Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Label With Less Than 20 Parts Per Million


Vanilla Gorilla

Recommended Posts

Vanilla Gorilla Newbie

RE items that have gluten but are less than 20 parts per million still safe?  My doctor says no.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gilligan Enthusiast

I don't have a problem with them, and my antibody level couldn't get any better.

psawyer Proficient

There are two parts to this.

1. The threshold defined by FDA rules allows 20 ppm; any level below that, including zero, is fine too. We all want zero ppm, but I realize that that is a goal, not a reality.

2. When an amount appears on a label, it indicates that the product has been actually tested for gluten content, and tested negative at the noted level. If it just says "gluten-free" it may not have been tested at all. Any test will have a threshold, and 20 ppm is a common middle ground between extreme sensitivity and high cost. More sensitive tests exist, but how much did you want to pay for your food? It is scientifically impossible to prove zero content.

So, I welcome such statements, which mean that the manufacturer not only does not include gluten on purpose, but also checks at some level for accidental contamination.

YMMV.

valentina Newbie

Thank you!  For especially agreeing ....it's either "there is gluten OR no gluten"  I wish they would make up their mind!

This morning I called Cheerios, because of the labelling on the front "Gluten Free".....On the Regular Cheerios and also the Honey Nut Cheerios

there are 2 ingredients:  Whole grain oats, oat bran---It is not specified that these ingredients are gluten free unless it says in the actual ingredients gluten-free whole grain oats or gluten-free oat bran.  I will not inform my customers (at the supermarket) to purchase these items unless the Company investigates and corrects this outlandish false advertisement of being "gluten free".  This poses a huge dis-service to the large population of people with Celiac disease.  If there is a single speck of gluten, I would not advise anybody to eat this cereal.  Do you want your original symptoms back?  I do not!  Have we all gone through enough suffering and torment.....Take the gluten out!  Whole wheat, bulghur wheat, oat, rye, barley and all of their derivatives should not be eaten by a person with Celiac disease, period!  

 

Do all of us have to band together and get a petition to stop Cheerios?  Then let's do it!

 

RE items that have gluten but are less than 20 parts per million still safe?  My doctor says no.

bartfull Rising Star

Unless the ingredients in an oat-based product say "Certified gluten-free oats", I wouldn't eat it. Most oats are contaminated from being grown in the same field, harvested on the same equipment, and stored it the same bins as wheat. Even then, some (but by no means all) celiacs react to certified gluten-free oats.

 

Most gluten-free items that are tested are only tested for less than 20 PPM because the tests for 10 or 5 PPM are a lot more expensive. But if the label says "less than 20 PPM", that doesn't mean it has 19 PPM. Could be anywhere between zero and 19. I've never had a reaction to anything that has the "less than 20 PPM" label. But that's just me.

squirmingitch Veteran

You might be interested in reading this about Cheerios:

Open Original Shared Link

Vanilla Gorilla Newbie

Thank you for the comments.  What Im curious about is if the FDA says its gluten free because its less than 20 ppm is it then safe to eat if your celiac?  Will these items affect my intestinal tract?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Based on studies by celiac experts, the "less than 20 PPM" is deemed safe and should not cause intestinal damage.

You might find this interesting reading from the FDA:

Open Original Shared Link

anthony colatrella Newbie

to be safest, only if that product has been certified gluten free by one of the official certification organizations--CSA, GIG, or NFCA---their certifying label should be on the product--the FDA uses 20ppm as their threshold level and that should be fine for most celiacs--at that level you could eat a pound of such food and still be at only a total of 10mgs of gluten a day which is generally regarded as a safe level---meaning no damage should occur---the certifying orgs actually use stricter levels---5ppm for CSA, and 10ppm for GIG and NFCA---so checking for their labels is best--otherwise you are relying on the food manufacturer itself; the FDA is not actually doing the testing---they just established the level and expect the manufacturer to comply---supposedly there will be periodic checks or they will investigate complaints. As far as CHEERIOS gluten-free, I believe Trish Thompson of The gluten-free Watchdog has been working with them, but I don't think she was ready to fully approve---I believe that was the most recent update---you can check  

