Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Guilt

Redhead03

By Redhead03
in Related Issues & Disorders

Recommended Posts

Redhead03 Newbie
Redhead03
Posted

I got married about 2 years ago and was diagnosed about 1 year ago. My husband and I have been talking about trying to have kids. But I can't get passed this feeling of guilt. I have a genetic disease and I know I have a genetic disease. Can I really ask someone else to shoulder the burden of this disease? I know having a child does not guarantee a child who will develop Celiac disease. But I cannot imagine the guilt if I had a child who did develop Celiac disease. Has anyone else dealt with this? If so, how did you overcome it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

o, redhead, i feel your guilt!  but, we didn't know where my daughter's r.a. and son's type one diabetes came from until i got diagnosed in my 40's.  nothing i can do about it now, and they are pretty awesome people.  i don't think i would want to miss knowing them :)  plus, maybe you won't pass it on or they can actually inherit the gene and never have it be 'active'.  i also like to think that science is going to make some pretty awesome breakthroughs and make it easier for all of us with a.i. diseases.  my opinion?  don't miss out because of 'what ifs' (if you think too hard about it, that's really all life is:  what if this and what if that.  nothing is really guaranteed and it's up to us to make the best of it)  annnnd, if your kid *does* end up with celiac, you will be so awesome at feeding him/her because of your experience.  good luck with whatever you decide and welcome to the forum :)

Gemini Experienced
Gemini
Posted

Hi I'm Eloise and 14

You seem a littel worried to hav children and scared butt don't feel guilty.I think you shoulld hav children somone to love and spoil and hug and giv loads of kisses to.They mightt not gett coelliac you no and if they do you will hellp them gett better and if you don't hav children you will spend your hole liffe wishing you had children if you don'tt hav them now.

I hav celiac and cystic fibrosis and my CF is real bad butt I hav my daddy to giv me lotts of kisses and come to the rescue when I need to go to hosspital my mummy is real sick with MS.I hav two sisters in heaven and one still here.I hope my mummy and daddy never fellt guilty or worried abot having children.I no my life and my families life has been verry very verry hard at times but I am glad I am alive and so glad mummy and daddy had me.i think they ar glad they had me too.My mummy and daddy ar the bestist mostt amazing peopell ever and I no if you hav a son or daughter and if they ar sick or nott they will love you so much no matter what.

Eloise

Well...there you have it, redhead!  This advice comes from the smartest 14 year old in the history of the world so listen to Miss Eloise...she knows only too well how things really work in life.  ;)  :)

caro7 Newbie
caro7
Posted

DITTO GEMINI. What a girl!!!!!!!!!

bartfull Rising Star
bartfull
Posted

Think about this - because celiac is genetic there is a very strong likelihood that you inherited it from one of your parents. Would you have rather THEY didn't have YOU?

 

Life is so GOOD, even with celiac! As Not Me said, with scientific advances it's only going to get easier, and as Eloise said, she is glad her parents had her. GO FOR IT! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley...
    2. MogwaiStripe
      - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease. Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/
    3. Scott Adams
      0

      Tahini Swirl Fudgy Brownies (Gluten-Free)

    4. Butch68
      - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too. is this everyone’s experience? Can I drink it? I get dermatitis herpetiformis and don’t get instant react...
    5. trents
      - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,217
    • Most Online (within 30 mins)
      7,748
    Sutto
    Newest Member
    Sutto
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Gluten Issues and Vitamin D

      By MogwaiStripe · Posted

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Guinness, can you drink it?

      By Butch68 · Posted

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.