in severe pain as if I'd eaten gluten and I become constipated and nauseous. These issues have tampered with my daily life but I've learned to cope as best I can but in the last week something strange has happened.

Almost everyday for the last 8 days, I have experienced extreme gas within an hour of eating, my stomach (especiallly small intestine region or very low abdomen) swells with gas and I have resulting diahrea roughly four times a day. I have tried changing what I eat, but the problem keeps reoccuring. It never goes away!

On a side note, I eat bananas and berries regularly and never had issues before!! but it should be mentioned that my father can hardly digest any fruit, sugar, or dairy, and it is similar with my brother. Although they do not have an issue with gluten or any signs of celiac. This fruit thing could be my issue but I read some of the forums and a lady with almost identical symptoms was told in the comments about a Candida infection and or alchohol poisining from food furmenting in the gut!!! That would explain my weakness and often "drunk" behavior that has no explination other than eating fruits/sugars.

thank you for the suggestions!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac sharon Apprentice

Sure you could be sensitive to FODMAPS, but also consider getting your B vitamins checked. My B1 and B2 were unmeasurably low, and they affect you neurologically and muscle weakness. On a positive note, now, 4 1/2 years later I only supplement with a MVI and my B's are okay. Takes a long time to heal the gut.

GF Lover Rising Star

With as much of Kefir as your eating/drinking you may have a yeast infection.  The gut also needs bad bacteria as well as good.  You might be unbalanced.  I would get checked for candida.

 

You could cut back on Kefir ( alot ) and see what happens or take out the fructose or the dairy.  Only cut 1 thing at a time so you know if that particular thing is affecting you. 

 

Colleen

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,243
    • Most Online (within 30 mins)
      7,748

    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.