anthony colatrella Newbie

if label indicates less than 20ppm as regulated by FDA that indicates that company has made that measurement and is complying with FDA regulations and hopefuly that company can be trusted--this is still a "new" venture and I guess we will find out who can or cannot be trusted--that is why I advised checking for one of the certifying organizations' labels as they are all national celiac organizations and have been doing this already for many years well before the FDA made their own regulation plus they do use stricter levels---if you do trust a product labeled gluten-free at less than 20ppm, you should be able to eat a pound of such food safely-20ppm=20mgs gluten per kg of food----and 10mgs of gluten daily is considered a safe level so as long as you are not eating more than a pound of such food you should not exceed that 10mg level--of course that is for the majority---there is always individual variability and some will tolerate more, others less

cap6 Enthusiast

A little over a year ago I attended a one day workshop led by Shelley Case, author of "The Gluten~Free Diet, A Comprehensive Resource Guide". She has worked extensively with both the U.S. FDA and Canadian version (CDR - I believe I have that correct) in regards to gluten free labeling. She is extremely well educated and knowledgeable when it comes to the Celiac disease. According to her, when a product is labeled gluten free, less than 20ppm, then the company has indeed tested for that. She further stated that the majority of company's do, in fact, test for less and most labeled products have far less than the 20ppm even tho not so stated on the label. A food product company does not want gluten free/celiacs to consume their product and then get sick. It makes sense. Eat a mislabeled product consumer get sick, they stop buying said product. The food companies want you to buy their product. A consumer also needs to keep in mind that when consuming a gluten free food product you are also consuming a list of other ingredients (maltodextrin, maltose, soy, xantham gum etc) any number of which can cause "glutend" type symptoms.

Also, if you safely consume a food product that has 5ppm but eat four or five more food products all containing the same 5ppm then you can exceed what is considered "safe" over the course of a day.

For what it's worth. For myself, everything Shelly Case had to say made perfect sense.

kareng Grand Master

A little over a year ago I attended a one day workshop led by Shelley Case, author of "The Gluten~Free Diet, A Comprehensive Resource Guide". She has worked extensively with both the U.S. FDA and Canadian version (CDR - I believe I have that correct) in regards to gluten free labeling. She is extremely well educated and knowledgeable when it comes to the Celiac disease. According to her, when a product is labeled gluten free, less than 20ppm, then the company has indeed tested for that. She further stated that the majority of company's do, in fact, test for less and most labeled products have far less than the 20ppm even tho not so stated on the label. A food product company does not want gluten free/celiacs to consume their product and then get sick. It makes sense. Eat a mislabeled product consumer get sick, they stop buying said product. The food companies want you to buy their product. A consumer also needs to keep in mind that when consuming a gluten free food product you are also consuming a list of other ingredients (maltodextrin, maltose, soy, xantham gum etc) any number of which can cause "glutend" type symptoms.Also, if you safely consume a food product that has 5ppm but eat four or five more food products all containing the same 5ppm then you can exceed what is considered "safe" over the course of a day.For what it's worth. For myself, everything Shelly Case had to say made perfect sense.

I don't think that last part is quite right. You don't add 5ppm + 5 ppm and it equal 10 ppm. It's 5 ppm in a million then another 5 ppm and its 999,995 non gluten ppm. So now you have 5 ppm in 2 million - each million contains 5. Maybe you could say you now have 10 parts per 2 million? But that is still, when reduced down, 5 part per 1 million.

I think Dr collatrella has done a good job of explaining it. This parts per million is hard to understand.

Edit - this doesn't even address if there are actually 5 ppm of gluten at all. The test can only say less than 10 ppm or 5 or 20. It doesn't say exactly " 2 ppm". So, returning to some basic math - <5. Could be 0 or 1 or 2 or 3 or 4 .

psawyer Proficient

A lot of unnecessarily complicated arithmetic can be trotted out when it comes to parts per million (ppm). Even if the content of everything you ate was 19 ppm, you would not ingest a level believed harmful on a normal diet. Two items at 5 ppm are the sum of the two items, still at 5 pm overall.

FranDaMan Apprentice

Sooo, per the GFWD posting it seems that there could be many boxes of contaminated cereal out there (how many boxes do they produce in 24 hrs?) but when averaged out the batch tests to under 20 ppm and is labeled as safe. I'm not liking my odds on this and I sure do miss Cheerios! I think I will continue to wait.

anthony colatrella Newbie

FranDaMan---think waiting is best---follow up with GFWD

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,946
    • Most Online (within 30 mins)
      7,748

    Miyasato
    Newest Member
    Miyasato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.